06/14/2024
I’m going through a pretty huge grief period at the moment. We’ve come to the realization that it might be best for my physical and mental health to continue on the path towards total disability. That means giving up the career I’ve worked SO hard on for the last 15 years. That means trying to find something else to do with my life that is productive, but that my body and mind can handle. That means not knowing what my future holds.
The grief is unreal. I find myself breaking out into tears randomly. I feel like I’m losing my identity and my worth. I feel as though I’m looked at differently by friends and family ~ because on the outside I look healthy ~ but my body is failing me every day and the amount of pain I live with on a daily basis can’t be measured. My job is “easy” from what it seems. I work from home. I should be able to do that with my failing body, right? However due to the constant pain that can’t be controlled at the moment I cannot concentrate on ANYTHING, therefore I will not be able to meet the very strict productivity and quality standards my career entails.
Nobody knows what it’s like to be in my body. The nerve pain alone makes me want to cut my legs off every single day. The joint pain is just as bad. Pain is almost all I can think about ~ I can’t even read a book without having to reread whole paragraphs because I cannot focus.
I just wish more people understood what it was like to lose your entire life out of nowhere with no control over anything.