Bella’s Bravery Battle: A war against HLHS and more

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Bella’s Bravery Battle: A war against HLHS and more A feisty little girl’s whole-hearted battle against a half-hearted disease.

Ok guys, yesterday was kinda rough! A few things to clear up: This is a contest, yes, so ONE vote per day is FREE. It is...
23/07/2025

Ok guys, yesterday was kinda rough! A few things to clear up: This is a contest, yes, so ONE vote per day is FREE. It is ALSO a fundraiser for Toys for Tots, so if you want to vote more than once PER DAY, yes, it asks for a donation. I do not expect anyone to pay to vote! My girls were recipients of TFTs when things were really hard a few years ago, so this charity is near and dear to my heart, but we are not paying to participate and we do not expect others to contribute. This brings the Toys for TOTs name to the forefront so even that helps. I also thinks it’s just a fun thing to do. You can vote everyday!

This Sweet, Smart, Spicy, Silly HLHS Heart Warrior Is The BEST Little Sister To Disabled Big Sis! Fierce. Feisty. Resilient. Overcomer!

20/07/2025

BIG NEWS! Arabella is in the running to become Toddler of the Year! Stay tuned!

25/05/2025

On todays episode of “What Fresh Chaos Can We Endure”, both my kids are sick 😅

We Wear Red for Congenital Heart Disease! In honor of the celebration, Bella was untethered by her oxygen for 5 minutes ...
07/02/2025

We Wear Red for Congenital Heart Disease! In honor of the celebration, Bella was untethered by her oxygen for 5 minutes ❤️‍🩹 Sissy wore red, too!

04/02/2025

Painting hearts for Heart month! We will be taking about 60 of these into the PICU at CHKD and to her cardiology team!

I know I don’t update much outside of crises, but I will try to do better this month in honor of my girl. Friday is Wear...
04/02/2025

I know I don’t update much outside of crises, but I will try to do better this month in honor of my girl. Friday is Wear Red for CHD Day, so I hope some of our supporters will do it!

Three years ago today, Arabella and I arrived at UVA for her second open-heart surgery (the Glenn) pre-op appt. We arrived to find out she’d been bumped- why? Because another baby got a heart for transplant! We had to stay close by because Bella was in a precarious spot- almost needing admitted- but that’s the life of a heart family. While one child is on the brink of calamity, another is getting a second chance. All the while, another family is mourning the loss of their baby. Everyone tends to think of the older adult when they hear “cardiac” or “heart problems”, but every 15 minutes a child is born with CHD.

04/02/2025

It’s heart month!

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