Rare Patient Voice

Rare Patient Voice Wes Michael, President and Founder
We connect patients and caregivers with research opportunities.
(303)

Rare Patient Voice helps patients and caregivers in the US, Australia, Canada, France, Germany, Italy, New Zealand, Spain, and the UK voice their opinions through paid, confidential surveys and interviews to improve medical products and services.

Diagnosed with Crohn's Disease?We want to hear from you! The interview occurs first, and then if selected, you will be e...
12/14/2025

Diagnosed with Crohn's Disease?
We want to hear from you!

The interview occurs first, and then if selected, you will be eligible for upcoming events, which would include options such as video shoots, photo shoots, and speaking engagements that could involve travel.

If you're interested in sharing your insights, click below to join:
https://www.rarepatientvoice.com/rp/Platinum

Already a member? DM us your email along with the study you're interested in, and we'll check your profile for you.
Let's work together to make a difference!

Have you or someone you care for undergone a Bone Marrow or Stem Cell Transplant? Sign up today to share your experience...
12/14/2025

Have you or someone you care for undergone a Bone Marrow or Stem Cell Transplant?

Sign up today to share your experience and make a difference: https://www.rarepatientvoice.com/rp/Platinum

Already a member? DM us your email along with the study you're interested in, and we'll check your profile for you. Let's work together to make a difference!

Living with EOE? We want to hear your story!The interview takes place first, and if selected, you will be eligible for u...
12/14/2025

Living with EOE? We want to hear your story!
The interview takes place first, and if selected, you will be eligible for upcoming events, which may include opportunities such as video shoots, photo shoots, and speaking engagements that could involve travel.

πŸ‘‰ Sign up today to share your experience and make an impact: https://www.rarepatientvoice.com/rp/Platinum

Study Opportunity: Your Heart Event Was Unexpected, and Your Story Matters.We’re looking for individuals who were otherw...
12/13/2025

Study Opportunity: Your Heart Event Was Unexpected, and Your Story Matters.

We’re looking for individuals who were otherwise healthy before experiencing a heart attack or stroke. If you’re a woman under 65 or a man under 55 who faced an unexpected heart event, we want to hear from you.

The interview takes place first, and if selected, you will be eligible for upcoming events, which may include opportunities such as video shoots, photo shoots, and speaking engagements that could involve travel.

If you're interested in sharing your insights, click below to join: https://www.rarepatientvoice.com/rp/platinum

Already a member? DM us your email along with the study you're interested in, and we'll check your profile for you.

πŸ’¨ Living with COPD? We want to hear from you!The interview takes place first, and if selected, you will be eligible for ...
12/13/2025

πŸ’¨ Living with COPD? We want to hear from you!
The interview takes place first, and if selected, you will be eligible for upcoming events, which may include opportunities such as video shoots, photo shoots, and speaking engagements that could involve travel.

πŸ‘‰ Sign up today to share your experience and make an impact: https://www.rarepatientvoice.com/rp/Platinum

Already a member? DM us your email along with the study you're interested in, and we'll check your profile for you.
Let's work together to make a difference!

If You’ve Been Diagnosed with HER2-Low, We Want to Hear from You.The interview takes place first, and if selected, you w...
12/13/2025

If You’ve Been Diagnosed with HER2-Low, We Want to Hear from You.

The interview takes place first, and if selected, you will be eligible for upcoming events, which may include opportunities such as video shoots, photo shoots, and speaking engagements that could involve travel.

If you're interested in sharing your insights, click below to join:
https://www.rarepatientvoice.com/rp/platinum

Already a member? DM us your email along with the study you're interested in, and we'll check your profile for you.
Let's work together to make a difference!

πŸ“£ Your Voice is Needed: Join Our Open Studies!πŸ“£We are always looking for patients and family caregivers across a wide ra...
12/12/2025

πŸ“£ Your Voice is Needed: Join Our Open Studies!πŸ“£

We are always looking for patients and family caregivers across a wide range of conditions to share their experiences and help advance medical research.

Click the link below to sign up into our panel and get matched to one of our open studies!
➑️ https://www.rarepatientvoice.com/rp/PinPost

Your unique story helps researchers better understand your condition/disease and develop new treatments.

Living with Her2 Positive? The interview takes place first, and if selected, you will be eligible for upcoming events, w...
12/12/2025

Living with Her2 Positive?

The interview takes place first, and if selected, you will be eligible for upcoming events, which may include opportunities such as video shoots, photo shoots, and speaking engagements that could involve travel.

πŸ‘‰ Sign up today to share your experience and make a difference: https://www.rarepatientvoice.com/rp/Platinum

Already a member? DM us your email along with the study you're interested in, and we'll check your profile for you.

πŸ” Study Opportunity: Multiple Myeloma (MM) πŸ”The interview takes place first, and if selected, you will be eligible for u...
12/12/2025

πŸ” Study Opportunity: Multiple Myeloma (MM) πŸ”

The interview takes place first, and if selected, you will be eligible for upcoming events, which may include opportunities such as video shoots, photo shoots, and speaking engagements that could involve travel.

If you're interested in sharing your insights, click below to join:
https://www.rarepatientvoice.com/rp/platinum

Already a member? DM us your email along with the study you're interested in, and we'll check your profile for you.
Let's work together to make a difference! 🌟

Have you or a loved one been diagnosed with Phenylketonuria?We are seeking patients and caregivers who would like to pot...
12/11/2025

Have you or a loved one been diagnosed with Phenylketonuria?

We are seeking patients and caregivers who would like to potentially participate in a 30 minute web-assisted phone interview!

If you're interested in sharing your insights, click below to join:
https://www.rarepatientvoice.com/rp/platinum

Already a member? DM us your email along with the study you're interested in, and we'll check your profile for you.

Let's work together to make a difference!

πŸ” Study Opportunity: Atopic Dermatitis- Eczema πŸ”The interview occurs first, and then if selected, you will be eligible f...
12/11/2025

πŸ” Study Opportunity: Atopic Dermatitis- Eczema πŸ”

The interview occurs first, and then if selected, you will be eligible for upcoming events, which would include options such as video shoots, photo shoots, and speaking engagements that could involve travel.

If you're interested in sharing your insights, click below to join:
https://www.rarepatientvoice.com/rp/Platinum

Already a member? DM us your email along with the study you're interested in, and we'll check your profile for you.
Let's work together to make a difference! 🌟

πŸ” Study Opportunity: We are seeking patients between the ages of 40-60 who have been diagnosed with Sjogren's Syndrome πŸ”...
12/10/2025

πŸ” Study Opportunity: We are seeking patients between the ages of 40-60 who have been diagnosed with Sjogren's Syndrome πŸ”

The interview occurs first, and then if selected, you will be eligible for upcoming events, which would include options such as video shoots, photo shoots, and speaking engagements that could involve travel.

If you're interested in sharing your insights, click below to join:
https://www.rarepatientvoice.com/rp/Platinum

Already a member? DM us your email along with the study you're interested in, and we'll check your profile for you.
Let's work together to make a difference!

Address

711 Hampton Lane
Towson, MD

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

Telephone

+14439861949

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Voice your opinion, improve medical products and services, and earn cash rewards

For patients and caregivers: we provide the opportunity to share opinions in surveys and interviews and earn cash rewards For patient advocacy groups: we partner to raise money for advocacy groups For market research firms: we help find hard-to-recruit patients and their caregivers in the US and Canada