Dysautonomia Darkside

03/05/2025

https://www.houstonmethodist.org/leading-medicine-blog/articles/2024/oct/an-emerging-disease-cluster-links-pots-mcas-and-hypermobility-to-severe-gi-symptoms/

A new Houston Methodist study connects postural orthostatic tachycardia syndrome, hypermobility spectrum disorders and mast cell activation syndrome with severe GI symptoms.

08/04/2023

Working on the idea of putting poles together. Not sure how they work. 1st... who has standard Dysautonomia vs. Hyperandrogenic?
Do you Faint or loose complete consciousness? Or Stay semi-conscious and feel everything?

08/03/2023

I would like to welcome anyone who has chosen to join my page.
*** First and most important, I am not a Doctor.
***I will not give Medical opinion or diagnosis, and this page isn't for that purpose.
***We can set up a section on Doctor recommendations by area.
***We can discuss symptoms and our experiences. You are welcome to offer positive suggestions and support to others.
*** You are free to ask questions, but let's be kind. Many are suffering in lots of different ways.

**Please feel free to post funny memes. We can all use more humor.
Lots of love and gentle hugs.

08/03/2023

I have EDS which is know by the image of a zebra. The thought is that when a doctor hears hoof beats not to assume horse. Sometimes it's actually a zebra. I thought about it. My condition is unusual even to the unusual. I decided we are more like a unicorn. When I start adrenaline dumping I actually feel like I could circle the earth a few hundred times...
Winged Unicorn?

08/03/2023

So I had thought I was unique in dealing with the Autonomic Seizures... but I am seeing more and more posts suggesting maybe I'm not. This page is just starting with no plan, but I'm thinking about having anyone who has these seizure type events join together here and maybe we can raise awareness somehow and maybe help each other deal with this horrible side to Dysautonomia. If nothing else learn how to help ourselves.

08/21/2022

Welcome to the Darkside...
Invisible illness is a hard thing to live with. Mostly we look like everyone else, but on the inside, our bodies have a very different story to tell.

I decided to start this page to share information and maybe help others who are also searching for something...
Anything that may help.

I welcome you to talk, tell your story.
I ask that everyone be kind. It's not an easy road we walk.

My main focus is on Dysautonomia because that seems to be where my story has changed dramatically. I have EDS and Mast Cell Activation Syndrome too, and really it all blends together. ❤️ 🦓