Navvi Binx

Navvi Binx Navvi’s support page for Infantile Stroke Awareness and Functional Hemispherotomy.

today is world cerebral palsy day and we use it to bring awareness to the most common lifelong motor disability. when Na...
07/10/2024

today is world cerebral palsy day and we use it to bring awareness to the most common lifelong motor disability.

when Navvi was 2 weeks old, we met with his PM&R doctor for the first time ever. at that appointment she told us that most likely down the road he would be given the label of Cerebral Palsy.

within the first year of his life, he was then given the true diagnosis: Left Hemiplegic Cerebral Palsy due to Hypoxic-Ischemic Encephalopathy

currently CP presents in Navvi mainly in his left arm & hand. he has no fine motor ability and struggles to use the arm/hand in many ways. every week he goes to OT & PT to work on his strength and ability in general with an emphasis on his left side. he has made HUGE progress and we are so proud of him every single day.

had the best time today at the walk! thank you to everyone who came and those who supported us from afar!
22/09/2024

had the best time today at the walk!
thank you to everyone who came and those who supported us from afar!

nav man is so excited to be sleeping in his big boy bed for the first time AND to see everyone tomorrow morning!! 🎉pleas...
21/09/2024

nav man is so excited to be sleeping in his big boy bed for the first time AND to see everyone tomorrow morning!! 🎉

please plan to arrive by 8:30am so that we are able to all get together as a group and take a photo before we begin the walk! don’t forget to wear your shirts!!

those of you supporting us from afar, and wearing your navvi shirt feel free to post a photo of you in the group 🫶🏽 we LOVE to see all the love for our little man 🥹

someone has been having a 💥BLAST💥 using their rental walker while we wait for his to come in!
10/07/2024

someone has been having a 💥BLAST💥 using their rental walker while we wait for his to come in!

08/05/2024

today at PT with Children's Wisconsin we did something new! 🎉

navvi took a “stroll” on the treadmill! he went for 2 sessions with a little break in between. making it to 5 MINUTES!!! 🥳🥳

•May is Pediatric Stroke Awareness Month•this month we honor our little warrior!saturday is the “technical” pediatric st...
01/05/2024

•May is Pediatric Stroke Awareness Month•

this month we honor our little warrior!
saturday is the “technical” pediatric stroke awareness day, and we ask that all who feel so inclined can either wear their Navvi support squad shirts or the color purple 💜

in September Navvi will be completing the heart/stroke 5K walk/run and we would love for you to join our team!! http://www2.heart.org/goto/navvibinx

if you are unable to attend with us, we are also accepting donations on Navvi’s behalf to American Heart Association here: https://bndfr.com/37YRQ

🎉🎉 NAVVI IS MEDICATION FREE 🎉🎉
02/04/2024

🎉🎉 NAVVI IS MEDICATION FREE 🎉🎉

happy easter from our little “honey bunny” 🐰
31/03/2024

happy easter from our little “honey bunny” 🐰

today is national cerebral palsy awareness day, and we celebrate our little warrior 💚
25/03/2024

today is national cerebral palsy awareness day, and we celebrate our little warrior 💚

when we wake up tomorrow, for the FIRST time in 𝟹𝟻𝟸 𝚍𝚊𝚢𝚜, this little warrior will NOT be taking a morning medication! 🎉...
01/03/2024

when we wake up tomorrow, for the FIRST time in 𝟹𝟻𝟸 𝚍𝚊𝚢𝚜, this little warrior will NOT be taking a morning medication! 🎉💜 we are one step closer to being officially med FREE!!

mama not only got all of my current patches on my cape, but also this super cool guy to hang it in my room!! thank you t...
14/02/2024

mama not only got all of my current patches on my cape, but also this super cool guy to hang it in my room!! thank you to everyone who supported me in getting my TinySuperheroes cape and my extra patches 🫶🏽💜 can’t wait to get more patches!

we are kicking off 2024 with a 💥BANG💥navvis EEG showed the left hemisphere is still CLEAR of seizure activity and we wil...
05/01/2024

we are kicking off 2024 with a 💥BANG💥

navvis EEG showed the left hemisphere is still CLEAR of seizure activity and we will begin to wean off his medication to officially be MED FREE by April 1!

Address


Website

Alerts

Be the first to know and let us send you an email when Navvi Binx posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Practice

Send a message to Navvi Binx:

  • Want your practice to be the top-listed Clinic?

Share

Share on Facebook Share on Twitter Share on LinkedIn
Share on Pinterest Share on Reddit Share via Email
Share on WhatsApp Share on Instagram Share on Telegram