Rettland Foundation

11/23/2024

Our hearts have been heavy as we sit with the news that a precious child has passed while bravely participating in research for Rett Syndrome. We have always sought to support the families making the research happen and this is no time to stop. For those of you interested in supporting the family, we hope to a bridge in this difficult time.

A letter from Colleen, our founder I sit writing this at a time that our community is broken hearted. One of the heros enrolled in a clinical trial for Rett Syndrome has passed away. This of course brought me back to the day that our Claire passed in 2021. While that day had been the most …

12/07/2021

Our profound gratitude to all of the families that have made immeasurable sacrifices to make this exciting news possible.

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10/20/2021

Hello! It’s been a while. We’ve been busy working with our families traveling with research and finally have a little extra time for some fun! You may or may not know that Claire, the force that drove this organization passed away earlier this year. To honor her spirit to help families in Rettland, we are organizing an ongoing acts of kindness campaign and we need your help. Do you know of a family living with Rett Syndrome that could use a virtual high five or a little extra love? Send us an email at cga@rettland.org and we will try to help. A cup of coffee or a dinner can go a long way when you are tired in rettland and we hope to bring a little light through this effort, thank you for joining us!

09/29/2021

Exciting news for our Canadian friends!

Anavex Life Sciences has just announced they are recruiting patients for their study of ANAVEX2-73 in Rett syndrome patients at British Columbia Children’s Hospital in Vancouver. The study is the first ever clinical trial for Rett syndrome in the Canada!

For more information or to get added to the email contact list, please visit our website.

https://www.rett.ca/anavex

04/26/2020

Hello again! We’ve been busy supporting many families as they come and go from study sites across the country and haven’t gotten to social media for a bit.

While some studies have paused enrollment, others have not. In fact, multiple studies are rolling into open label extensions. There’s a lot still happening - which is why we need your help. At this time, we’ve had to pause sending out care packages, but now more than ever, we want to be putting good into the world.

We still want to send some extra love to those bravely participating in research for Rett syndrome So we are asking for your help. While we are all adjusting to spending time at home, we’d be honored if you would take a few minutes to write a note of encouragement or appreciation that we could pass on to these research heroes. Colored pictures work too! Please no personal information such as phone numbers or last names. Mail to Rettland Foundation PO Box 1282 Temecula, CA 92593

THANK YOU FOR YOUR SUPPORT!

12/10/2019

We are thrilled to be on the panel for this informative webinar. Please join us for this opportunity to learn about the current clinical trials for Rett syndrome.

Are you considering enrolling your child in a clinical trial for Rett syndrome? Do you have questions about what trials are enrolling, enrollment criteria, and how your family can be research-ready? Join our upcoming RettEd Webinar with Dr. Timothy Benke, Director, Rett syndrome Clinic, Children's Hospital Colorado, and Rettsyndrome.org Medical Advisor.
Tuesday, December 10, 1PM EST.

Register today! https://register.gotowebinar.com/register/395780604950883853

10/30/2019

10/30/2019

09/16/2019

Our deepest thanks to the six families that participated in the pharmacokinetic portion of this study and the fabulous research team at UAB. What wonderful outcomes and we are looking forward to seeing this trial move forward.

Anavex Life Sciences Announces Preliminary Clinical Efficacy Data of its U.S. Phase 2 Clinical Trial of ANAVEX®2-73 in Patients with Rett Syndrome Both global efficacy endpoints, RSBQ and CGI-I, showed significant improvement with respect to baseline after 7 weeks of treatment with ANAVEX®2-73 (bl...

07/10/2019

One of the great projects we proudly support 💜💜💜

06/20/2019

06/18/2019

We can't emphasize enough how much we appreciate Girl Power 2 Cure and how they've come along side us the last few months. Here's a few fun facts they put together, we're been busy, but there is so much more to do and we can't do it without your support, THANK YOU!

For the past few months Girl Power 2 Cure has come along side Rettland Foundation to help fulfill their mission of getting our Heroes to Trials. Their worthy and very necessary cause is not just for the one, but for the many! Clinical trials bring us that much closer to a cure!

For more information on Rettland Foundation and upcoming clinical trials please visit rettland.org today!