https://linktr.ee/autumn.moore?utm_source=linktree_profile_share&ltsid=38edabb8-5105-4ff5-a27a-b5d9259b8aa0

Jenna's Journey

PPROM at 19wks
Born at 26w4d
141 days -NICU
63 days -PICU
Trach + mic-key button
FINALLY HOME

09/01/2025

Jenna still as a lot of work to do before she's walking properly, but she WANTS to do it!

08/30/2025

Jenna is amazing us every single day! 🙌 At 2 years and 4 months old, she is officially crawling, pulling herself up to stand, and even climbing into chairs. These are HUGE milestones that didn’t come easy. They’re the result of countless therapy sessions, endless practice, and her incredible determination.

Also, Jenna is finding more and more of her voice! She’s beginning to form sounds and connect them to their meanings. She can say the starting sounds for words like:
✨ Ba(th)
✨ Ba(ll)
✨ Bo(at)
✨ Bu(g)

She’s also saying mama, mawmaw, and just recently started saying dada, “done,” and “no.” She’s working hard on “p” words too - like pawpaw - and every new sound feels like music to our ears.

Don't get me wrong, though, Jenna can communicate with ease. She knows and uses 200-300 signs in ASL. She forms 3+ sign phrases, and if she really really wants something, she's quick to add in a dramatic "pleeeease" sign.

We are so proud of her strength, her progress, and her unshakable spirit. 💙

08/12/2025

You may not be able to remember the last time your 2 year old vomited, but I can't remember the last time Jenna had 2 days in a row without vomiting.

We're making PROGRESS! Baby steps, but we'll take it. 4 (FOUR!!!) entire day's (3 consecutive) without vomiting in the past week! Wednesday, Thursday, Friday of last week, and Monday of this week. Will today be the 5th day?!

Jenna is g tube fed and usually vomits 2-3 times per day. We're working with GI & dietary to find a solution, but its been over a year since she stopped gaining weight. If you've seen us lately, you've likely seen us with a vomit bag in hand, or in an easily accessible spot. 9/10 times we can read the signs, grab the bag, and fight against her to hold it and catch everything. Keeping in mind that she often pushes the bag away right as she needs it. When playing, Jenna will pick up one of the unused, but readily available, bags, hold it to her mouth, and pretend cough. She knows exactly what they're for.

We've been let down time and time again after multiple medications, labs, imaging, etc, BUT maybe we're finally getting somewhere?! We're thankful that her imaging and labs have all been normal, but at the same time, that's not helping us find answers. We're being referred to a motility specialist at the beginning of next year to do further testing and hear what they think.

She's weaned off of all GI medications, and is back on the feeding pump, but whatever it takes! Some of those medications she was on since before we ever left the hospital. We initially switched to a home blended diet in May, just shy of the 1 year mark of when her weight stalled. We were hopeful that it would make a difference, but due to the thickness of it, we switched to syringe feeds. There was no improvement, but also nothing got worse, so we went with it for a while. We're currently still blending all of Jenna's food at home, but making sure its thin enough for the pump. Over this past weekend, we tried introducing a new recipe, which had less ingredients, but she didn't tolerate it at all. So, we'll be sticking with our current variety of recipes, and using the pump. The downside is, Jenna is extremely active, so using the pump for hour feeds throughout the day makes things interesting. Especially when she starts spinning in circles or moving around.

So, we're hopeful that we have a solution for the vomiting, but I'm hesitate to say that. Now, for the weight gain... Ideally, if she's not vomiting half her feed back up, she'll gain weight, right? 🙏 We've stressed over this so much.We need prayers for weight gain and no more vomiting, and to be less stressed.

08/09/2025

I HIGHLY recommend these! These have made our home blended feeding journey so much easier. We use the 16oz bottles.

They're also dishwasher safe! That was a necessity when I was searching for what to use.

08/08/2025

This is what our days sound like now. 😭

In August of 2023, we were still in the NICU waiting on Jenna to grow a bit before getting her tracheostomy. We understood that we may never hear her cry, we may never hear her speak, etc. As I've mentioned many times, we've never prayed so hard, and never have we cried as much, then when we experienced Jenna's initial hospital stay.

07/31/2025

If you know what these cups are, how long did your child use them?

Yesterday, for the first time, Jenna drank her entire Honey Bear Cup of Pedialyte! Mind you, the ac in my car is messing up, and it was very HOT, but she kept asking for more. 🙌

If you're unfamiliar with Honey Bear Cups, they help teach your child to use a straw. Once they close their lips around the straw, you gently squeeze the bottle and the liquid goes in their mouth.

07/25/2025

Heads up, Aerocare. Yesterday, Jenna decided she was going to join the team and help manage her own vent.

She comes with 2 years and 3 months experience and has used a variety of at least 3 different ventilators. She specializes in disconnecting the circuit in the dark, in the middle of the night. She also has both inpatient and outpatient experience.

Give her a spot in the office, and she'll offer encouraging smiles and fist bumps to everyone no less than EVERY. FIVE. MINUTES. She loves seeing y'all anyway. 🤣💕

07/11/2025

You're accomplishing SO MUCH!

07/09/2025

We don’t take the leads off before leaving the hospital anymore…

Yesterday, Jenna had to make a trip to the ER for ventilator issues. I snapped this photo once we made it back to the car.

Back in 2023, during her first PICU readmission, we tried to take the leads off before leaving—and she got so upset every time that we ended up reattaching them more than once. After about 30 minutes, we gave up and went home with the stickers still on… and she was perfectly content. Ever since, it’s just become our little tradition. Coincidence? Maybe. But we’re sticking with it. ❤️

07/03/2025

I hope she learns that she's all of these things and so much more.

05/27/2025

May 26th..... What a difference 😭

2 years ago
1 year ago
TODAY

05/12/2025

2 years ago, on Mother's Day, I was crying just thinking about the fact that I might not have the chance to hold Jenna. At this point, it had been nearly a month since she was born, but she was still 2 months away from being 40 weeks gestation. If she was overly tired or fatigued, I wouldn't get to hold her. If she started dessatting, they would have to put her back. If 2 people (1 nurse + an RT) weren't available to hand her to me, I'd have to wait. At that time, we were only holding her every other day, at most.

So much has happened since the first 2 photos. 😭💕 Although it's been more stressful than we ever anticipated, I love being your mama!

What keeps us busy lately (for my memories):
Physical therapy
Occupational therapy
Feeding therapy
Speech therapy
Ventless naps (off and on)
Smos & shoes
Glasses
Capping all waking hours
Communicating over 100 signs (ASL)
Babbling all day
Blending your meals
Getting into the crawling position
Standing with assistance
Butt-scooting forward (😬 PT will read this 😅)
Pulling up into tall kneeling
Tolerating messy play
Not needing O2

Address

Summerville, GA

Website

https://linktr.ee/autumn.moore?utm_source=linktree_profile_share<sid=38edabb8-5105-4ff5-a27a-b5d9259b8aa0

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