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Monday 9am - 5pm Tuesday 9am - 5pm Wednesday 9am - 5pm Thursday 9am - 5pm Friday 9am - 12pm

Rare Patient Voice

Home
United States
Towson, MD
Rare Patient Voice

Wes Michael, President and Founder
We connect patients and caregivers with research opportunities.
(310)

Rare Patient Voice helps patients and caregivers in the US, Australia, Canada, France, Germany, Italy, New Zealand, Spain, and the UK voice their opinions through paid, confidential surveys and interviews to improve medical products and services.

08/05/2025

🔍 Study Opportunity: Non -Small Cell Lung Cancer (NSCLC) 🔍

The interview occurs first and then if selected they will be eligible for upcoming events which would include options such as video shoots, photo shoots and speaking engagements that could include travel.

If you're interested in sharing your insights, click below to join:
https://www.rarepatientvoice.com/rp/11642NSCLC

Already a member? DM us your email along with the study you're interested in, and we'll check your profile for you.
Let's work together to make a difference! 🌟

08/05/2025

“Maitri is a new way to ask for help! We bring the power of community to cancer journeys and help people show up for each other in times of need.” 💛

Ophir, we are so thankful for our partnership. We look forward to seeing our communities come together, support one another, and build meaningful connections. We cannot wait to connect in person at CancerCon!

08/05/2025

𝑺𝙝𝒂𝙧𝒆 𝒀𝙤𝒖𝙧 𝙀𝒙𝙥𝒆𝙧𝒊𝙚𝒏𝙘𝒆 𝒘𝙞𝒕𝙝 𝘼𝒄𝙧𝒐𝙢𝒆𝙜𝒂𝙡𝒚 – 𝑮𝙚𝒕 𝑷𝙖𝒊𝙙 𝙛𝒐𝙧 𝙔𝒐𝙪𝒓 𝑻𝙞𝒎𝙚!

We are looking for patients diagnosed with Acromegaly to participate in a paid research opportunity.

📌 What’s Involved
15‑minute pre-read ($30)
90‑minute Web Assisted Telephone Interview ($180)

💵 Total Compensation: $210

Your experience can help improve the understanding and treatment of Acromegaly, and you’ll be compensated for your time.

📲 Sign up now: https://www.rarepatientvoice.com/rp/Acro11467

𝐀𝐥𝐫𝐞𝐚𝐝𝐲 𝐩𝐚𝐫𝐭 𝐨𝐟 𝐭𝐡𝐞 𝐑𝐏𝐕 𝐜𝐨𝐦𝐦𝐮𝐧𝐢𝐭𝐲?
📩 DM us your email and the name of the study and we will check your profile and get back to you!

08/05/2025

Are you the caregiver of a child under 18 with Achondroplasia, or are you 16–18 and receiving medical care in the U.S.?

You can get free access to a secure medical record collection service and earn up to $90 a year by completing short surveys about your health or your child’s health. It only takes 5 minutes!

Already a member? 📩 DM us your email.
Want to join? Sign up here: https://www.rarepatientvoice.com/rp/Achondroplasia8350

08/01/2025

Share Your Experience with Chronic Spontaneous Urticaria (CSU)

If you are an adult living with CSU age 18 or older or a caregiver of someone age 12 or older, you may qualify for a 60-minute web-assisted phone interview.

You will receive $120 for your time. Participants may also be considered for future opportunities including photo or video shoots and speaking engagements that could involve travel.

🔗 Sign up: https://www.rarepatientvoice.com/rp/Urticaria11546

08/01/2025

Let’s Shine a Light on Awareness This August! ☀️

⬇️ Know a cause we haven’t highlighted? Let us know in the comments! ⬇️

Together, we can raise awareness and inspire change. 💛

07/31/2025

🔍 Study Opportunity: Prostate Cancer 🔍

We're looking for patients under the age of 80 diagnosed with prostate cancer willing to share their story.

The interview occurs first and then if selected they will be eligible for upcoming events which would include options such as video shoots, photo shoots and speaking engagements that could include travel.

If you're interested in sharing your insights, click below to join:
https://www.rarepatientvoice.com/rp/Menopause11126

Already a member? DM us your email along with the study you're interested in, and we'll check your profile for you.
Let's work together to make a difference! 🌟

07/31/2025

It’s here! 🎉
Our newest newsletter is packed with studie opportunities, our Partner Corner featuring Friends of the PBC Foundation, our staffer spotlight, and so much more.

Click the link and take a look:
https://rarepatientvoice.com/newsletter74/

07/31/2025

🎉 Attending the 7th International Society for Mannosidosis and Related Diseases Family and Scientific Conference?
Connect with Jennifer Messier from Rare Patient Voice.

📍 Location: Graduate Minneapolis, 615 Washington Ave SE, Minneapolis, MN
⏰ Dates: August 7–9, 2025

💬 Visit our booth to learn how your voice can help advance research and care for Glycoprotein Storage Diseases. Discover opportunities to participate in paid research studies and make a real impact in the rare disease community.

07/30/2025

🔍 Study Opportunity: Menopause 🔍

The interview occurs first and then if selected they will be eligible for upcoming events which would include options such as video shoots, photo shoots and speaking engagements that could include travel.

If you're interested in sharing your insights, click below to join:
https://www.rarepatientvoice.com/rp/Menopause11126

Already a member? DM us your email along with the study you're interested in, and we'll check your profile for you.
Let's work together to make a difference! 🌟

07/30/2025

🧠 New Study for Advanced Parkinson’s Disease Patients!

Are you living with Advanced Parkinson’s?
You may qualify to participate in a 60-minute web-assisted telephone interview and earn $120 for your time.

🧾 Who: Patients diagnosed with Advanced Parkinson’s
📞 What: 1-hour telephone interview (web-assisted)
💵 Reward: $120 compensation
🌐 Sign up: https://www.rarepatientvoice.com/rp/Parkinsons11489

07/29/2025

New Study Opportunity: Alzheimer's Disease

Do you have a family history of history of Alzheimer’s but haven’t been diagnosed? Participate in an in-person interview.

If you're interested, click below ⬇️ to join!
https://www.rarepatientvoice.com/rp/HDA11552

Already a member?📩 DM us your email along with the study you're interested in, and we'll check your profile for you.
Let's make a difference together!

Address

711 Hampton Lane
Towson, MD

Opening Hours

Monday	9am - 5pm
Tuesday	9am - 5pm
Wednesday	9am - 5pm
Thursday	9am - 5pm
Friday	9am - 12pm

Telephone

+14439861949

Website

https://www.rarepatientvoice.com/

Alerts

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Voice your opinion, improve medical products and services, and earn cash rewards

For patients and caregivers: we provide the opportunity to share opinions in surveys and interviews and earn cash rewards For patient advocacy groups: we partner to raise money for advocacy groups For market research firms: we help find hard-to-recruit patients and their caregivers in the US and Canada

08/05/2025

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07/30/2025

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07/29/2025

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Voice your opinion, improve medical products and services, and earn cash rewards