Living with Hypokalemic Periodic Paralysis

Living with Hypokalemic Periodic Paralysis Hopeful Zebra Documenting my journey with ATS Hypokalemic Periodic Parslysis. Retired Nurse, Advocate, Wife,Mom… trying my best to give back!!

11/25/2025

not finished but we will see how it turns out.

10/06/2025

Celebrating my 5th year on Facebook. Thank you for your continuing support. It has been a raw ride. Thank you everyone who learned tuned in to learn something…and shared it. Hopefully this is just the start🦓❤️

10/04/2025

5 years ago I started documenting my treatment and journey with this disease!!
Wow.
DISCLAIMER.
THIS IS NOT AN AD SPONSOR OR ENDORSEMENT

09/20/2025

Help save a Life

Tips for being sick and proactive
08/22/2025

Tips for being sick and proactive

Check out RareAdvocateJamie’s video.

I’m excited to announce that I’ve completed my Patient LeaderCertification at the . The program covers the bestpractice...
08/14/2025

I’m excited to announce that I’ve completed my Patient Leader
Certification at the . The program covers the best
practices in powerful storytelling, meaningful engagement, and responsible patient
leadership. I’m looking forward to taking the next steps in my Patient Leader journey
and making a real impact in the lives of others!

Let’s go for rare disease!!!

Putting it on canvas! Almost Done!
08/06/2025

Putting it on canvas! Almost Done!

07/30/2025

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West Salem, OR

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