Michael J Bartelt Marfan Syndrome Awareness

04/24/2022

The walk was today in Milwaukee ..

02/10/2022

Does your child want to help raise Marfan awareness?

Have them use this coloring page to remind people to know the signs:https://marfan.org/wp-content/uploads/2022/02/Marfan-Coloring-Page.pdf

02/07/2022

During the games, we can't help but think of Olympic silver medalist, Flo Hyman. When she died at the age of 31, no one knew she had Marfan syndrome. She is a reminder of how important it is to know the signs and spread awareness of Marfan syndrome.

02/05/2022

Want to tell your story about Marfan syndrome? Use our new social media filter to tell your story on Instagram and Facebook Stories.

Get started by clicking the link for Instagram (https://www.instagram.com/ar/1527491357637246/) or Facebook (https://www.facebook.com/fbcameraeffects/tryit/1527491357637246/). And then touch your screen to get a question to answer.

Be sure to tag us so we can share it!

11/16/2021

Nearly 25 years after Jonathan Larson lost his life to an undiagnosed aortic dissection, believed to have been caused by Marfan syndrome, his off-Broadway hit show, Tick, Tick… Boom! is coming to Netflix. Who else is excited to watch it from the comfort of their home on November 19? https://marfan.org/2021/11/11/tick-tick-boom-on-netflix-continues-the-legacy-of-jonathan-larson/

09/16/2021

Michael's uncle had Marfans..........

Did you inherit Marfan syndrome?

08/26/2021

Join the fight for Aortic Disease Awareness! Submit your pictures of you and /or your loved ones rocking your best orange attire to join the Aortic Disease Awareness Week (ADAW) Team. Photos submitted will be used in videos on our social media during ADAW (September 19-25).

Please make your submissions by September 10 to be included in the videos.

Any questions? Please email Dominga at dnoe@marfan. https://www.tfaforms.com/4924564

08/26/2021

Coming in September