Eastern Pennsylvania Bleeding Disorders Foundation

09/12/2025

Please join us for our next Webinar, Women with Sickle Cell: Reproductive Health Matters, on September 26th, in recognition of . Learn more & register here: https://www.fwgbd.org/events/women-with-sickle-cell-reproductive-health-matters

09/11/2025

Today we pause to honor and remember the lives lost, the heroes who stepped forward, and the resilience of our nation. September 11, 2001, will forever remain in our hearts.

09/10/2025

🏌️‍♂️✨ Thank You to Our Golf Classic Sponsors! ✨🏌️‍♀️

Our Annual Golf Classic was a tremendous success—and it wouldn’t have been possible without the generous support of our sponsors:

🌟 CSL Behring
🌟 Novo Nordisk
🌟 CVS Specialty
🌟 Haverford Trust

Because of their commitment, we are able to continue supporting and strengthening the bleeding disorders community. 💙

09/07/2025

"“Dismissed” not only raises awareness, but it also challenges the medical community to let go of its damaging assumptions. This film serves as a powerful educational tool and a catalyst for change. It reminds us that the bleeding disorders community must embrace everyone to be whole, and it encourages us to work toward this goal."

Columnist Cazandra Campos-MacDonald, after raising sons with bleeding disorders, now embraces the concerns of women with hemophilia.

09/03/2025

For too long, women in the bleeding disorders community have had their symptoms overlooked and their voices dismissed. Dismissed, a powerful new documentary from Believe Limited, shares these stories and calls for change.

🎥 Watch now: https://bit.ly/41BDW4p

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09/01/2025

🇺🇸 Today we honor the hard work, dedication, and resilience of workers everywhere. On this Labor Day, we also celebrate the strength of our bleeding disorders community—families, advocates, healthcare professionals, and volunteers who work tirelessly to support one another. 💙

Wishing you a safe and restful Labor Day filled with connection, gratitude, and joy!

08/21/2025

✨ This is a wonderful event for an even more wonderful cause!✨
All proceeds benefit the Eastern PA Bleeding Disorders Foundation, supporting individuals and families living with rare bleeding disorders. ❤️
We invite you to join us for a fun-filled day of competition and camaraderie — all while making a meaningful impact in our community!
👉 Don’t miss it! Our goal is 100 golfers!

Can't make it but interested in sponsoring? Please reach out to info@epbdf.org.

08/13/2025

July Policy Update: From $1 trillion in federal health cuts to key state wins on copay assistance, July brought major changes for the bleeding disorders community. NBDF is fighting to protect coverage, maintain funding, and safeguard patient rights.

📢 Stay informed and take action: https://bit.ly/3H6IAAA

08/12/2025

💙 Thank You, BioMatrix! 💙

We’re incredibly grateful to BioMatrix for supporting our Special Campaign to help families and individuals living with bleeding disorders.

Their generosity brings us closer to our goal — and with every donation matched dollar-for-dollar, the impact is doubled!

You can join BioMatrix in making a difference. Together, we can provide relief when it’s needed most.

👉 Donate today: https://givebutter.com/9WHbqn

08/11/2025

A new step forward in hemophilia B treatment: the first patient has received Be Biopharma’s investigational cell therapy, BE-101. This therapy aims to deliver long-lasting factor IX levels and bleed protection, potentially reducing or eliminating the need for regular infusions. This technology is supported by NBDF’s Pathway to Cures venture philanthropy fund.

Read more about this promising Phase 1/2 trial: https://bit.ly/3HjnajA

08/08/2025

The “One Big Beautiful Bill Act” could disrupt access to lifesaving care for thousands, including many in the bleeding disorders community. NBDF is standing with partners and advocates to oppose harmful provisions and protect access at the federal and state levels.

Learn how you can take action to protect coverage and care: https://bit.ly/3HbiT1G

08/06/2025

🏌️‍♂️ Tee off for a great cause!

Join us on September 9 at RiverCrest Golf Club for the EPBDF Annual Golf Classic — a day of great golf, good company, and giving back.

Your participation helps fund education, advocacy, and financial assistance for families living with bleeding disorders across Eastern PA.

⛳️ Beautiful course.
🎁 Raffles & prizes.
💙 Real impact.

Register today and make every swing count!
👉 https://givebutter.com/aujseS