Alondras Miracle Journey with Tapvr Dystonia and seizure disorder

Alondras Miracle  Journey with Tapvr Dystonia and seizure disorder Contact information, map and directions, contact form, opening hours, services, ratings, photos, videos and announcements from Alondras Miracle Journey with Tapvr Dystonia and seizure disorder, Medical and health, Vallejo, CA.

Searching for other kids and families with deletion in 2q32.1 and duplication in 2p16.1 since alondra has a triplication in 2p16.1 and as far as they know and cntnap2 To provide help or support to other families in my community attempt to find and link up with other families with her genetic mutation and to one day get her diagnosed properly

03/13/2026

Our annual Jog-A-Thon Fundraiser is coming March 13th and I need your help to raise money for our school! All money raised at our Jog-A-Thon stays at Blossom Valley Elementary. Our PTO uses the money to fund critical programs such as student enrichment, music and art, Running Club, dances, the fall....

Hello everyone, tomorrow marks Alondra's first jog-a-thon and she is extremely excited to participate. She is looking fo...
03/13/2026

Hello everyone, tomorrow marks Alondra's first jog-a-thon and she is extremely excited to participate. She is looking forward to me sharing this and seeing if anyone will support her goal. Thank you everyone.

Our annual Jog-A-Thon Fundraiser is coming March 13th and I need your help to raise money for our school! All money raised at our Jog-A-Thon stays at Blossom Valley Elementary. Our PTO uses the money to fund critical programs such as student enrichment, music and art, Running Club, dances, the fall....

10/18/2024
Alondra and her siblings Halloween šŸŽƒ 2022
11/01/2022

Alondra and her siblings Halloween šŸŽƒ 2022

Wow after all the hard holidays my baby Alondra Rodriguez suffered this year a little glimmer of hope WE FINALLY have a ...
01/02/2022

Wow after all the hard holidays my baby Alondra Rodriguez suffered this year a little glimmer of hope WE FINALLY have a DIAGNOSIS ON PAPERWORK for my baby girl šŸ’œdoesn’t give us answers we didn’t know and it’s what we in our hearts believed but no one ever took the balls to call it… until now it’s still not all perfect but we have a good neurologist that’s willing to work with my baby regardless of what these are and she’s willing to keep open mind to get her a treatment so she can have the best quality of life if these darn spasms or episodes are here to stay but she’s willing to not give up on my baby and that’s all I could ever ask to feel a trust in a doctor again until today I’ve only felt this trust with 2 doctors but really 1 the girls cardiac doc and now also our neurologist from standford best bday present for Alondra and great way to begin this 2022 for our family as well because we are in this together with her till the end we love u mamas ALONDRA DULCE SARAƍ QUIJAS 1 of a kind in this world lol šŸ’œ warrior microdeletion syndrome deletion neuro developmental disorder warrior

04/16/2021

Alondra participated And was awesome in school today she tried so much to follow directions lol and not try to boss around all her teachers lol but I am
So proud of her and elated at all her drawings she went step
By step with her teacher super awesome

We need to try
03/10/2021

We need to try

These can be so helpful and serve more than one purpose!

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Vallejo, CA
94591

Telephone

+17074120567

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