The Mast Cell Disease Society, Inc.

10/27/2025

Calling all Facebook connoisseurs! We’re looking for volunteers to help moderate and support our private peer community. If you’re passionate about connection and making a difference, email Isabelle.Charlot@tmsforacure.org or Info@tmsforacure.org with the subject line “Facebook Moderator Interest.”

10/26/2025

Weekly Upcoming Support Groups!

10/26, 2:00–3:00 PM ET – Fiber Arts with the ED
10/28, 5:00–6:00 PM ET – General Adult Support Group with Alexandria Fiorenza

Sign up to join: https://buff.ly/YXgViEw

10/25/2025

Our very own Isabelle Charlot had the honor of representing The Mast Cell Disease Society at FAACT’s Allergy Summit in Oak Brook, Illinois, held October 3–5, 2025. Events like this are an important opportunity to connect with healthcare professionals, share resources, and raise awareness about mast cell disease.

10/24/2025

ICYMI: The recording of our Anaphylaxis Uncovered webinar is now available. Tune in to learn from leading experts about recognizing, managing, and preventing anaphylaxis.
Watch here:

ICYMI: Anaphylaxis Uncovered Webinar Recording and Resources Back in late September, we held an incredibly […]

10/23/2025

Hope Blossoms Here. Our newest TMS coloring page, “Ribbon Garden,” is ready for you to bring to life. Color the awareness bows, add your own patterns, and share messages of hope. Submit your masterpiece to info@tmsforacure.org
for a chance to be featured!

Hope Blossoms Here: Create Your Own Awareness Ribbon Garden! Get ready to bring your artistic […]

10/22/2025

Registration is open for TMS Together 2025: Community & Care in Mast Cell Disease! Join us virtually Oct 28–30, 6–8:30 PM ET, as patients, caregivers, clinicians, and researchers come together to learn and connect. https://buff.ly/DW3RCTO

10/20/2025

Everyone’s treatment plan is different – always consult your doctor or pharmacist about which medications are right for you. Our medication safety and readiness checklist helps people with mast cell diseases stay informed and prepared when managing their condition. Download at mastocytosis-mcas.org/factsheets

or you can find it on TMS's site here: https://tmsforacure.org/2025-awareness-days/

Thanks to our sponsors and

10/20/2025

Living with a mast cell disease can feel unpredictable at times. You can feel more confident knowing you’ve planned ahead. We are excited to add this new fact sheet regarding emergency preparedness to our other emergency action plan resources.

This new guide offers simple steps to help you create an emergency plan with your care team. You can find this resource here: https://tmsforacure.org/2025-awareness-days/

or here: mastocytosis-mcas.org/factsheets

Thanks to our sponsors and

10/20/2025

People with mast cell diseases may react to a wide range of stimuli. These triggers prompt mast cells to release a wide variety of mediators, including histamine, prostaglandins and leukotrienes, leading to symptoms that can affect multiple body systems. Download this practical guide to recognizing and managing triggers: https://tmsforacure.org/2025-awareness-days/

You can also find them here: mastocytosis-mcas.org/factsheets

10/20/2025

Mast cells play a crucial role in the immune system. They’re found throughout the body, especially in tissues that interact with the outside world, such as the skin, lungs and gastrointestinal tract.

When activated by a trigger, mast cells release 200+ mediators – including histamine, prostaglandins and leukotrienes – that can affect many body systems. In mast cell diseases, these cells don’t behave normally, leading to amplified or unpredictable reactions.

Our first step guide provides reliable, accessible information to support patients, families and communities living with a mast cell disease. Visit mastocytosis-mcas.org to download.
mastocytosis-mcas.org/factsheets

10/20/2025

📅 20 October 2025 is International Mastocytosis & Mast Cell Diseases Awareness Day!
This year’s theme, “Be informed, be connected”, highlights the power of knowledge, connection and community. 💛

We’ve teamed up with Blueprint Medicines, Cogent Biosciences and RARE Revolution Magazine to share new fact sheets, patient survey results and doctor interviews to help you feel informed and supported.

We’re starting on Awareness Day and continuing over the coming weeks to keep awareness growing — with new resources and stories released along the way.

Join in:
💬 Share your story
🔁 Share our posts
🌍 Help raise awareness for mast cell diseases worldwide
Together, we can raise understanding and hope.

Mast cell rug in image produced by for TAMS.
Thanks to our sponsors and

10/19/2025

Help us achieve greater awareness while sharing your voice. Share your unique perspective on living with or caring for someone with a mast cell disease on Awareness Day: 20 October 2025. By adding your voice, you’ll help raise understanding, reduce isolation and strengthen the call for better support and research globally.

Share your story:
📹 Film a short video up to 60 seconds long (portrait mode) talking about your life with a mast cell disease.

📅 Post it on your social media and stories on Monday, 20 October.
Tips: Got more to say? Share several videos! Need help? Ask a friend to film.

🔖 Use the hashtag and tag the and your local mast cell disease support group.

Thanks to our sponsors and