Eastern Pennsylvania Bleeding Disorders Foundation

Eastern Pennsylvania Bleeding Disorders Foundation Contact information, map and directions, contact form, opening hours, services, ratings, photos, videos and announcements from Eastern Pennsylvania Bleeding Disorders Foundation, Medical and health, 937 Paoli Pike #1028, West Chester, PA.

The Eastern Pennsylvania Bleeding Disorders Foundation strives to bring together those affected by bleeding disorders in our 41-county coverage area through education, programming, advocacy, and financial assistance.

03/31/2026

There’s still time to join the movement.

When you join a Unite for Bleeding Disorders Walk by March 31st and raise $25, thanks to our partnership with CVS Specialty Pharmacy, you can win one of 10 Amazon gift cards.

Your participation helps amplify awareness and support for the bleeding disorders community.

Visit uniteforbleedingdisorders.org to register.

Already fundraising? Keep the momentum going; every share makes a difference.

03/31/2026

Today is Women Who Bleed Awareness Day, which shines a light on women and girls with inherited bleeding disorders like von Willebrand disease and rare factor deficiencies. Many experience heavy periods and years of delayed diagnosis before getting answers.

We are happy to celebrate the resilient women in our community, including patients, caregivers, advocates, and healthcare heroes, who are changing the future of bleeding disorders awareness and care!

Donate to honor a woman in your life at: https://wpbdf.org/donate/

03/27/2026

Are you registered for the Joey Smiles Advocacy Ambassador Education and Training? This two-day advocacy event will discuss hot topics in Pennsylvania and federal policy, how to share your story, and teach you how to advocate effectively. On day two, we will head to the state capitol to advocate for the needs of the bleeding disorders community!

This is an overnight training and advocacy day. Training begins at 3 pm on Sunday, May 3. On Monday, May 4, we will head to the PA state capitol where you will have the opportunity to meet with your local legislators. Transportation assistance is available upon request. To register, email rsvp@wpbdf.org to receive the registration form.

03/27/2026

NBDF is hosting a high-energy livestream packed with live music, bold conversations, community voices, and real-time connection.

This is your front-row seat to what’s happening right now in the bleeding disorders community.

Show up. Tune in. Be part of it.
🔗 Learn more at: https://bit.ly/46wBui2

03/27/2026

Turn the volume up, we’re bringing the energy.

March 28 is all about conversation, connection, and live music as NBDF goes live for a one-of-a-kind national event. From powerful community stories to expert insights and live performances, this is your night to tune in and feel the impact.

🔗 Learn more at: https://bit.ly/46wBui2

03/24/2026

🚨 Call On Your Lawmakers! Ask Them to Support the FY 27 Appropriations Dear Colleague Letter!

Federal bleeding disorders programs at agencies within the US Department of Health and Human Services (including HRSA and CDC) support care, research, and public health monitoring for bleeding disorders. We want to ensure that funding continues for these vital programs in the coming year. Please call on your lawmakers to sign a Dear Colleague letter supporting funding for the HRSA and CDC programs in fiscal year 2027. The letter closes tomorrow, March 25th, so your quick action is appreciated!

Send an email with one click at: https://bleeding.quorum.us/campaign/158467/

03/19/2026

Update for the hemophilia B community.

CSL Behring has announced a temporary global stockout of HEMGENIX. The company states the disruption is not related to safety or effectiveness, but to manufacturing complexity and regulatory standards.

Some individuals may experience delays in access.
If you have questions about your care, please contact your hemophilia treatment center or provider.

Read more: https://bit.ly/4sXZdke

03/19/2026

We’re bringing our entire community together for a night of energy, music, real talk, and powerful moments you won’t want to miss. Come for the music.

Stay for the message.
Leave feeling connected.

🔗 Learn more at: https://bit.ly/46wBui2

03/17/2026

Be part of a Unite for Bleeding Disorders Walk. Join in the Bleeding Disorders Recruitment Campaign in partnership with CVS Specialty Pharmacy to help amplify engagement and impact.

Register today at uniteforbleedingdisorders.org.

Already signed up? Keep sharing your page and invite others to walk alongside you.

Interested in supporting the advocacy efforts of the Pennsylvania Bleeding Disorders Foundations? Looking to learn more ...
03/13/2026

Interested in supporting the advocacy efforts of the Pennsylvania Bleeding Disorders Foundations? Looking to learn more or need a refresher on our current legislative issues? Join us for the Joey Smiles Advocacy Ambassador Education and Training in Harrisburg! Following the training, we will head to the state capitol to meet with legislators to advocate for the needs of the bleeding disorders community.

Register today by emailing rsvp@wpbdf.org or call the Foundation office at 724-741-6160.

03/13/2026

BioMarin has announced it will withdraw the gene therapy ROCTAVIAN from the U.S. market, with availability continuing through the end of May.

ROCTAVIAN marked a major milestone as the first approved gene therapy for adults with severe hemophilia A. While access challenges influenced this decision, the research behind it represents decades of progress.

NBDF remains committed to supporting innovation and access for our community.

Learn more: https://bit.ly/4b3mdIo

Address

937 Paoli Pike #1028
West Chester, PA
19380

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

Telephone

+16107705215

Website

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