Contact information, map and directions, contact form, opening hours, services, ratings, photos, videos and announcements from PTC Therapeutics, Pharmaceutical Company, 500 Warren Corporate Center Drive, Warren, NJ.
PTC is a patient-centered biopharmaceutical company focused on discovering, developing & commercializing medicine for children and adults living with rare disease.
12/03/2025
Today, on PKU Awareness Day, we're honored to share Tracy's story.
Tracy is an astrophysicist and NASA contractor who has lived with classical PKU her entire life. Managing a strict low-protein diet, staying balanced while traveling, and navigating school and career demands have shaped her health journey, resilience, and discipline.
Learn more about how PKU has influenced Tracy's life and why advocacy continues to matter: https://bit.ly/4pQ8vND
11/22/2025
When Sarah Chamberlin's daughter was diagnosed with phenylketonuria (PKU), she channeled her experience into creating meaningful change for others living with this rare condition. Today, as the Founder & Executive Director of flok, Sarah continues to advance support and research for the inherited metabolic disorder community. Learn more about her journey: https://bit.ly/48e2i6P
10/23/2025
Aromatic L-amino acid decarboxylase (AADC) deficiency is a rare condition with complex physical and emotional challenges. This AADC Deficiency Awareness Day, we stand with families navigating AADC deficiency and honor their resilience and commitment to overcoming the challenges of this rare condition that is often misdiagnosed. For young Simone and his family, testing at a local hospital didn’t reveal the cause of his symptoms. It was only after traveling to a specialist children's hospital in Italy that they finally received the diagnosis that would change their journey.
Learn more about Simone's path to diagnosis and how has impacted his family: https://bit.ly/43nCt2w
09/25/2025
On this International Ataxia Awareness Day, we are honored to help raise awareness about Friedreich's ataxia ( ). As the most common hereditary ataxia, we recognize the strength of the FA community and shine a light on the brave stories of those living with this rare condition. Sam is a passionate writer whose life changed when he was diagnosed with FA. Learn more about his story and message for the community: https://bit.ly/3Vvnsrd
09/24/2025
The PTC team is excited to be onsite at the 39th European Society for Phenylketonuria and Allied Disorders Treated as Phenylketonuria (E.S.PKU) Annual Conference to hear from the community and to understand the impact of this condition for those living with PKU and their families. Meet us at our booth. See you there!
09/11/2025
Our CEO Matthew Klein, MD joined our team onsite at the recent National PKU Alliance Regional Community Conference in San Diego to hear from the community. A special shout-out to our PTC team who helped make our onsite activities a success.
09/07/2025
PTC is proud to support World Duchenne Awareness Day 2025 ( ). Today serves as an important reminder of the need to raise awareness about Duchenne muscular dystrophy.
08/29/2025
PTC Therapeutics is heading to the International Congress of Inborn Errors of Metabolism (ICIEM) September 2–6 in Kyoto, Japan. We invite you to stop by the PTC booth to learn more about how we’re advancing research and care for children and adults living with PKU through science and innovation.
08/26/2025
We are proud to host a scientific symposium at the upcoming International Congress of Inborn Errors of Metabolism (ICIEM2025). We look forward to connecting with health care professionals at the conference as we share the latest developments in the science and care for children and adults living with (PKU).
06/28/2025
Today we proudly recognize International PKU Day, led by ESPKU as a day to spread awareness and education about living with and highlight the many . A major aspect of living with PKU is dietary management, which impacts quality of life, from childhood through adulthood. For many, the journey involves navigating the complexities of medical formulas and the social dynamics of food-related gatherings.
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Everyone has a different definition of progress. For the last 20 years, we’ve measured our progress researching rare disease in moments. Smiling ones and crying ones. Moments spent with our patients’ families and ones with their friends. We know that every step forward comes after several steps backward, because we’ve lived it—whether spending time with families in their homes or with our scientists researching in our labs in central New Jersey.
It can be easy to lose yourself as you progress further. Although we’ve grown, our heart remains in the same place, because we’ve never measured ourselves like larger companies do. Our biggest accomplishment has always been the time we can give to all of our families. Whether it’s hours, days, months, or years, every small moment is a big win.
COMMUNITY GUIDELINES
Thank you for your interest in PTC Therapeutics. We’re happy you’re here! This Page is a place for community members to engage with us, learn about our corporate initiatives and programs, and participate in an open dialogue with other members of the PTC and rare disease communities.
We recognize the importance of the rights of individuals to voice their opinion on social media and find community. In order to ensure that these communications are positive and productive, we’ve created the following guidelines.
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The content posted on this Page is intended to inform you. It is not intended to be a substitute for professional medical advice, diagnosis or treatment. Please always consult your doctor.
PTC Therapeutics reserves the right to delete any posting at its sole discretion.
