JJ's Journey

04/29/2026

04/21/2026

JJ is sick again. Having increased seizures and fever along with throwing up. He’s been crying more too. 🥺🤒😢💙

04/16/2026

Today has been quite a day as JJ originally just had a doctors appointment with his P*P, and the appointment itself went well! (He had quite a few seizures today as well. )Then it quickly turned into us having to go to the hospital to get his GJ feeding tube replaced because the balloon in it which keeps it in place malfunctioned and it came out and it’s not just a simple fix that I can do on my own. It has to be done with x-ray through radiology. The actual procedure doesn’t take too long in itself, but we were not a scheduled appointment so we had to wait several hours to be fit in to their schedule.. finally got home and we are all worn out.

04/15/2026

JJ has been smiling a lot lately! It makes me soo happy! 😊 🥹💙😘

04/14/2026

JJ was crying, so I am giving him some extra snuggles! He’s asleep already! 😢🥺💙🥹😴

04/13/2026

JJ has been feeling better! He’s a happy boy again! 😊💙

04/08/2026

Please say a prayer for JJ . He’s been not feeling well today and crying some. I wish I knew what exactly was hurting …. All I can do is guess and hope I’m correct. And try to make him feel better..It breaks my heart. 💔 🤕🥺😭🙏🏼💙🤒

04/01/2026

Some people think that we didn’t sign up for this. For being special needs parents, but indeed we did.

You see, we did sign up for this.

Whether we realize it or not, every single mother is one child away from being a special needs mom.

Sure, we think we’re signing up for ball games, child training, school, events etc… I did sign up for this.

I signed up for everything that comes along with being a mom.

I may not have been prepared for THIS, but honey, I signed up for it when I signed up to be a mom.

And I’ll take every syringe, every appointment, every hospital stay, every long night, every bit of paperwork and arguments with insurance and IEP’s and whatever else comes my way.

Because I signed up for this.

And although I’d change it all for HIM if I could,

I’m good.

03/22/2026

My sweet baby boy 💙🥰😘🥹

03/16/2026

This helps loosen up the secretions and congestion in his lungs so he can get it out better and stay clear.