Emilia's Brave Battle

Emilia's Brave Battle 3 yr old Emilia is at St Jude's with a brain tumor. please continue to pray.

Emilia’s insurance finally approved her medicine and we received it today!!! This medication is SOOO much different than...
04/27/2026

Emilia’s insurance finally approved her medicine and we received it today!!!

This medication is SOOO much different than the other one. Excuse me while I take a crash course 🥲

Not a lot of photos today, but small photo dump
04/02/2026

Not a lot of photos today, but small photo dump

Not the news we were wanting to hear. Since October, her tumor has grown exactly 25% which means she has to stop the cli...
04/02/2026

Not the news we were wanting to hear.

Since October, her tumor has grown exactly 25% which means she has to stop the clinical trial. So as of today we are stopping treatment, our oncologist is going to contact her insurance to get them to approve another drug (which by the way is $30,000 a month 🥴)

Once insurance approves, 🤞🤞, we will come back to Tennessee to start this new treatment, another oral chemo.

We will have to go back to coming to Tennessee every other month to make sure this medicine will work.

And like before, this new medicine comes with different side affects. So here’s to starting this process all over again.

Today Emilia woke up super early for no reason at all 😂So we got up got dressed and headed to the hospital, went and ate...
04/01/2026

Today Emilia woke up super early for no reason at all 😂

So we got up got dressed and headed to the hospital, went and ate breakfast, made arts and crafts, played in the music room, and got to see our favorite shuttle driver.

First we had a mock mri, just to introduce her to what the machine is, what it does, and what it sounds like. This is to teach her, so hopefully soon she won’t need to be sedated for her scans, and she did SO good.

Next was opthamology, no change in vision.
And echo and ekg.

We went back to our room , took a nap then came to dominos to come play.

Our days start early in the morning at 5am. So it’s gonna be an early night tonight!

St Jude here we come
03/31/2026

St Jude here we come

03/09/2026

When I tell her our upcoming trip is only 3 days long

Today our girl had book character day at school!
03/02/2026

Today our girl had book character day at school!

This trip was super fast but crazy busy. We will forever call this place our second home. Currently on our first flight ...
02/05/2026

This trip was super fast but crazy busy. We will forever call this place our second home.

Currently on our first flight headed home! Enjoy a photo dump of the last few days 💕

Not the news we were hoping for. 😞😞😞Emilia’s tumor has grown about 15%, and has more activity. We weren’t scheduled to c...
02/05/2026

Not the news we were hoping for.
😞😞😞

Emilia’s tumor has grown about 15%, and has more activity. We weren’t scheduled to come back to Tennessee until July, but now we will come back in 8 weeks for a rescan and just pray that this was a one time thing.

We always knew regrowth was going to happen, but wasn’t supposed to happen while on treatment. So for now we upped her dose and just have to watch and make sure nothing changes with her and will come back for scans around April.

We are freezing but ready to get this crazy busy day started! We have scans mid day today, praying for stability and no ...
02/04/2026

We are freezing but ready to get this crazy busy day started!

We have scans mid day today, praying for stability and no growth.

St Jude here we come!
02/03/2026

St Jude here we come!

Whew it’s been a day, we hit the road at 6am for our monthly appointment in Baton Rouge. The second we pulled up instant...
12/06/2025

Whew it’s been a day, we hit the road at 6am for our monthly appointment in Baton Rouge.

The second we pulled up instant tears, she knew she had to get poked 😭

I keep hoping that one day it will get easier for her, but so grateful for such an amazing staff at lady of the lake. They sang to her while doing everything, brought her a new baby, and even painted a Christmas tree ❤️

Address

1306 Hilda Street
Vinton, LA
70668

Telephone

+13375633788

Website

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