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Keep Goin Owen

The experience of raising our son Owen who has Lennox-Gastaut Syndrome.

01/01/2026

New Year’s Eve in the Upside Down. On-theme snack board, 3D printed Vecna, and gearing up to fight the toughest villain yet —epilepsy.

Bring it, 2026 💜⚡️🧠

12/25/2025

This year’s Christmas Eve party was brought to you by questionable decisions and a very aggressive snow machine 🌨️ 😆 🎅

12/19/2025

Honeymooning once again over here, how long will it last? No one ever knows but for now, I’m focusing on heavy pours and holiday fun … Epilepsy’s gonna need to hire a new PR person after we’re done with him 💜⚡️😆

specialneeds specialeducation epilepsy specialneedsmom medicalmama developmentaldelay intellectualdisability neurodiversity acceptance rarediagnosis raredisease medicaltrauma eeg autism inclusion

12/08/2025

Proof of life ✨ Thank you to all who reached out. Sad to report that Owen’s miraculous 2 year seizure free streak has ended and I spent the weekend drowning in my sorrows and drinking until I couldn’t feel feelings 🍻 Per usual the electric devil has made a dramatic entrance instead of politely trickling back into my life - I was stunned awake at 3am by that familiar and horrifying noise that all epilepsy parents know (and hate). Owen appears no worse for the wear thankfully, he’s so freakin strong that kid, nothing slows him down 💜

But, now it’s Monday and with a renewed sense of strength I’m back to fight once again, meaner and salty as ever, epilepsy messed with the wrong kid and with the fire of a thousand suns and the energy of the world’s worst Karen inside me, I have vowed to battle once more, epilepsy is tough but we are tougher, let’s do this Owen, I gotchu babe 😉

12/04/2025

This is what fighting a catastrophic diagnosis looks like 💜⚡️

11/25/2025

Every year he shows the world what courageous rizz looks like. So grateful for this amazing 3rd grader of mine 💜

11/20/2025

Closing out another meaningful week of feeling deeply moved. I got to help provide meals to EMU patients, honor the incredible children’s hospital team who saved my son’s life, attended my first book signing, and stood with families seeking support and access to epilepsy professionals. We’re stronger together and that’s what this month is all about 💜

🍝 Thank you for letting me be a part of this month’s meaningful meals
🧠 thank you another great Talk-to-the-Doc
📖 The amazing epilepsy mom turned author
🌭 and to my girl for co-hosting a special lunch at CHOC

⚡️💜⚡️💜⚡️

11/17/2025

Like a river flows, we are a continuous, powerful force that moves forward, overcomes obstacles, and finds joy on purpose. This Epilepsy Awareness Month: we’re slamming down the symbolic burden we’ve carried for far too long 💜⚡️🧠

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Villa Park, CA
92861

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