Functional with FND

Functional with FND My page is dedicated to supporting and educating people about Functional Neurological Disorder (FND).

Big shout out to my new rising fans! Helen Harding
05/02/2026

Big shout out to my new rising fans! Helen Harding

Returning to the HospitalI did something that required every tool, every skill, and every bit of courage I’ve been build...
04/30/2026

Returning to the Hospital

I did something that required every tool, every skill, and every bit of courage I’ve been building. After group, I rested, and then my friend L came over. We talked for a while, and I realized I felt strong enough to visit my friend J in the ICU after his heart surgery. This meant going back to the hospital where so much of my trauma lives — a place my body still reacts to instantly.

When we arrived at the main entrance, I froze. Panic hit fast and hard. I cried. L stayed beside me and offered her hand, and the moment I took it, I felt myself come back into my body. That grounding let me take the next step.

Inside the foyer, everything in me was firing at once — fight, flight, and freeze. I paused and used the tools I’ve practiced: breathing, humming, orienting to the environment, putting my thoughts on trial, and letting Linda distract and support me. We moved slowly, letting my system adjust instead of forcing it.

Walking down the hall, I noticed how much had changed since I was last there. The hallway felt long and dizzying, so we stopped again. I leaned against the wall and reminded my body that I was safe.

When we reached J’s ICU room, we sat quietly until I felt settled enough to open my eyes. Seeing him sitting up, looking strong, made me cry with relief. We talked for an hour. My symptoms stayed active — tremors, rocking, stuttering, nausea — but I stayed present. I stayed in the room. I stayed with him.

When we left, something in me wanted to go further. I asked to walk to the OR doors. L held my hand the whole way. I squeezed hard, and she squeezed back. Hearing the names of people I love — N and K— gave me the push I needed.

Inside the OR area, I saw them both. The shock, joy, and love on their faces hit me deeply. We hugged, we talked, and for a moment I felt like I had stepped back into a part of my life I’ve been grieving. My body eventually started to shut down, and I knew it was time to go.

Walking out of the hospital, hand in hand with someone safe, I felt relief wash over me. My system finally began to calm.

And then something important became clear:
I am not ready to work in a hospital environment yet.
Not emotionally, not neurologically, not physically. Being there showed me how much activation still lives in my body, how quickly my system overloads, and how much support I still need to stay regulated in that setting.

This wasn’t discouraging — it was honest. It helped me see the gap between where I am and where I want to be. I realized I have a long road ahead before I can function safely and sustainably in the hospital I love. There is still a lot of work to do: rebuilding tolerance, practicing exposure in small steps, strengthening my regulation skills, and continuing trauma work.

But this day also showed me something equally true:
I can face the places that hurt me without abandoning myself.
I can use my tools. I can honor my limits. I can let safe people support me. I didn’t erase the fear — I walked with it. And that is real progress.



🌿 Support Sunday — This Week We’re Exploring “What Is FND?” 🌿  If you’re newly diagnosed with FND, feeling overwhelmed, ...
04/29/2026

🌿 Support Sunday — This Week We’re Exploring “What Is FND?” 🌿

If you’re newly diagnosed with FND, feeling overwhelmed, confused, or just trying to understand what’s happening in your body, you’re especially invited to join us this week.

FND can feel like a puzzle with missing pieces. You deserve a space where you can learn gently, ask questions without pressure, and be surrounded by people who truly get it.

🕐 When: Sunday at 1 PM MST
💛 Who: Anyone living with FND or supporting someone who is
🌱 Topic: A beginner‑friendly, compassionate look at “What is FND?”

Whether you want to talk, listen, or simply sit quietly and take it all in, you’re welcome exactly as you are. No expectations. No judgment. Just community, understanding, and support.

If you’ve been feeling alone in your diagnosis, this is a safe place to land.

Functional with FND: Where Understanding Meets Strength.

https://discord.gg/gWUjjrUR6c

https://open.spotify.com/track/5A5W7S3lYCBIAB7FOKeeUF?si=-UTeUNNjTxqwHOUgXL1ATg

Big shout out to my newest top fans! 💎 Emma Ogden, Ingrid ErvikDrop a comment to welcome them to our community,
04/26/2026

Big shout out to my newest top fans! 💎 Emma Ogden, Ingrid Ervik

Drop a comment to welcome them to our community,

Shout out to my newest followers! Excited to have you onboard! Sarah Millard, Patrycja Tomczak, Margaret Mary Hughes, Ri...
04/26/2026

Shout out to my newest followers! Excited to have you onboard! Sarah Millard, Patrycja Tomczak, Margaret Mary Hughes, Rick Widener, Kla Edward Toomey II, Jodie Watkins, Char McCain Miller, Graeme Otway, Ali Sboula, Fatimah Ali, Zara Davies, Honesty Jane Hickman, Brandon Goodman, Shae Monhollen, Raven Rose Quartz

04/26/2026

The pursuit of perfection is one of the most effective ways to sabotage real change.

Research on goal setting and behavior change consistently shows that rigid, all-or-nothing approaches lead to burnout, abandonment, and shame. Flexible, forgiving approaches lead to lasting success.

A 47-year study on physical activity found that consistency mattered more than intensity. A 2025 systematic review on plant-based eating found that the greatest health benefits came from sustained patterns, not perfect adherence.

In my practice, patients often quit when they have one "bad" day. They eat the cookie. They skip the workout. They miss the meditation. And then they think: "Well, I've failed. Might as well give up."

No. One cookie is not failure. One missed workout is not failure. Real failure is when you let one slip become a permanent stop.

Here's the mindset shift: you are not trying to be perfect. You are trying to be mostly good, most of the time, for the rest of your life.

That looks like: eating well most days. Moving most days. Sleeping well most nights. Being kind to yourself most of the time.

The goal isn't 100 percent. The goal is 80 percent, sustained for decades.

In my practice, I tell patients: drop the perfectionism. Pick up the persistence. One is a prison. The other is a superpower.

Progress isn't a straight line. It's a mostly-forward squiggle. And that's enough.

What's one area where you've been too hard on yourself?

🌷 Tulip Festival 5K — Where Understanding Meets StrengthBy: LeElla CallToday I ran a 5k.  Not just any 5k — the Tulip Fe...
04/25/2026

🌷 Tulip Festival 5K — Where Understanding Meets Strength
By: LeElla Call

Today I ran a 5k.
Not just any 5k — the Tulip Festival Run.
And from the moment we walked toward the start line, I could feel the energy buzzing through the air. My leg kept kicking like a counting horse, and I kept telling my mom, “Can you feel that? The energy is wild.” We laughed every time my right leg kicked from the dissociation symptoms — because sometimes laughter is the only way to stay grounded.

But when we reached the start line, the crowd hit me like a wave. The excitement, the noise, the movement — it was so intense I nearly froze. My FND symptoms surged, my body je**ed, and for a moment I wasn’t sure I could do it.

Then my friend stepped up beside me.
He ran with me the entire time — steady, calm, keeping me safe and balanced.

Mile 1:
11 minutes.
All downhill.
All adrenaline.

Around 1.5 miles:
My body started to struggle.
The symptoms flared hard.
I had to stop.

So I did what I’ve learned to do:
I touched the grass.
I used cold.
I grounded myself.
I breathed.
I let my nervous system settle instead of fighting it.

It took 5–10 minutes, but I got back up.

And then — because it’s me — I got distracted by all the fun photo ops.
We literally stopped to smell the tulips.
(Yes, I made the pun. Yes, I cracked myself up.)

Mile 2:
I saw my mom.
She cheered with tears in her eyes.
Her voice gave me enough strength to run again.

Mile 3:
My sweetheart was waiting.
He high‑fived me and told me he was proud.
My mom saw me struggling and ran with me almost to the end.

Then I heard it — a booming voice:
“You got this, LeElla!”

My brother.
I looked over, started crying, and pushed myself across the finish line.

And then my body crashed.

I made it to the grass and had a seizure.
When I came out of it, I tried to sit up, spoke a few words, got dizzy, and blacked out.
It took 45 minutes before I could even walk to the car.

We tried to go to breakfast, but I could feel another crash coming.
We canceled and went to my mom’s instead.
I had three more seizures in the car.

When we finally got home, I napped for two hours.
When I woke up, both legs were paralyzed.
I tried to stand and couldn’t.
Mom grabbed the walker, helped transfer me, and pushed me to the bathroom.

And through all of it, one thought kept repeating:

I am so lucky to have this kind of support.
And I want to build this kind of support for others.

Because today wasn’t about speed.
It wasn’t about placement.
It wasn’t even about running.

Today’s goal was simple:
Get into the crowd.
Use my tools.
Let my body try.
Let my people help.
Finish what I started.

I had bilateral calming music in my ears.
Sour candies.
Gloves and a hat to keep my body warm.
A whole team of people who love me.

And my body — despite everything — carried me across that finish line.

My last race was the Hapaulua Half Marathon in Hawaii in 2022.
That race was a dream.
This one was a victory of a completely different kind —
just as meaningful, just as hard‑won.

I refuse to let FND wear me.
I will wear my FND.

whereunderstandingmeetsstrength






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04/21/2026

What do you wish you were told when you first was diagnosed with FND?

04/21/2026

Hey friends, I want to share this video. I’ve had the most stressful week — all the ups and downs you can imagine, including losing my job. My symptoms are flaring and it feels a lot like a few months ago. But I know I’m not sliding backwards. My body is overwhelmed and overstimulated, and it knows how to come back down.
I’m listening by slowing everything way down, checking in with my breath, noticing what feels too much, and giving myself quiet space. I’m taking the rest of the day to let my system calm and to support it in the ways it’s asking for.

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West Haven, UT

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