Adam’s Army - Helping to Take Out Ewing Sarcoma

03/22/2025

It has been ONE year since Adam ended treatment! So thankful to report his one year scans show NO evidence of disease. He’s feeling really good and has very few side effects. His neuropathy is improving and we are hopeful that will eventually go away. We will now enter year two of scans and those will be spaced out to every four months. He’s loving college life, too! GBR 🌽❤️. And as rare as Ewing Sarcoma is, we met a new family in the beginning of their journey with ES. So many memories came flooding back for Adam today. It was really neat to watch these two young men interact knowing they each know exactly what each other are going thru. They have a bond of being a part of a club neither of them wanted to join. Their strength and resiliency is incredible 💛💪.

We are so thankful to continue to be surrounded by an incredible army of support and love this past year. I didn’t know what to expect when treatment ended and we were on our own. I can tell you it’s been scary to only see the doctor every three months…when we were used to three times a week. The week before scans is debilitating. The unknown is scary. Today I felt like I was having a heart attack because I was so nervous to hear the results. Scanxiety is real. And many times I wonder..how are we the lucky ones when I hear of so many cases of recurrence. Survivors guilt is real. I want to move on. But it hasn’t been easy. I am trying to accept that I shouldn’t just desire to move on. Instead I should work hard to accept the profound change this has had on us. I need to stop running but instead sit with these emotions and really feel. I was relying on “time heals all wounds” but life didn’t go back to “normal” as much as I hoped it would. It probably never will. Recovering from treatment has been an ongoing journey and the only way to heal is to feel. ❤️❤️‍🩹❤️❤️‍🩹❤️❤️‍🩹❤️

02/04/2025

Today, February 4th, 2025 is World Cancer Day. Today the world comes together to take part in the fight against cancer. To honor the brave warriors, survivors, angels and family and friends who stand by someone with cancer. Cancer changes you forever. It never goes away. Neuropathy reminds Adam everyday of what he had to endure. I live between his 3 month scans. Then want to run away. Then back to normal and then it starts all over again in 90 days. Sharing some pictures of the last year. I remember each memory of that day when I see the picture’s. Adam does not.

The theme of this year’s World Cancer Day is “United By Unique”.

“Behind every cancer diagnosis is a unique human story—stories of resilience, grief,
hope, and healing. People-centred care means seeing the whole person and
meeting their unique needs with compassion and empathy. One story can inspire – many can change the world. “

https://www.worldcancerday.org





💪🏻🎗️

12/31/2024

9 month scans are clear!! 🎉💛🚫🎗️

Recently the Waconia Hockey Team posted pictures of their “I fight” signs for the upcoming Hockey Fights Cancer Day. And so many teammates wrote Adam’s name. I saw this and was overcome with emotion.

We are so freaking blessed with the most amazing ARMY of friends, family, community, co-workers and strangers.

These young men (and so many of you) still fight for Adam…9 months later. That means so so much to us. Because when you go into remission, you still fight. An exhausting energy of hoping, praying and remembering. We also stand by the rest of our Ewings community that are dealing with recurrence, excruciating pain and sadly the recent loss of life of three young adults that we follow. The fear never ceases, my heart absolutely breaks for anyone impacted by cancer ❤️‍🩹. Adam is getting better now and I am slowly working on getting better, too.

In November, we were surprised with Adam’s Make-A-Wish trip to Portland, Oregon to see Zach Bryan. What an amazing wish he was granted. We had so much fun and cherish the time we had together. We were also able to have a brief visit with my cousin and her family who live in Portland. It was a whirlwind of a trip. We can’t thank MAW enough for giving us this gift of time together and enjoying the music we all love.

How lucky are we? It’s been a hell of a year. “Well, the devil can scrap, but the Lord has won. And I'll talk to him on the rising sun.
His son rose and mine did too. I was coming down, but now I'm talking to you 'Cause we're havin' an all-night revival” - Zach Bryan 🤠

Wishing you and your Army good health, peace and happiness in 2025 💛.

09/27/2024

There is no evidence of disease!!

🎉Scans are clear🎉

09/24/2024

It’s scan week 🥹 I remind myself of one of the mantras I lived by during treatment…take life one cup at a time ☕️

The week before scans sucks. This week, I give myself permission for me to be ok with all my emotions as we prepare to relive all my anxious feelings…all over again. Having my favorite cold brew with pumpkin, helps.

Please say some extra prayers, for Adam!🙏😘💪

07/02/2024

Adam’s first post treatment scans are clear!! NO EVIDENCE of disease. So so grateful!! 💛🎉

https://new.caringbridge.org/site/c78fff39-731d-39cc-8c8b-0b5bf5c10496

06/08/2024

👨‍🎓 My son graduated from high school in 2023. Three days later we found out he had bone cancer. He had to take the biggest detour of his life, went thru complete hell and made it out in March 2024!

☕️ To celebrate we met family for coffee because we all lived by the motto “take life one cup at a time”

💛 We also got matching tattoos! We each wrote “I am with you” because we said that often. Mine is on my wrist where I wore an Adams Army bracelet. Adam’s is by his port scar.

🎗️ We are forever changed and forever grateful for every single day…every moment…and everyone who walked thru hell with us.

🌽 My hero is now ready to fly! He will be attending the University of Nebraska in Lincoln, this fall! I thought I would be sad when my first born left for college. But my views have changed. I am so excited to watch him grow. To live another day, months and years. To go to college, get married, have children and enjoy a long life!

05/15/2024

Swords ⚔️ up for Adam!! 🙌

05/06/2024

Today is Bereaved Mother's Day.

A mother who lost her daughter to Osteosarcoma posted this today. It’s breathtakingly and heartbreakingly beautiful.

💛💛💛💛💛

There’s an order that life is supposed to follow. An order of breaths we are supposed to take, as if we are passing a torch from one generation to the next.

And our torch is supposed to go out before our child’s flame is extinguished. We are supposed to watch them take their first breath. But not their last.

We are supposed to hear the thud-thud of their heart when it starts beating. But never the silence when it stops.

That heart that we once carried inside of us. That breath that we gave them. That life that we kept safe, protected.

So when the order of life is disrupted,
when their torch goes out before yours, it is as if you too have been robbed of your breath and as if your heart has stopped beating as well.

There is nothing that can make it less painful. You would blow out your flame if it meant theirs could burn.

But you can’t. Even though that’s how it should be. So all you can do is carry them inside you - like you did once before. Except now they have to stay in your heart forever.

And though it hurts, know that they are safe there. They are protected.

Because a mother’s love is unending.
Because it burns forever with every breath you take and with every beat your heart makes.

Because a mother’s love is a flame
that can never be extinguished.

04/11/2024

The port served Adam well, throughout his treatment, but now it's time to say goodbye 👋 GOOD RIDDANCE!!

Before he went into surgery, someone asked Adam “if you could give three pieces of advice to other young adults going thru what you have been thru, what would you say?”

He took a few minutes to think about the question and here is what he said:

1) Always keep a smile on your face.

2) Always listen to your Mom.

3) Build good friendships because your friends will help you get thru the hard times and keep you in check.

I loved that she asked this question and Adam shared his wisdom 💛🎗️💛

As a mom, sometimes I don’t want my kids to grow up. But my views have changed. I am so excited to watch my kids grow. To live another day, months and years. To go to college, get married, have children and enjoy a long life.

When you’ve witnessed your child do everything he’s told to do, to save his life from the cancer beast with no boundaries, your mind begins to wander and wonder how much time?

Throughout our journey, this was an awful way to live but a beautiful way to experience life.

Scans have been scheduled for the last week of June. Until then, I have turned my energy to walking again and hope to complete a walking half marathon in September! I love to walk and I think the marathon is a good resemblance of the past ten months of our lives. But this time, I will be ready.

Forever grateful

♥️, Katie

The port served Adam well, throughout his treatment, but now it's time to say goodbye 👋 GOOD RIDDANCE!! Before he went into surgery, someone asked Adam “if you could give three pieces of advice to other young adults going thru what ...

04/05/2024

Port going in (June 2023) vs port coming out (April 2024)! 🎉💥🎉 👋🎗️

04/05/2024

The port served Adam well throughout his treatment, but now it's time to say goodbye 👋 GOOD RIDDANCE 🚪