Pediatric Pain Warriors

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Pediatric Pain Warriors

Pediatric Pain Warriors was developed to create community and resources for Children with Chronic Pain, their siblings and their Parents/Caregiver.

03/22/2026

Casey Cashman was honored to collaborate with Texas Children's Hospital - West Campus bringing together 15 incredible families for our Texas Children’s Community Day 💙

It was a day filled with education, connection, and meaningful community building—creating a space where families could come together, share experiences, and feel understood.

A special highlight was hearing from our very own Lanie Henry, who inspired everyone with her powerful pain journey. Her courage and honesty reminded us all that no one walks this path alone.

We hope each family left with new knowledge, a stronger sense of belonging, and most importantly—validation. Your stories matter. Your voices matter. And this community is always here for you.

03/20/2026

It was incredible being in Pittsburgh for the National Association of Pediatric Nurse Practitioners conference!

We loved connecting with so many passionate providers, sharing our resources, and continuing to build meaningful relationships. Every conversation brings us one step closer to expanding our reach and advancing our mission to support pediatric pain warriors and their families.

We loved collaborating with Jody Thomas of the Meg Foundation to truly show how important education on pediatric pain is!

Grateful for the opportunity and excited for what’s ahead!

03/19/2026

Texas families — join us in Houston Saturday for a day of education, community, and empowerment. There's still time to sign up! We hope to see you there. 🩵

Register here: https://forms.office.com/Pages/ResponsePage.aspx?id=UHZPhkXFdE-aK7VHBcA1d09pBAGIWupJv7jYUcSFvaNUMjFDWTVPWlJZOTZGMkNSU0U0S0NLNDFFOS4u

03/17/2026

We are beyond proud of Jacob Smith for courageously sharing his personal journey of living with fibromyalgia at the Society for Pediatric Pain Medicine Conference in Denver, Colorado last week.

By opening up about the realities of chronic pain, Jacob gave physicians a powerful and deeply human perspective—one that can’t be found in textbooks. His voice is helping bridge the gap between clinical understanding and lived experience, reminding medical professionals what the pain journey truly looks and feels like.

Moments like this create change. They build empathy, improve care, and bring hope to so many others walking a similar path.

Way to go, Jacob! We are so proud of you for using your voice to make a difference.

Director of the Pediatric Pain Warrior Program, Casey Cashman exhibited handing out all the resources the program has to offer!

03/13/2026

🌟 Final Days to Apply! 🌟

Time is running out to register for the 5th Annual Pediatric Pain Warrior Family Summer Camp! Applications will officially close on March 15th, so be sure to submit yours before the deadline.

This special week is designed to bring together pediatric pain warriors and their families for connection, support, and unforgettable memories. 💙

If you have any questions, please reach out to Casey Cashman at casey@uspainfoundation.org.

We can’t wait to see the incredible families who will be joining us this summer! ⛺✨

Apply here- https://www.ultracamp.com/clientlogin.aspx?idCamp=1569&campCode=A2W

03/07/2026

Exciting News for Pediatric Pain Warrior Families!

We are thrilled to announce the 5th Annual Pediatric Pain Warrior Family Summer Camp, taking place June 21–25, 2026 at Morgan’s Camp in San Antonio, Texas!

This five-day, four-night experience is designed exclusively for Pediatric Pain Warriors (under 18) and their families. Throughout the week, families will enjoy an unforgettable camp experience filled with activities like equine therapy, ropes courses, swimming, and more—all in a supportive, ultra-accessible environment where everyone can participate.

Camp isn’t just about fun. Families will also take part in educational sessions and peer-led support groups, creating a space to connect with others who truly understand the chronic pain journey. Our goal is for every family to leave camp feeling supported, empowered, and reminded that they are not alone.

💙 The U.S. Pain Foundation covers the cost of camp, though families are responsible for travel.
🏕 Space is limited.
📅 Applications are due by March 15, 2026, and families will be notified by the end of March.

If your family would like to be part of this incredible week of connection, support, and joy… we encourage you to apply today!

We cannot wait to welcome you to camp and continue building this amazing community together. 💙

Apply here- https://www.ultracamp.com/clientlogin.aspx?idCamp=1569&campCode=A2W

03/06/2026

Living with chronic pain can add an extra layer of complexity when you're applying for Social Security (SSA) disability benefits.

Don't miss a FREE webinar at 1 p.m. ET on Thursday, March 12: Preparing for Your Social Security Disability Claim. An experienced disability attorney will discuss medical and functional evidence for applications, tips for communicating with representatives, and common pitfalls that can delay approval. Plus, you'll hear from an individual living with pain who has learned the struggles of this process firsthand.

This webinar, the second in a two-part series, is designed for individuals who are considering applying for SSA benefits or are already navigating the Social Security disability process.

🔗 Register today: https://us02web.zoom.us/webinar/register/WN_ZsQuwaVhSgqFRzrhdIeVyw

03/05/2026

When chronic pain affects your ability to work, navigating long-term disability benefits can feel like a full-time job—one you were never trained for.

Join us at 1 p.m. ET on Tuesday, March 10, for a FREE webinar, Preparing for Your Long-Term Disability Claim. Hear from experienced disability attorneys about the key steps to prepare and file a successful employer-based Long-Term Disability (LTD) claim. Learn about the common mistakes that lead to denied claims and ways to protect your rights—and hear a firsthand account of the process from someone living with pain.

This webinar is ideal for individuals who are currently working, considering a leave or exit strategy, or preparing to file an LTD claim.

👉 Register today: https://us02web.zoom.us/webinar/register/WN_o-sys8gyQOyFvGokb7L4Xg

03/02/2026

"Despite the enormous burden and ubiquity of acute and chronic pain in the U.S., the reality is that we have a paucity of effective treatment options."

A proposed bill could help change that for Rhode Island residents.

On March 3, the Rhode Island House Health and Human Services Committee will hold a hearing on H7628. This multidisciplinary pain payer coverage bill would require health carriers in Rhode Island to expand access to a wide range of covered, evidence-based pain treatments so patients can receive individualized, multidisciplinary care.

Thank you to Rep. Susan Donovan, Chair of the Committee, for her leadership. We’re also proud to announce that U.S. Pain advocate and Rhode Island resident Ellen Lenox Smith will testify during the hearing to share why access to comprehensive pain care matters.

We strongly support H7628 and urge Rhode Island lawmakers to move this impotent legislation forward, helping ensure people living with pain have meaningful access to multidisciplinary, patient-centered care.

Read U.S. Pain’s full written testimony here: https://uspainfoundation.org/wp-content/uploads/2026/02/US-Pain-Foundation-Testimony-RI-H-7628-FINAL.pdf

02/28/2026

We are so proud to share that Casey Cashman, Director of Pediatric Pain Warrior, alongside one of our amazing camper families — Lacie Rae and Joshua — served as keynote speakers at the American Camp Association Medical & Disability Kindred!

Together, they shared something we know deeply in our hearts: camp is not just a getaway — it is part of the care plan.

They spoke about how specialized summer camp:
✨ Creates a space where children living with chronic pain feel safe and secure
✨ Gives parents the rare gift of being surrounded by others who truly understand
✨ Builds confidence, independence, and lifelong friendships
✨ And most importantly — provides validation

Validation that their pain is real.
Validation that they are not alone.
Validation that they belong exactly as they are.

Lacie and Joshua courageously shared their family’s journey and how camp has impacted not just one child — but their entire family unit. Casey spoke about the responsibility and privilege of creating a space where every camper feels seen, heard, and believed.

When we say camp changes lives, we mean the whole family.

We are beyond grateful to the American Camp Association for elevating the voices of pain warriors and recognizing that camps serving medical and disability communities are not extras — they are essential.

Here’s to continuing to advocate, educate, and ensure that every child living with chronic pain has access to a place where they are safe, supported, and truly understood.

01/28/2026

📢 We Need Your Voice Today. 💬

Access to safe, non-intoxicating h**p-derived products—including CBD—is at risk for the millions of people living with pain, PTSD, seizures, insomnia, and more who rely on these products for relief, stability, and hope.

But the H**P Act, federal legislation proposed by Representative Morgan Griffith (R‑VA), would create clear, national standards for h**p products intended for human use.

We need your help to ensure this bill moves forward. Please take a moment today to ask your members of Congress to support and co-sponsor the H**P Act. This link provides email content, phone scripts, and contact information.

It only takes a minute: https://impact-cw.nationbuilder.com/protect-h**p-access

Your voice, and your story, can help preserve access, promote safety, and safeguard lives.

**p **PAct

Address

15 North Main Street, Suite 100
West Hartford, CT
06107

Website

https://uspainfoundation.org/pediatricpainwarriors/

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