06/08/2022
Today is the last day of “A Slice of Pie Birthday Campaign” Remembering Charlie Poole: Benefitting the CHOICES Pediatric Palliative Care Program and the Pediatric Sickle Cell Program at Upstate through The Kara Fund.
Please join us by sharing a “slice of pie” with Charlie by purchasing an item starting at $3.99 for local seriously ill children and their families in need to promote comfort and joy and to offset expenses for children and their loved ones affected by serious illness.
Cheers Charlie Poole: Support Upstate CHOICES & Sickle Cell - Amazon Custom Gift List
https://www.amazon.com/registries/custom/19QNYKT2BZN6M/guest-view
It’s as simple as choosing the items you’d like to purchase off of the Amazon wish list, developed entirely from family feedback, by:
• Adding to your cart
• Clicking ‘Buy Now’
All items will be shipped directly to Upstate Golisano Children’s’ Hospital for the families to receive.
— About The Kara Fund —
To ease the stress and chaos associated with unimaginable situations, The Kara Fund provides seriously ill children and their families with goods and services in the hope that these items offer some measure of comfort in their time of distress. They are there for our families in the hospital, specialty clinics, the Crouse NICU, traveling to distant medical centers for specialty care and even home hospice.
A little background on how The Kara Fund supports our families:
- The Pillar Project provides supportive books and resources for children and their loved ones affected by complex and life-threatening conditions, including sickle cell disease, to support medical coping, communication, and bereaved families.
- They offer gift cards for food, travel, and other needs to families in the hospital and the outpatient settings so they can focus on what is important.
- The Family Care Program is there to support the individual needs of each family, including financial support to meet basic needs as well as offering special opportunities to kids that they may not have otherwise. Every Family Care Package is tailored to the child and family's needs as well as interests and hopes. When a condition is not able to be cured, this program supports kids' last wishes and helps to make memories of a lifetime.
- The Kara Fund provides a specialized comfort kit for each child with Sickle Cell Disease with items that help kids meet their medical needs and feel comfortable when they aren’t feeling well. This includes a specialized Kara Fund tote bag, reusable heating pads, digital thermometers, medical coping books from The Pillar Project, medicine organizers, tools to help with breathing, cozy blankets, and gift cards to be sure that kids have what they need to stay healthy and to cope well.
- They supported the development of a patient-designed Thriving Together t-shirt for Pediatric Sickle Cell patients to allow them to showcase their strength, creativity and resilience. The Kara Fund graciously purchased a shirt for every child who receives care from our program as well as for the staff.
- Members of The Kara Fund have also been friendly faces who show up and participate in our fun activities like our first Thriving Together Pediatric Sickle Cell Supportive event in 2019, where they helped to organize the event, serve an awesome dinner, and have fun with face painting, a photo booth, and karaoke with our kids and families. They even participated in the 2021 Talented & Thriving video that allowed the kids to show off their talents!
- They fund The Always Love Photography Program through Jennifer Phillips Root and Wander Photography business gives families the chance to capture special memories at no cost with incredible photographer Jennifer Phillips.
- They provide comfortable bedding for caregivers when they stay at their child's bedside for extended hospital admissions.
- They offer Smallprints Memory Treasure hand and foot print jewelry to families with a baby in the NICU with life-threatening conditions.
- The Kara Fund offers heartbeat recordings of their baby or child with life-limiting illness so that families can have this as a beautiful keepsake to remember their child.
- When children come in for a hospital admission or clinic visit, they get to pick a special toy or prize of their choice, which gives them something to look forward to and take home.
We cannot say enough about the compassion that the Kara Fund Shows every day to our kids and families and how they consider each individual patient and their loved ones to promote comfort during some of the most difficult times, as well as during routine visits. Without the support of The Kara Fund and their supporters, our CHOICES Pediatric Palliative Care Program and Pediatric Sickle Cell Program would not be able to bring such comfort, meaning, and joy to families affected by life-altering and life-limiting conditions.
Thank you for remembering and honoring Charlie by supporting the Kara Fund and the work they do every day to support our families.
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