Time=Lives

Time=Lives Time=Lives is an effort to elevate awareness of the human toll of a slow, inefficient research system and build support for speeding medical research.

Check out the Time=Lives campaign: http://timeequalslives.org/ Despite the billions of dollars flowing through our healthcare system, it still takes about 15 years, on average, to move a scientific breakthrough from microscope to marketplace. For the more than 100 million Americans living with cancer, Alzheimer’s disease, diabetes, Parkinson’s disease, heart disease, and others for which there are no cures and few meaningful treatment options, this is simply too long to wait. People are dying every day waiting for treatments and cures, and unless we fix the broad, systemic issues that are stalling progress, this won’t change. To save lives, we have to save time.

Following years of preparation and two previous attempts, Nick Talbot, the first person living with cystic fibrosis, rea...
05/13/2016

Following years of preparation and two previous attempts, Nick Talbot, the first person living with cystic fibrosis, reached the summit of Mount Everest! Congratulations, Nick!

Amazing achievement as County Durham man becomes first ever cystic fibrosis sufferer to conquer Mount Everest

03/09/2016

The problem MedNexus would solve is that most on-line information is irrelevant to what patients and caregivers need. "We’re building something like a medical Google,” the founder said.

06/15/2015

When 17-year-old Raymond Wang read about how easily some diseases spread on planes, he thought airlines could do better. So he went to work — and won $75,000 at the International Science Fair.

Ten years after his diagnosis, chordoma survivor, Bill Dorland, and his NIH oncologist, Dr. Chris Heery, go on StoryCorp...
05/07/2015

Ten years after his diagnosis, chordoma survivor, Bill Dorland, and his NIH oncologist, Dr. Chris Heery, go on StoryCorps to talk about the question that cancer patients often ask, “How much longer do I have?”

Professor Bill Dorland was 38 when he was diagnosed with chordoma, a rare cancer of the spine. Dr. Dorland participated in an NIH clinical trial and at the time of this recording was in ongoing partial response to treatment.

Awesome! Julia Rae Schlucter, an adult with Cystic Fibrosis, was just crowned Miss Philadelphia. Congratulations Julia R...
03/03/2015

Awesome! Julia Rae Schlucter, an adult with Cystic Fibrosis, was just crowned Miss Philadelphia. Congratulations Julia Rae!

When she was 6, Julia Rae Schlucter was assigned a child-life specialist at Children's Hospital of Philadelphia, where she was being treated for a lung condition.

LOVE seeing these kind of posts! Congratulations, Hannah, that's amazing news!
01/27/2015

LOVE seeing these kind of posts! Congratulations, Hannah, that's amazing news!

COMPLETE REMISSION for Hannah! We celebrate with you.

PS - we love the shirt!

In case you need a little feel-good to get your week started, watch this clip about the power of friendship.
01/26/2015

In case you need a little feel-good to get your week started, watch this clip about the power of friendship.

This first-grader found out that his best friend had cancer and decided to do something for him! Amazing

PATIENTS ARE WAITING. Help us spread the message that patients NEED to be at the center of medical research thndr.it/1sD...
11/14/2014

PATIENTS ARE WAITING. Help us spread the message that patients NEED to be at the center of medical research thndr.it/1sDFJMn

Engaging patients in medical R&D at all points of the system HAS to be a priority. Check out coverage from last month's ...
10/20/2014

Engaging patients in medical R&D at all points of the system HAS to be a priority. Check out coverage from last month's FasterCures Benefit-Risk Boot Camp to learn more how nonprofits, industry, and government are utilizing the patient perspective in clinical decision making.

In case you missed it: All of the great content, speakers, photos, slides and more from last month’s FasterCures Benefit-Risk Boot Camp

http://www.fastercures.org/r-and-d-policy/benefit-risk-assessment/boot-camp/

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