Laura's Chiari Journey of Healing

Laura's Chiari Journey of Healing This page is to help keep family and friends updated on Laura’s journey of healing!

Two years ago today, Laura had her 2nd brain 🧠 surgery! Chiari is a chronic illness but the GOODNESS of GOD has blown us...
02/16/2024

Two years ago today, Laura had her 2nd brain 🧠 surgery! Chiari is a chronic illness but the GOODNESS of GOD has blown us away! She is incredibly brave and has taught me so much during the past 3 year battle! 🧠🩷🧠


03/02/2022

Guess what!?!
She made it through half a day of school!
2 weeks ago today she had her brain 🧠 open!
God is sooo good!

We have been 🏡 HOME 🏡 for a week now…healing  slow and steady!•Laura has been doing well but still having trouble sittin...
02/28/2022

We have been 🏡 HOME 🏡 for a week now…healing slow and steady!

•Laura has been doing well but still having trouble sitting up for any amount of time without her head throbbing. She is almost off of her pain meds and this is truly amazing!!! It hurts really bad when she sits up but laying down it doesn’t hurt at all. We called Dr Swift about this and he basically said let her lie. 😊 He believes that since there was so much swelling and her brain wasn’t used to much flow of her CSF fluid, it’s basically in shock and the swelling is just going tot wow awhile. So we are taking his advice and being still.

•She has left the house twice, one time to pick up Benny from the groomer and today we tried Target but after walking into the store and back to the dairy aisle she was done and couldn’t do anymore. 🎯 She was hoping to try school for part of the day tomorrow BUT after that mini trip she is scared she isn’t strong enough to walk to classes etc yet. Would love prayers for strength.

•Her sweet little voice is now very different and she is struggling with certain sounds and speaking so people can understand her. It takes so much effort and quickly wears her out or frustrates her. Eating and drinking 🥤 is getting better but choking is so easy right now so she has to eat slowly and drink, she says weirdly, or it comes out her 👃🏼 nose.

•We are going to try to sign into school tomorrow virtually and get a run on her 19+ assignments she has to do. Only missed 5 school days and 2 virtual (snow) days, she is slightly worried about catching up. She is also worried about her voice with her teachers and friends!

Sooo long story short…we are so grateful for everyone’s prayers, messages, treats, surprise baskets and support! Please keep praying for my precious Laura amd for her full healing! I have decided she is my hero!!! I don’t think I have heard her complain or whine one time, truly a

With a few new scars and on the path to healing, we are HEADING HOME! I am totally in awe of how strong and what a deter...
02/19/2022

With a few new scars and on the path to healing, we are HEADING HOME! I am totally in awe of how strong and what a determined fighter this girl is!

Thank you to everyone who has prayed and supported us on this journey!

We are blown away by God’s faithfulness and how real He is to our girl. She has not feared and has totally peace every step of the way! ❤️

We had a HUGE turnaround day today! So so blown away by God and the strength that He has given Laura! Yesterday was real...
02/19/2022

We had a HUGE turnaround day today! So so blown away by God and the strength that He has given Laura!

Yesterday was really rotten and they had even talked about taking her back into surgery at one point… BUT GOD!!!!

Today she woke up with little nausea and decided to try to drink again. It was just tickling her nose but no longer pouring out of it! Praise God! The 24 hours before everything she tried to sip or vomit it would pour out her cute little nose. 😩

We had a great physical therapy and walked the halls with no nausea. Her and I got her bathed and we were successful at getting all of the surgical goo and dreads that had started out and didn’t hurt her staples or incision/stitches at all. This can be very scary and her surgery in May we both cried during her first shower, this time we were pros and rocked it! 🙌🏼

We then stopped the IV meds and moved to everything orally and she is doing amazing! She got a visit from Van the therapy dog and it totally made her day. We got some amazing yummy fruit from my friend Lindsay that Laura loved!

It was wOnDeRfUl day and if the night goes well we might get to go home tomorrow!!! ❤️🧠❤️
We have had such amazing staff and Laura struggled to say goodbye to her nurse Melissa that she has had the past few days. She was a huge blessing and loved Laura so much!

Thank you all for your prayers, I am 100% confident we wouldn’t be where we were today without everyone of you fighting and praying for us! He is such an amazing God!!!

02/17/2022

MRI looks pretty good, no bleeding just some swelling which is causing speech and swallowing issues.
Steroids started and rest is needed!
Thanks for the prayers!

02/17/2022

Dr Swift just visited and they are sending her for an MRI…having some swallowing and speech issues.

☀️Good morning! God is sooo faithful!☀️Surgery update!•They started surgery around 9am yesterday and finished at 1:50! T...
02/17/2022

☀️Good morning! God is sooo faithful!☀️

Surgery update!
•They started surgery around 9am yesterday and finished at 1:50! This was 1-2 hours shorter than expected. 👏🏼
•They entered her same incision as last time and removed the same section of her skull to access her brain. Her dura matter had been thinned out from her last surgery so well, that Dr Swift was able to see her brain pulsing and the lack of CSF flow around that area.
•He then entered the dura matter to start working on the tonsils of her cerebellum. The first one they worked out really surprised him and he said it was tissue like he had never seen before. 😳 It had been forced so far down into her spinal cord and was so swollen that the tissue was so unusual and as soon as he went to cauterize it, it shriveled up and died. cRaZy!! This showed him how needed this surgery was and we are so thankful if didn’t damage the actual tissue further up into her cerebellum.
•He then removed the other tonsil of her cerebellum and was able to remove it with very little scar tissue and it went beautifully. 🙌🏼
•He then worked on her skull and placed a patch so it will prevent her brain 🧠 from hopefully dropping back into her spinal cord and eliminate any pressure in her brain!
•The Syringomyelia cysts (syrinx) that currently fill her spinal cord were not able to be removed BUT with the elimination of the pressure from her brain and the return of CSF fluid, hopefully they will dissolve and/or no longer ever cause problems again.
•Whoops😩…they had an accident as they were removing her from the halo that held her in place during surgery and this caused about a 2.5 inch laceration on her scalp when her head slipped in the halo. She has 4 staples that closed her up and hopefully won’t bother her to much. 😩

🙏🏼PRAYER NEEDS FOR Thursday🙏🏼
•Nausea and pain control, we have had a ton of vomiting and isn’t able to keep water down yet.
•Speech and swallowing to improve. She is struggling with her speech and swallowing.

God is so good you all!!! The goodness of God and how much he loves my girl and has prepared her and the staff here has blown me away. Thank you all for praying for Laura, we felt such peace and it brought us somkhch comfort to know how much support we have in Tulsa cheering her on!

LAURA is a warrior and I’m humbled to watch her fight this pain and struggle with such kindness and grace. In recovery she was puking and couldn’t stop thanking them for taking care of her. I am so PROUD of who she is and how she is letting Jesus’ light 💡 shine through her during this hard journey!

02/16/2022

SHE IS OUT OF SURGERY!!! Waiting to see her in recovery!
Will post the results in just a bit!
GOD IS SOOO GOOD!!!

02/16/2022

Update…nurse called and vitals are good and everything is going well. They will call back in 2 more hours!

Address

Tulsa, OK

Website

Alerts

Be the first to know and let us send you an email when Laura's Chiari Journey of Healing posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Share

Share on Facebook Share on Twitter Share on LinkedIn
Share on Pinterest Share on Reddit Share via Email
Share on WhatsApp Share on Instagram Share on Telegram