Kidney Donation for Scott Mayle

11/09/2024

This is what the gift of life looks like. Thanks to Scott’s selfless donor, we were able to grow our little family and Scott can embrace fatherhood to the fullest. He doesn’t even mind getting up at night with them now that he’s not hooked up to peritoneal dialysis. God has blessed us and we couldn’t be more grateful to everyone who helped along the way. 7 months and going strong

06/23/2024

It’s hard to believe it has almost been 3 months since Scott received his incredible gift of transplant. He is feeling better than he has in years and we were able to take our first family trip together since 2022. Amazing only to pack the car with toddler things as opposed to peritoneal dialysis supplies ! We can’t thank all of our friends and family who have supported us through his recovery and continue to support us enough! Here’s to our new normal

04/16/2024

Scott is doing great! His Creatinine is continuing to come down and he is feeling better by the day! Thankfully, the weather has allowed us to safely get out of the house with Scott’s immune system. What an incredible gift organ donation is and I am continually humbled by the generosity of all of our support system as well as of course his donor.

04/06/2024

Surgery was a great success yesterday and both of them are doing well! We continue to be humbled by the bravery, selflessness and strength of this incredible man. You are truly our hero, Terry!

03/26/2024

In the coming weeks, Scott will be receiving the greatest gift of all: a kidney donation. Due to the incredible generosity of his living donor, Scott will have a second chance at life. We’ll never be able to thank his donor enough.

As he, Jess and their son focus on his recovery, we have set up a meal train to take the stress out of planning and arranging dinner. If you would like to sign up for a day to provide them dinner, please send us a direct message.

We appreciate everyone’s positive thoughts and prayers for both Scott and his donor. ❤️

03/03/2024

Did you know that March is ? Scott is among one of the 90,000 Americans waiting for a kidney transplant! ❤️

02/29/2024

Today is Rare Disease Day. I would like you to know about Alport Syndrome that’s directly affected my family. There currently is no cure. Alport Syndrome is characterized by kindney failure, eyesight abnormalities, and hearing loss.

Scott Mayle was diagnosed with Alport Syndrome in 2022. His kindneys failed over 14 months ago. He’s been doing nightly dialysis to stay alive. Only a kidney transplant will restore him to a healthier life and lifestyle.

One promising solution is the development of an artificial kidney. Several groups are working on experimental prototypes. The Kidney Project is one I’ve been following.

To learn more about Alport Syndrome and the development of an artificial kidney:

https://www.kidney.org/atoz/content/alport

https://pharm.ucsf.edu/kidney

02/14/2024

You could be the match for Scott Mayle! Take the survey at https://nmlivingdonor.org

01/06/2024

So thankful that dialysis and the team at NANI make it possible for dad to play outside in the snow with me! Can’t wait for him to get a kidney so we can do all sorts of fun things together!

12/09/2023

This research continues to move in the right direction for kidney patients.

We continue to hold out hope that Scott will match soon. ❤️

What makes The Kidney Project’s implantable bioartificial kidney a better solution than dialysis?

Dialysis is a long process that requires multiple hours hooked up to a machine, which circulates and filters blood back into the body. Not only is dialysis often stressful to the body, but it also requires the kidney patients to restrict their diets severely.

Our implantable bioartificial kidney would work just like a healthy kidney, and it would filter toxins out of blood and concentrate the waste into urine. Due to the continuous treatment that the artificial kidney provides, patients will be able to eat and drink normally. The structure and chemistry of the device also makes it so there is need for immunosuppressive or anticoagulation medication.

Our Medical Director, Dr. William Fissell, and our Technical Director, Dr. Shuvo Roy, interviewed with Medscape back in August to discuss the advantages of the implantable bioartificial kidney and its path to clinical (human) trials.

Read the article here: https://www.medscape.com/viewarticle/995477

To give: bit.ly//Givetokidney

Instagram/Facebook/Threads: ArtificialKidney

Twitter: KidneyProject

YouTube: TheKidneyProject

11/27/2023

Just hanging with Dad, taking it in

11/13/2023

Scott’s fantastic nieces and nephew with Ryan!