Keep Goin Owen

Keep Goin Owen The experience of raising our son Owen who has Lennox-Gastaut Syndrome.

Nothing like a couple of days of intense health issues to remind you who’s really in control here … I had one the most b...
04/10/2026

Nothing like a couple of days of intense health issues to remind you who’s really in control here … I had one the most brutal vomit virus nights of my motherhood journey so far this week and in classic epilepsy cruelty fashion that was followed up with one the longest and worst seizures these eyes have ever seen 🙈

The thing is, I knew it was coming, I was on high alert because after 24 of no meds and no sleep, the electric devil likes to come out and play 😈 and that she did.

Everyone is recovering now, back to baseline as the say in medical mom world, but the those horrors …well, they do be persistin’ sometimes 😖

Happy Purple Day to all who celebrate and all who loathe ⚡️💜 a reminder that today we let the electric devil have it’s l...
03/27/2026

Happy Purple Day to all who celebrate and all who loathe ⚡️💜 a reminder that today we let the electric devil have it’s little moment, we wear purple and honor the fight because we love fierce and we don’t give up

Today’s Facebook memory really chose violence. Good Morning Emotional Wreckage- it’s been a minute. And yes Colleen of 2...
03/05/2026

Today’s Facebook memory really chose violence. Good Morning Emotional Wreckage- it’s been a minute. And yes Colleen of 2018, you will need to get woke real quick 😖

03/04/2026

After 2 really hard visits to Disneyland, we finally got our redemption day 😎 I’ve officially upgraded my evaluation of this place from something I will tolerate to something I find mildly agreeable 😆

02/24/2026

Join your homeboy Owen for another episode of cultural experiences my mom forced us to do. This week’s adventure brought us to America’s most hated city Los Angeles, CA 😎🌮🐉

Just so you know, this is not actually me talking, it is satire. No one was harmed by spicy tacos by inedible confetti

Came for the snacks, stayed for the bunny 🏟️🐰Simply had to post this cute pic of me and my future lineman. Still toppin ...
02/09/2026

Came for the snacks, stayed for the bunny 🏟️🐰Simply had to post this cute pic of me and my future lineman. Still toppin the charts at the 90th percentile, now I just gotta show him how to cover the blind side hut hut 🏈

Today is the date 1/26 👉 1 in 26. That’s how many people will develop epilepsy in their lifetime. It’s more common than ...
01/26/2026

Today is the date 1/26 👉 1 in 26. That’s how many people will develop epilepsy in their lifetime. It’s more common than multiple sclerosis, Parkinson’s disease, and ALS, yet it’s still so misunderstood. Epilepsy is life-threatening, unpredictable, and it shapes every decision I make and my entire identity as a parent 🧑‍🧒
I will never stop fighting for my son, raising awareness, and standing up for families like mine who live this reality every single day 💜⚡️I’m here and I get it 🫂

I don’t have elegant words for this, but here I sit, so anxious I’m nauseous and I cannot sleep -It’s been 2 years since...
01/13/2026

I don’t have elegant words for this, but here I sit, so anxious I’m nauseous and I cannot sleep -
It’s been 2 years since I’ve been to the belly of the beast with Owen and now he’s bigger, stronger, trauma aware and I am absolutely terrified of what tomorrow’s hospital stay will bring. We used to go to the emu together every. single. month.

But now we’re coming in with a broken heart, a broken spirit, and a taste of freedom that stung so badly when it ended - I still haven’t recovered. Was it real? Will we get it again? More importantly, are we still strong enough to fight for it?

Even though seizure freedom was brief I believe it was worth every second. So here we go again my son, the horrors persist but so do we 💜⚡️

New Year’s Eve in the Upside Down. On-theme snack board, 3D printed Vecna, and gearing up to fight the toughest villain ...
01/01/2026

New Year’s Eve in the Upside Down. On-theme snack board, 3D printed Vecna, and gearing up to fight the toughest villain yet —epilepsy.

Bring it, 2026 💜⚡️🧠

12/25/2025

This year’s Christmas Eve party was brought to you by questionable decisions and a very aggressive snow machine 🌨️ 😆 🎅

Honeymooning once again over here, how long will it last? No one ever knows but for now, I’m focusing on heavy pours and...
12/19/2025

Honeymooning once again over here, how long will it last? No one ever knows but for now, I’m focusing on heavy pours and holiday fun … Epilepsy’s gonna need to hire a new PR person after we’re done with him 💜⚡️😆

 
specialneeds specialeducation epilepsy specialneedsmom medicalmama developmentaldelay intellectualdisability neurodiversity acceptance rarediagnosis raredisease medicaltrauma eeg autism inclusion

Proof of life ✨ Thank you to all who reached out. Sad to report that Owen’s miraculous 2 year seizure free streak has en...
12/08/2025

Proof of life ✨ Thank you to all who reached out. Sad to report that Owen’s miraculous 2 year seizure free streak has ended and I spent the weekend drowning in my sorrows and drinking until I couldn’t feel feelings 🍻 Per usual the electric devil has made a dramatic entrance instead of politely trickling back into my life - I was stunned awake at 3am by that familiar and horrifying noise that all epilepsy parents know (and hate). Owen appears no worse for the wear thankfully, he’s so freakin strong that kid, nothing slows him down 💜

But, now it’s Monday and with a renewed sense of strength I’m back to fight once again, meaner and salty as ever, epilepsy messed with the wrong kid and with the fire of a thousand suns and the energy of the world’s worst Karen inside me, I have vowed to battle once more, epilepsy is tough but we are tougher, let’s do this Owen, I gotchu babe 😉

 

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