Pediatric Pain Warriors

12/13/2025

Don’t miss this chance — registration is open!

The Headache Alliance, U.S. Pain Foundation, and CHAMP are teaming up to uplift kids and teens living with migraine—or those who have a parent with headache disease.

Join our youth advocacy track at Headache on the Hill 2026 in Washington, D.C., February 9–10, with creative workshops and hands-on training. No experience needed — just a desire to speak out and be heard.

If your child wants to use their voice to create change, please APPLY BY December 15.

👉 Apply here: https://forms.allianceforheadacheadvocacy.org/a/hoh2026

12/03/2025

💙 We did it — together! 💙

Yesterday, this community raised an incredible $3,225 for Pediatric Pain Warrior Family Summer Camp!

To everyone who gave, shared, or cheered us on — thank you. Because of you, kids living with chronic pain will laugh, play, connect, and build friendships in ways that simply aren’t possible anywhere else.

You didn’t just donate.
You gave hope. You gave community. You gave families a place to belong.

From the bottom of our hearts — thank you. And if you missed Giving Tuesday, there’s still time to give: https://uspainfoundation.org/campgiving/

12/03/2025

🔥 FINAL PUSH: Help us open the cabin doors! 🔥

We’ve already raised $2,500 — that’s halfway way to sponsoring the Alamo Cabin for 2+ families, and 25% toward our $10,000 stretch goal!

But there’s still time today to change a child’s life.

Every dollar brings us closer to giving families a week filled with: ✨ Support ✨ Laughter ✨ Friendship ✨ Relief

For many of our families, camp is the first time they don’t have to explain their child’s pain. The first time their kids feel “normal.” The first time they feel truly seen.

⏰ Midnight is the deadline. Let’s make sure those cabin doors swing open for families who need hope.

👉 Donate now: uspainfoundation.org/campgiving

12/02/2025

🌟 This Giving Tuesday, YOU can change a child’s story. 🌟

Imagine telling your child they can’t go to birthday parties because of pain. Imagine watching them miss school, friendships, memories. Imagine wishing someone understood.

That’s why Pediatric Pain Warrior Family Camp exists.

Your gift doesn’t just send a family to camp.
-It gives them joy.
-It gives them community.
-It gives them a moment to breathe again.

We’re already 17.5% of the way to our $10,000 goal!

👉 Every share, every donation, every act of kindness brings us closer. Give today: https://uspainfoundation.org/campgiving/

12/02/2025

Give them more than a camp. Give them a chance to be kids — and to laugh again.

Some children spend their summers at the pool or playing outside.
For kids with chronic pain, summer often means more doctor appointments, sleepless nights, and isolation.

That’s why our Pediatric Pain Warrior Family Summer Camp matters. It’s a place where families find connection, community, and hope — at no cost to them.

This Giving Tuesday, your donation can help make our 2026 camp possible for more kids with pain and their loved ones.

🎯 Goal: $5,000 = 2+ families
🎯 Stretch Goal: $10,000 = 4+ families

👉 Donate today (be sure to select “Pediatric” as your gift type): https://uspainfoundation.org/campgiving/

12/02/2025

Giving Tuesday is here! Help us make the 2026 Pediatric Pain Warrior Family Summer Camp a possibility for more families!
Donate to help cover the cost of cabins!

https://uspainfoundation.org/campgiving/

Make sure to select Pediatric as the gift type!

Help us reach our goal of $5000!

11/27/2025

Today, we celebrate you! Your strength, your courage, and the way you continue to shine even on the toughest days. Every one of you inspires us with your resilience, your compassion, and the unstoppable hope you carry into the world.

As we gather with loved ones, we’re especially grateful for this community. For the families who support one another, for the advocates who lift every voice, and for the warriors who remind us what true bravery looks like.

May your day be filled with comfort, warmth, and moments of peace. From our Pediatric Pain Warrior family to yours, we wish you a beautiful and Happy Thanksgiving~ Casey🧡🍁🦃

11/12/2025

Good morning to all my amazing pediatric families- we have an immediate need. The vote is today at 5pm and Congress needs to hear your voices before this takes place. Please take a few minutes to send this letter to help the millions of Americans who use this treatment.

Thank you in advance~ Casey

Parents and families—we need your voice!

Congress is considering a proposal that would severely restrict access to full-spectrum h**p products—safe, federally legal options that millions, including children and teens living with chronic pain, seizures, PTSD, and anxiety, rely on to feel better and live fuller lives.

This is a critical moment. Kids with pain deserve access to every safe, effective, and science-backed tool available.

We’re asking for just 2 minutes of your time to speak out. The letter to lawmakers is already written—you can personalize it with your story if you’d like.

👉 https://www.votervoice.net/USPF/Campaigns/131466/Respond

Every voice counts—especially when we're speaking up for our children. 💙

11/12/2025

Parents and families—we need your voice!

Congress is considering a proposal that would severely restrict access to full-spectrum h**p products—safe, federally legal options that millions, including children and teens living with chronic pain, seizures, PTSD, and anxiety, rely on to feel better and live fuller lives.

This is a critical moment. Kids with pain deserve access to every safe, effective, and science-backed tool available.

We’re asking for just 2 minutes of your time to speak out. The letter to lawmakers is already written—you can personalize it with your story if you’d like.

👉 https://www.votervoice.net/USPF/Campaigns/131466/Respond

Every voice counts—especially when we're speaking up for our children. 💙

10/17/2025

Don't miss this event in the Phoenix area! Register today to join us on Saturday, October 25, from 9:30 a.m.–3 p.m. MT at Phoenix Children's Hospital for a one-day program for kids and families living with chronic pain, migraine, and headache disorders.

Throughout the day, you'll connect with others, learn coping strategies, and access valuable education and creative activities. Lunch will be provided.

Register today! https://www.milesformigraine.org/family-programs/family-education-series-phoenix/

09/28/2025

Caring for a child with chronic pain comes at a high cost—emotionally, physically, and financially.

In our national survey:
▪️ 41% of parents said they had to stop working due to caregiving responsibilities
▪️ 43% of families spend more than $5,000 out-of-pocket on their child’s pain care each year
▪️ 51% had to decline at least one treatment because of cost

That’s not just lost income—it’s lost stability, lost opportunity, and often, a loss of identity. No one should have to choose between relief and rent. Between care and groceries. Between pain and survival.

These parents aren’t stepping back—they’re stepping up. And too often, they’re doing it alone.

Let’s unmask the financial toll families face when pain care isn’t accessible.

Because pain is more than a chart. It’s a life.

These findings come from our national survey. See how cost shapes care:https://uspainfoundation.org/wp-content/uploads/2025/09/final_What-It-Truly-Means-to-Parent-a-Child-or-Teen-with-Chronic-Pain-2025.pdf