Strong Like AJ

Strong Like AJ is a page for our son, AJ Jackowski, who was born very premature at 25 weeks on June 3

Please take a moment today to say a prayer for our sweet friend Ryleigh and her family. Amber Lynn Martin is the best ma...
03/12/2022

Please take a moment today to say a prayer for our sweet friend Ryleigh and her family. Amber Lynn Martin is the best mama and caretaker and could use some extra good vibes from our team. Ryleigh’s condition is rapidly declining and causing her to suffer. Please pray for resolution, recovery and peace in their hearts and minds ❤️

12/16/2020

We’re so happy to know you Dyan ❤️

So...I have to share this photo, and the incredible story behind it. This may just look like another cute photo of a friend's child with my book - but it is SO much more than that!! This photo is extra special, because the child holding my book is a living, breathing miracle.

This is AJ. I first met AJ in person when he was a year and a half old. It took until then, because he spent the first year of his life in the NICU in a hospital. (AJ's dad is close childhood friends with the guy I was dating, which is how I met him.) AJ was born after just 25 weeks of gestation on June 3rd, 2018. He only weighed one and half pounds at birth, and he was impossibly tiny. This little guy has endured numerous surgeries; has had a number of serious illnesses; and had several very close brushes with death in the first year of his life alone. But he just kept fighting to live. And he just kept defying the odds. Over and over and over again.

I've included a few other photos of AJ, so you can see just how far he's come in the last 2 and a half years. (AJ has his own FB page, if you'd like to follow his story at Strong Like AJ.) This little dude continues to grow and thrive, and he inspires me so much! So, ya...THIS photo is extra special, because the little guy in this photo came so close to not making it. But this kid is here to stay! Love you, AJ!!

06/25/2020

Light Your Candle Photography

I have been blessed to have met such wonderful people! Hearing AJ’s story brought me to tears! The only explanation is “GOD IS GOOD”. Want to learn more about it? Follow his page at

This is why I do what I do! 

05/19/2020

OurLittlepreemie

AJ, Born at 25+3, weighing 1lb13oz, graduated the NICU after 211 day NICU stay
📸 Via Melissa Jackowski

04/14/2020

Strong Like AJ

12/30/2019

OurLittlepreemie

This!

12/16/2019

OurLittlepreemie

Always believe! This is my 25 weeker AJ. After a 211 day NICU journey including 9 intestinal surgeries due to NEC and lots of complications, this little dude started walking at exactly 18 months actual. I’m so proud and I thought I’d share for anyone in the midst of their journey.
📸 FB/ Melissa Jackowski

08/15/2019

Ronald McDonald House Pittsburgh

Looking to kick off the school year with a charitable project for your students? Collecting pull tabs to support the families of Ronald McDonald House Pittsburgh is as easy as 1,2,3:

1. Collect pull tabs from aluminum cans.

2. Drop off the pull tabs at RMH Pittsburgh or at a local recycling center.

3. Donate the money collected from recycled pull tabs to RMH Pittsburgh!

The money is then used to support our mission. Last year, the pull tabs collected raised over $8,500 and provided over 420 nights of lodging to the families that we serve.

08/02/2019

Preemie and NICU Family Support and Guidance

07/26/2019

Beads of Courage

AJ is celebrating his 1st birthday with some of his Beads of Courage. He received 1,411 beads during a 7-month hospital stay. His mom says, "We often look at these beads as a reminder of how strong AJ is. They are so important to us." 💛

06/05/2019
Palermo Heart to Heart

Palermo Heart to Heart

Vote for your favorites! The fifth week of our Colorful Clicks has begun. These show children in the fight against serious illnesses that they are not alone. Submit your photos here: www.palermo-foundation.org/contest/

Beads of Courage families, snap a photo with your beads!

Thanks to Hannah Christine Tirko and Anthony Jackowski for sharing these images.

05/28/2019

Schrift Photography

"You never know how strong you are until being strong is the only choice you have" Bob Marley ❤
Beads of courage. 1,411 of them. He got one for every procedure he went thru. He is about to turn one

05/13/2019
Palermo Heart to Heart

Palermo Heart to Heart

It's week two of our ! Who should win this week's match-up? Bring joy to the life of children fighting serious chronic illnesses by submitting your own here: www.palermo-foundation.org/contest/

Thanks to Melissa Jackowski and Elizabeth Arduini for sharing these images!

03/26/2019

AJ was delivered in 19 minutes thanks to this man 💙

Had to share this... We got so many nice comments about our February issue of Johnstown Magazine. Our favorite came from Dr. Adib Khouzami whose photo was on the cover. The well-loved Johnstown doctor took time from his busy schedule to give us a call.



Conemaugh Health System

03/15/2019

OurLittlepreemie

Nicu miracle workers...

03/05/2019

Love+Lungs=Life for Luke

Luke's intestinal transplant evaluation is done and we will hear in 1-2 weeks what the decision is. Over the past 4 months a significant part of our support system is Ronald McDonald House. We have stayed here whenever we need to be in Pittsburgh since Luke's double lung transplant in 2010. For the first time, we had to use their charity funds to help cover our room payment. Each room is asked to pay 20.00/night to help cover costs (this obviously does not pay for all the costs ). I was surprised to find out 85% of the families who stay cannot pay the 20.00/night. There are so many ways you can help RMH: decorating a floor (the doors of each room), donating money, making a meal for the families, collecting soda can tabs, hosting a movie/baking/craft night for families, donating supplies, and others. Having a place to "get away" while being so close makes it easier. Having a place for family to stay means so much to Luke and nutritious meals cooked by volunteers not only helps monetarily but also it gives variety the cafeteria can't. Having a place as a "middle grounds" between hospital and home is so helpful for families like ours that live far away. I am so incredibly thankful for the staff who is like family to us. If you are an Amazon shopper please purchase something off their wish list and send it to help support families like ours! Https://amzn.to/2GDmyks (or https://www.amazon.com/gp/aw/ls/ref=?ie=UTF8&%2AVersion%2A=1&%2Aentries%2A=0&lid=45F1G54VTWKM&ty=wishlist )

03/02/2019

Peek-a-boo ICU

Happy Birthday Dr. Seuss!

01/28/2019

Preemie and NICU Family Support and Guidance

To the mom hiding in her bathroom, needing peace for just one minute, as the tears roll down her cheeks..

To the mom who is so tired she feel likes she can't function anymore and would do anything to lay down and get the rest she needs...

To the mom sitting in her car, alone, stuffing food in her face because she doesn’t want anyone else to see or know she eats that stuff…

To the mom crying on the couch after she yelled at her kids for something little and is now feeling guilty and like she is unworthy…

To the mom that is trying desperately to put those old jeans on because all she really wants is to look in the mirror and feel good about herself…

To the mom that doesn’t want to leave the house because life is just too much to handle right now…

To the mom that is calling out for pizza again because dinner just didn’t happen the way she wanted it to…

To the mom that feels alone, whether in a room by herself or standing in a crowd...

You are enough.

You are important.

You are worthy.

This is a phase of life for us. This is a really really hard, challenging, crazy phase of life.

In the end it will all be worth it. But for now it’s hard. And it's hard for so many of us in many different ways. We don't always talk about it, but it's hard and it's not just you.

You are enough.

You are doing your best.

Those little eyes that look up at you - they think you are perfect. They think you are more than enough.

Those little hands that reach out to hold you - they think you are the strongest. They think you can conquer the world.

Those little mouths eating the food you gave them - they think that you are the best because their bellies are full.

Those little hearts that reach out to touch yours - they don’t want anything more. They just want you.

Because you are enough. You are more than enough, mama.

You. Are. Amazing. 💙💚

- Anonymous -

01/19/2019

Preemie and NICU Family Support and Guidance

25 Things Every NICU Mom Needs to Tell Herself Daily

1. It’s not your fault.
2. This baby is blessed to have you loving them, right now.
3. It’s absolutely not your fault.
4. You are an amazing mother.
5. You don’t determine birth dates; I believe God does.
6. Faith can move mountains, so it can definitely move babies.
7. Buy that outfit. Decorate the nursery. Hang those pictures. Your baby is coming home. Believe it every single day. It’s OK to prepare and to let your heart be open. Your baby deserves every bit of your belief.
8. Your instincts rock. Trust your intuition. It’s your mommy superpower. Let it guide you through your NICU stay and every moment after. Don’t hesitate to listen to it today. It could save your baby. Never be afraid to speak up.
9. Be grateful for the little things. The little things are awesome. (Who knows this better than you?)
10. Life was never supposed to be easy. Challenges come. You just have to show up and fight. Fight like a preemie.
11. I believe God is with you now and always. He isn’t punishing you. Look how many lives your baby has inspired already. God’s got this.
12. You have to take care of yourself. Don’t neglect yourself. Don’t put Mommy in the corner.
13. It’s not your fault.
14. No one who loves you is blaming you.
15. You are a part of the team. You can tell the doctor what you think is best. You know your baby, too.
16. Breastmilk is great, but if it isn’t coming out, don’t stress over it. The baby will eat.
17. Miracles happen every day. It’s OK to expect them!
18. No matter what the day brings,the sun will shine tomorrow. Tomorrow will be a better day. Things won’t seem so bad in the morning.
19. A test can either tell you everything is fine or what needs to be done for your baby to make everything fine. Don’t fear them.
20. The NICU is home. Make it feel like home. Home is where the heart is. And that is definitely your heart in that incubator.
21. This too shall pass.
22. You’ve come this far, you can keep going. Get up. Show up. Dry those eyes. Keep going.
23. It’s OK to cry. It’s OK to need. It’s OK not to be OK all of the time.
24. Your heart is right to be broken. Help it to be hopeful. Hopeful takes the edge off.
25. No matter how you feel, no matter how hard it is to accept, it is not your fault. Please don’t blame yourself. Especially on the bad days. Prematurity happens to so many women. It’s important to spread awareness not regret. Remember — this is your baby’s journey, your baby’s testimony. Don’t reduce it.

Written by Kaleena Berryman

01/15/2019

NEC Society

The NEC Society will be hosting educational webinars on probiotics, intended for NICU staff as well as parents. Please mark your calendars and plan to join us!

Please note: This webinar series is intended to be educational in nature. The NEC Society and invited presenters are not marketing any probiotic product, which are not currently FDA approved for the prevention of any neonatal disease.

12/27/2018

This is true from day 1....

The NICU summed up in one picture. 💜

12/24/2018

Unbriefed : the life of a cna

NGT🎅🎅🎅

12/19/2018

Preemie and NICU Family Support and Guidance

Who has a tubie?

A feeding tube is a medical device used to provide nutrition to patients who cannot obtain nutrition by mouth, are unable to swallow safely, or need nutritional supplementation. The state of being fed by a feeding tube is called gavage, enteral feeding or tube feeding. Placement may be temporary for the treatment of acute conditions or lifelong in the case of chronic disabilities. A variety of feeding tubes are used in medical practice. They are usually made of polyurethane or silicone. The diameter of a feeding tube is measured in French units (each French unit equals 0.33 millimeters). They are classified by site of insertion and intended use.

The most common types of tubes include those placed through the nose, including nasogastric, nasoduodenal, and nasojejunal tubes, and those placed directly into the abdomen, such as a gastrostomy, gastrojejunostomy, or jejunostomy feeding tube.




12/17/2018

Peek-a-boo ICU

SAINT NICU

'Twas the night before Christmas, in the neonatal intensive care,
all the babies were sleeping, while sounds of alarms filled the air.

The nurses making rounds, double-checking their meds,
while tucking the little babies, snug deep in their beds.
The stethoscopes were hung, by the preemies with care,
in hopes that they would all soon, be breathing room air.

When out in the hall, there arose such a clatter,
the parents came running, to see what was the matter.
Up from the desk, jumped all of the staff,
to make sure all was well, in each baby's Giraffe.

The respiratory therapist arrived on the double,
but the babies were all okay, on their oxygen and bubble.
The nurse practitioner was baffled, and exclaimed in a tiff,
"Is this really happening tonight? And on my THIRD shift?"

When what to their wondering eyes should appear?
But a man in a suit, who loved the babies so dear.
With a clipboard in hand, and a velvet satchel too,
they knew at that moment; he must be St. NICU.

He was dressed in red scrubs, from his tip to his toe,
and wearing surgical gloves, so the germs would not grow!
He was a jolly old fellow, with a few extra pounds,
but that didn't stop him, from making his rounds.

He saw babies in boxes, with tubes and with wires,
preemies and term infants, and their parent's desires-
To hold and to rock, to kiss and kangaroo;
they all had Christmas wishes, but only these few.

Snuggling the little one, he wrapped him so tight,
he handed the baby, to his mom with delight.
A smile arose from her mouth, with great joy,
for this was the moment, she dreamed of having, with her boy.

Visiting each baby, and their concerned parents too,
He knew right away, there was something special about the NICU.
Placing his hands, on each little head,
kissing their foreheads, he winked, and he said:

"Tiny babies so strong, with determination and might,
so this is where you come, to live and to fight."
"To breathe and to grow, and to learn how to eat,
what a difficult journey, but such an amazing feat."

He had a sparkle in his eye, and a hop in his step,
as he approached the incubators, and whispered secrets he'd kept:
"Precious little babies, you are loved, so dear,
by your parents, your nurses, and ALL the staff here."
"Keep fighting the fight, and showing your power,
and you will grow stronger, with each passing hour."

Decorating the hallways, with ribbon and tape,
he strung lights on the warmers, the ventilators, and drapes.
He smiled and waved, as he passed by the cribs,
and left presents of pacifiers, and cute little bibs.

His mission was simple, to bring joy where there's sorrow,
and to remind all of the parents, of a brighter tomorrow.
This Christmas may be spent, behind the walls of the NICU,
but there's love to be found here, and precious miracles too!

He brought hope to the families, and smiles to the nurses,
as he flew by the monitors, and placed Purell in their purses.
And with a twinkle and a twirl, he disappeared out of sight,
But not before he exclaimed, "Merry Christmas to all" and "keep up the fight!"

©Peek-a-boo ICU

Download a printable version of this poem here:
http://bit.ly/SaintNICU2017
Please share it with your family, friends, and your baby's NICU this holiday season!

12/07/2018

AJ had a wonderful night. We are weaning his high flow 02 again and starting feeds, possibly with a bottle. Waiting on an Xray reading then deciding what his feeding plans will be 💙⚾️💙

12/07/2018

AJ is getting so BIG! He has great head control and is trying so hard to roll over in his crib. He tried the ni**le of a bottle today and did great. It’s amazing to see all of the progress he has made despite his belly and respiratory issues. He’s such a fighter and we’re so grateful he decided to rock at life 💙⚾️💙

12/06/2018

Mommy wore this little dude out this morning

12/05/2018

AJ had PT like a big boy this morning 💙

12/05/2018

AJ had a super great night! He keeps doing big things and surprising us all!

12/05/2018

'Twas the night before Christmas, in the neonatal intensive care,
all the babies were sleeping, while sounds of alarms, filled the air.

The nurses making rounds, double-checking their meds,
while tucking the little babies, snug deep in their beds.
The stethoscopes were hung, by the preemies with care,
in hopes that they would all soon, be breathing room air.

When out in the hall, there arose such a clatter,
the nurses came running, to see what was the matter.
Up from the desk, the tech flew with a fret,
to make sure all was well, in each baby’s isolette.

The respiratory therapist, arrived on the double,
but the babies were all okay, on their oxygen and bubble.
The nurse practitioner was baffled, and exclaimed in a tiff,
“Is this really happening tonight? And on my THIRD shift?”

When what to their wondering eyes should appear?
but a man in a suit, who loved the babies so dear.
With a clipboard in hand, and a velvet satchel too,
they knew at that moment; he must be St. NICU.

He was dressed in red scrubs, from his tip to his toe,
and wearing surgical gloves, so the germs would not grow!
He was a jolly old fellow, with a few extra pounds,
but that didn’t stop him, from making his rounds.

He saw babies in boxes, with tubes and with wires,
preemies and term infants, and their parent’s desires-
To hold and to rock, to kiss and kangaroo,
They had Christmas wishes, but only these few.

Snuggling the little one, he wrapped him so tight,
he handed the baby, to his mom with delight.
A smile arose from her mouth, with great joy,
for this was the moment, she dreamed to have, with her boy.

Visiting each baby, and their concerned parents too,
He knew right there and then, there was something special about the NICU.
Placing his hands, on each little head,
kissing their foreheads, he winked, and he said-

“Tiny babies so strong, with determination and might,
so this is where you come, to live and to fight.”
“To breathe and to grow, and to learn how to eat,
what a difficult journey, but such an amazing feat.”

He had a sparkle in his eye, and a hop in his step,
as he approached the isolettes, and whispered secrets he’d kept-
“Precious little babies, you are loved, so dear,
by your parents, your nurses, and ALL the staff here.”
“Keep fighting the fight, and showing your power,
and you will grow stronger, with each passing hour.”

Decorating the hallways, with ribbon and tape,
he strung lights on the warmers, the ventilators, and drapes.
He smiled and waved, as he passed by the cribs,
and left presents of pacifiers, and cute little bibs.

His mission was simple, to bring joy where there’s sorrow,
and to remind all of the parents, of a brighter tomorrow.
This Christmas may be spent, behind the walls of the NICU,
but there’s love to be found here, and precious miracles too!

He brought hope to the families, and smiles to the nurses,
as he flew by the monitors, and placed Purell in their purses.
And with a twinkle and a twirl, he disappeared out of sight,
But not before he exclaimed, “Merry Christmas to all” and “keep up the fight!”

Anon

12/05/2018

Today has been an amazing day. AJ switched to high flow oxygen and is doing splendidly. He is only on 3 liters, which is not much support compared to where we started. His Pneumatosis is gone and he gets to eat again on Saturday, without the cpap pressure to fill his belly with air. We hope this will help him digest more easily and avoid more intestinal problems going forward. It’s important to acknowledge that his continuity of care has been fantastic these last few weeks. It makes all the difference in the Nicu. Having people who know and care about our boy is a blessing. They follow his cues and can tell when something may be off. Without this level of care, we wouldn’t be celebrating today’s victories and this may have been a completely different post. I didn’t always believe in miracles. Now I know they are possible. Thank you, thank you, thank you.

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Vineland, NJ

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Strong Like AJ with my book!
Happy 2nd Birthday AJ, Pop Pop and Mom Mom miss you and wish you the best birthday ever 💙
Had a nice visit with AJ. Thank you for sharing his story with us.
Just wanted to drop by and say merry Christmas to your family from ours. Hopefully little man gets to go home soon. Stay strong Tony Jackowski and melissa. You guys have overcame a long road and the is a light at the end of the tunnel you're almost there. Keeping AJ in our prayers!
Tony Jackowskis speech
StronglikeAJouting Melissa Jackowski Tony Jackowski