Jax Strong

Jax Strong Disconnected Pancreatic Duct Syndrome DPDS circumferential disruption continuity of pancreatic duct.

It has been a long year but thankfully with only two hospital trips outside of Ohio our boy has made it to his appointme...
06/18/2024

It has been a long year but thankfully with only two hospital trips outside of Ohio our boy has made it to his appointments 💕💕💕💕💕💕 he is doing great and passing with flying colors! They are now taking him off of his penicillin even if it’s one med thankfully we are down that! He will continue to take creon and dekus probably all his life! Let’s see if we can come off insulin too 💕💕💕💕💕💕 mix meal test this morning to check on islets and then our journey of 10 hours home!!!!! Thank you to everyone that follows our little dude, that prays with us, that have helped in all ways, that have called messaged, dropped by! We love you all ❤️❤️❤️❤️❤️❤️

Superhuman update: All appointments went well. Healing perfectly, no other pains or issues. We have to work on getting h...
02/13/2024

Superhuman update:

All appointments went well. Healing perfectly, no other pains or issues. We have to work on getting his sugars where they should be this is tricky with him, he is high energy and tends to drop at dosing. We changed his numbers again and just have to keep on keeping on and get these numbers right. It was an amazing visit. Met a few new Tpiat friends today at appointments saw one our first friends. All in all little dude is doing amazing 😌😌😌😌🤟🤟🤟🤟🤟🤟 we finally arrived home just a little bit ago.

Finally touched down in Ohio! Waiting on the family to log on and play before settling to bed ❤️ check ups tomorrow
02/12/2024

Finally touched down in Ohio! Waiting on the family to log on and play before settling to bed ❤️ check ups tomorrow

02/11/2024

Today is the day!!!
Packed the last bit this morning. We head back to Ohio to check on our superhuman islets 😌😌😌😌😌😌 we check on his diabetes, his scars, and his medication, all new pa’s need to be written! We have a long drive ahead of us today and doctors appointments tomorrow and turning around to come home. It may take a little time for the update but i will post as soon as i can ❤️❤️❤️❤️🤟🤟🤟🤟 we love you all thank you for the continued prayers and outreach on our superhumans behalf.

Today we are glad to say our SUPERHUMAN has made it to his 9th BIRTHDAY!!!!!!! Our superhuman they told us wouldn’t make...
01/13/2024

Today we are glad to say our SUPERHUMAN has made it to his 9th BIRTHDAY!!!!!!! Our superhuman they told us wouldn’t make it to his 9th birthday has made it! God had bigger plans for him! We thank every one of you that have traveled this road with us this year! In 5 days will be the one year anniversary since our world came crashing down! Here we are today with a healthy, happy, gaming 9 year old!!!!

Since our last hospital visit our little superhuman has been as normal (our new normal) as physically possible. We want ...
01/04/2024

Since our last hospital visit our little superhuman has been as normal (our new normal) as physically possible. We want to wish everyone a happy new year and hope this year is a great one! JAXS 9th birthday is coming up. Anyone who would like to send cards to help us celebrate the birthday they said he wouldn’t have, our address 10 Jed court Sumter sc 29150 ❤️❤️❤️❤️❤️❤️

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Sumter, SC

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