Elaina Hedtke’s NICU Journey

Elaina Hedtke’s NICU Journey Follow our NICU journey with our micro-premie, Elaina.

We share updates, celebrate milestones, and cherish and love your support ❤️

Ways to Support Elaina ⬇️

https://gofund.me/7047d14da

GUESS WHHAAATTT?! Elaina is OFFICIALLY off the IV drips! No more morphine or precedex! They also removed her PICC line t...
02/15/2026

GUESS WHHAAATTT?! Elaina is OFFICIALLY off the IV drips! No more morphine or precedex! They also removed her PICC line today 🙌🏻 🎉

This is MAJOR y’all. I’m so proud of my baby. They did increase her clonidine to help with withdrawal symptoms and she may or may not still need a few boluses of the medicine here or there until her body stabilizes off the drugs completely.

We are ONE. STEP. CLOSER. to being in the ITU 😮‍💨😭

02/13/2026

I love the fact that Rej tickles and plays and interacts with Elaina. She loves her. And Elaina obviously loves her too 💕

When Aunt Peach says “your momma said we have to get you up and moving. You can’t lay in bed all day” 😳 lol Daddy and Au...
02/09/2026

When Aunt Peach says “your momma said we have to get you up and moving. You can’t lay in bed all day” 😳 lol

Daddy and Aunt Peach loved on Elaina this past weekend. Dad is officially ahead of me in trach and gtube care and LOVES to brag about it 🙄🤣

Elaina is ALMOST weaned off ALL her pain and sedative medications. Her doctors said the hope is have her completely off the drips by this weekend and then her PICC line can come out 🤞🏻

As long as she can go 24 hours without a withdrawal flare up, her name will officially be put on the ITU unit list!

Y’all! Look at this custom romper specially designed for Elaina and babies alike with wires and tubes. Making dressing h...
02/09/2026

Y’all! Look at this custom romper specially designed for Elaina and babies alike with wires and tubes. Making dressing her up SO much easier and stress free!

Functional & Fashionable!!

Velcro design, with super soft material, this romper is the BEST!!!
HUGE THANK YOU TO THE DESIGNER AND MAKER

She offers a variety of different types of adaptive clothing ALL handmade. Y’all go give her a follow!

Happy (almost) Friday from our little warrior 💕Her daddy captured this smile today and I swear nothing, not long days, h...
02/06/2026

Happy (almost) Friday from our little warrior 💕
Her daddy captured this smile today and I swear nothing, not long days, hard moments, or hospital walls, can bring that joy down. She keeps showing us what strength and pure happiness look like, and I’m just so proud to be her mama. ✨

02/03/2026
Grief is hitting me hard today. Elaina turns 9 months old in 3 days. 9 months old. This was her big sister, Emersen, at ...
02/02/2026

Grief is hitting me hard today. Elaina turns 9 months old in 3 days. 9 months old. This was her big sister, Emersen, at 9 months. Crawling. Scooting on the ground. Pulling herself up onto furniture. Sitting without support. Babbling mama and dada. Trying new foods and drinks. Breaking in teeth.

Most babies spend their first 9 months learning how to move through the world.

And Elaina… spent hers learning how to breathe, recover, endure procedures, tolerate pain, survive sedation, and come back from things that would break most bodies. I wonder what’s to come for her.

I know that development is not a straight line, especially after medical trauma. As the doctors have said over and over again “Many babies like Elaina don’t show progress the way textbooks describe. They pause, then surge. Skills stack quietly under the surface while the body stabilizes. What looks like “laying there” right now is actually a nervous system finally getting a chance to rest.”

And when she’s ready, not on the calendar’s timeline, but on hers, movement will come. Different order. Different pace. Still real. Still hers. Right?

I got to do some of Elaina’s cares today! For the first time in 270 days I felt like her mother. Not her power of attorn...
01/29/2026

I got to do some of Elaina’s cares today! For the first time in 270 days I felt like her mother. Not her power of attorney.

Her primary nurse, Rej, taught me how to clean and care for all her G-tube and tracheotomy equipment. Which was easier than I thought! Both are cared for with sterilized water, soap, sterile q-tips, and gauze. I also learned how to lock and unlock her button and vent it! I also watched Rej do trach care (changing out the trach ties and gauze and replacing them)
That was very different watching on a moving baby than a paralyzed one. Kind of intimidating tbh. Those trach ties are SO tight around her neck. Supposed to only be able to fit a finger in between them and her neck. 😮‍💨

As far as temperament, Elaina is super sleepy today and irritable. Doesn’t want to be touched. They did decrease her morphine drip today and she’s also coming off of the paralytic. So far, she has episodes of jitters (shakes) and sweating a lot. She’s tolerating her feeds well though!

Elaina is awake and stable! Thank you to everyone for your thoughts, prayers, texts, and calls. Her next steps are to be...
01/28/2026

Elaina is awake and stable! Thank you to everyone for your thoughts, prayers, texts, and calls. Her next steps are to begin weaning off all her pain/sedation medication IV drips. Doctors estimate that to take about 30 days IF she doesn’t have any violent withdrawal symptoms. Once off all those medications, she will be cleared to move to the ITU (intensive toddler unit). There, she will have her own room AND family can finally come see her and partake in her cares. This is also where Dad and I will become certified in her care. The only setback that can happen to her now is if she gets sick again. Y’all please pray these next 30 days fly by and are a breeze. ❤️

On the road to see our sweet Elaina wake up. 🤍Being close to her during these next couple of days means everything to us...
01/28/2026

On the road to see our sweet Elaina wake up. 🤍
Being close to her during these next couple of days means everything to us. If anyone feels led to help us cover a hotel room so we can stay nearby and be with her, we would be endlessly grateful. Every share, prayer, and donation means more than we can put into words.

CashApp- $RaeYarbro96

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Texarkana, Texas
Texarkana, TX
75501

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