05/01/2026
May is Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorder Awareness Month!
This is a cause that is both professional and deeply personal to our Office Manager Shannon.
“I live with Hypermobile Ehlers-Danlos syndrome, along with related conditions including Postural Orthostatic Tachycardia Syndrome (POTS), orthostatic intolerance, and Mast Cell Activation Syndrome. Like many people with EDS, I’ve had multiple orthopedic surgeries and expect more in the future—but today, I want to focus on something that’s often overlooked: VISION.
Ehlers-Danlos syndrome affects connective tissue throughout the body, including the eyes. Across all 13 known subtypes, patients may experience a wide range of visual and ocular challenges.
These can include:
- Blurry or fluctuating vision due to unstable focusing
- Myopia
- Astigmatism
- Strabismus
- Binocular vision dysfunction
- Poor convergence and tracking difficulties
- Light sensitivity and visual fatigue
- Dry eye syndrome
- Fragility of ocular tissues, including the sclera and cornea
- Increased risk of keratoconus (corneal thinning)
- Vitreous floaters and early vitreous changes
- Difficulty with depth perception and spatial awareness
What’s important to understand is that many of these issues are not always obvious in a standard eye exam—but they can significantly impact daily life, learning, and quality of life.
That’s where what we do here truly matters.
At the Vision Therapy Institute, we have the opportunity to recognize these patterns, support functional vision, and help patients—many of whom may not yet have answers, may not feel seen, understood, or cared for.
So, this month, I encourage all of us to keep Ehlers-Danlos syndrome in mind when evaluating visual complaints, to listen closely to our patients, family members and friends, and to continue being advocates for comprehensive, compassionate care.
Thank you for taking a moment to recognize this important awareness month with me.