The Mast Cell Disease Society, Inc.

12/16/2025

Our community has created several meaningful campaigns in honor of loved ones affected by mast cell disease. Each fund reflects a family’s story and their hope for better care. You can learn more about these campaigns or support them on our website:

Many families also create their own fundraisers to support the work of TMS. You can […]

12/15/2025

Nutrition can feel overwhelming when you’re managing mast cell disease. Our Nutrition FAQ breaks down common questions and offers clear, supportive guidance to help you navigate daily choices. Read more on our website at https://buff.ly/2yVGc2s

12/14/2025

Weekly Upcoming Support Groups!

- 12/16, 4:00–5:00 PM ET – General Support Group with Calla
- 12/16, 5:00–6:00 PM ET – Women’s Support Group with Alexandria Fiorenza
- 12/17, 8:00–9:00 PM ET – Sexuality Support Group
- 12/17, 8:00–9:00 PM ET – Positivity Support Group
- 12/18, 1:00–3:00 PM ET – Mastocytosis Support Group with Pam Hodge
- 12/21, 2:00–4:00 PM ET – Men’s Support Group

Sign up to join: https://buff.ly/YXgViEw

12/13/2025

Courtney, a physician, spent years searching for answers before being diagnosed with indolent systemic mastocytosis. She shared that “TMS has helped me learn more about the disease, seek some alternative treatments and feel comfortable with the providers I’m seeing.” Her journey highlights how important healthcare provider education truly is. Read more here: https://buff.ly/NnVm2CL.

You can also share your own story through the form, and consider donating to TMS’s healthcare provider education programming during this season of giving.

12/13/2025

At the FAACT Summit, Isabelle represented TMS and connected with people who are working to support those affected by allergy and immunology conditions. Her time there offered new direction for how we can continue strengthening awareness.
Read her reflections:

Reflections from the FAACT Summit: Connecting Communities and Sharing Awareness An inside look at the […]

12/12/2025

Kelly lived for years without clear answers. When she finally learned she had mastocytosis, her world shifted and her routines changed in ways she never expected. She still deals with pain and uncertainty, but she keeps moving forward and holds onto hope. Read her full story:

My Mastocytosis Story In 2023, my husband and I decided to move from our home […]

12/10/2025

Living with a mast cell disease (MCD), such as systemic mastocytosis (SM), isn’t easy. From feeling misunderstood to explaining your unpredictable symptoms, it can be overwhelming.

We’re working with Blueprint Medicines, a Sanofi company, to bring you MCDecoded Live: Building Your Community when Living with a Mast Cell Disease. This panel discussion features our very own Isabelle Charlot and community advocates Rachell L’argent-Phillips and Jenna Gestetner. We’ll talk about ways to build a supportive community that’s there to listen to, care for, and stand by you.

We hope you’ll join us! RVSP above!

Date: December 10, 2025

Time: 3 PM ET

Speakers:
· Rachell L’argent-Phillips, Community advocate and social media influencer living with SM
· Jenna Gestetner, Community advocate and social media influencer living with MCAS
· Isabelle Charlot, Communications and Special Projects Coordinator, The Mast Cell Disease Society (TMS)

Moderated by:
· Fatima Scipione, Vice President of Global Patient Affairs, Blueprint Medicines, a Sanofi Company

Visit MCDecoded.com from Blueprint Medicines, a Sanofi Company, for more information.

All members of this panel are being compensated by Blueprint Medicines, a Sanofi Company, for sharing their experience.

12/10/2025

Living with a mast cell disease can be overwhelming, but community can make a difference.

In partnership with Medicines, we’re hosting a Facebook Live panel discussion on TODAY at 3 PM ET, bringing together members of the community, including our very own Isabelle Charlot. You’ll hear more about building meaningful support systems with loved ones and care teams.

Find out more and RSVP here: https://buff.ly/yqiyHYR

12/09/2025

We’re thrilled to see positive top-line results from Cogent Biosciences’ APEX trial of bezuclastinib in patients with Advanced Systemic Mastocytosis. We’re grateful for continued progress toward new treatment options for patients with Advanced SM. Progress like this brings hope to our community. 💜
Read full press release here: https://buff.ly/0r0qmcW
To get updates directly from Cogent Biosciences: https://buff.ly/DiZaKuq

12/09/2025

Looking for thoughtful gift ideas? The TMS community shared some amazing suggestions to inspire your giving this season. Check out the creative and heartfelt ways to bring joy and support to loved ones.

12/08/2025

We are honored to share this proclamation from Governor Josh Stein recognizing Mastocytosis and Mast Cell Diseases Awareness Day in North Carolina. This recognition helps bring greater visibility and support to the mast cell community, which is vital to continued awareness.

12/07/2025

Weekly Upcoming Support Groups!

- 12/10, 7:00–8:00 PM ET – Parenteral Nutrition and IV Therapies Support Group with Denyse Nanan
- 12/12, 5:00–6:00 PM ET – Work Life Support Group with Shawna H.

Sign up to join: https://buff.ly/YXgViEw