Sotos Syndrome Support Association

Sotos Syndrome Support Association Organized in 1991, the Sotos Syndrome Support Association (SSSA) is made up of families and health care professional throughout the U.S. and the world.

Sotos Syndrome Support Association,
The SSSA is a non-profit organization. The purpose of the SSSA is to provide: A social support environment for professionals and families of individuals with a diagnosis of Sotos and similar syndromes; an understanding of the condition through education; a newsletter for members to network ideas, articles and inspirations; an annual conference for professionals

and families to hear experts on such topics as genetics, neurology, psychology and education; an opportunity for professionals involved with Sotos syndrome to meet colleagues and collect data for research.

We are so excited to share who’s speaking at our Sotos Syndrome Conference this July! 🎉📅 Conference Date: July 10-12📍 Or...
04/27/2026

We are so excited to share who’s speaking at our Sotos Syndrome Conference this July! 🎉

📅 Conference Date: July 10-12
📍 Orlando, FL
🔗 https://www.sotossyndrome.org/conference/speakers/

Let us know in the comments what topics you’re most excited to learn about or who you’re hoping to hear from!

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You must be a member to register for the conference. Make sure to join before registering if you have not already done so.

🌟 Special Disney Ticket Savings! 🌟If you're heading to Orlando for our Annual SSSA Conference, don’t miss out on discoun...
04/11/2026

🌟 Special Disney Ticket Savings! 🌟

If you're heading to Orlando for our Annual SSSA Conference, don’t miss out on discounted Disney tickets available just for attendees! 🎢✨

This is a great opportunity to make your trip even more magical—whether you're planning a family day at the parks or adding a little extra fun before or after the conference.

🎟️ Special pricing
https://disneyevent.com/sotos2026
🏰 Perfect for making lasting memories

Let’s make this conference unforgettable both inside and outside the sessions! 🪄

Microsites and Proposals

04/05/2026

🌸🐣 HAPPY EASTER 🐣🌸

💜 Wishing you a joyful and hope-filled Easter season! 💜

May your day be filled with:
🥚 Colorful eggs
🧺 Sweet treats
🌷 Love, laughter, and new beginnings

With appreciation for our amazing community—thank you for being part of the Sotos family! 💜

🎉 Now that you're registered for the Conference, it’s time to book your hotel! 🏨Be sure to reserve your room at the Drur...
04/01/2026

🎉 Now that you're registered for the Conference, it’s time to book your hotel! 🏨

Be sure to reserve your room at the Drury Inn in Orlando, FL, where many conference families will be staying. Staying at the conference hotel is a great way to connect with other families, make new friends, and be close to all conference activities.

Rooms can fill up quickly, so don’t wait!

Room Rates here: https://www.sotossyndrome.org/conference/hotel-travel/

We can’t wait to see everyone in July! ☀️

You must be a member to register for the conference. Make sure to join before registering if you have not already done so.

Please connect with the Sotos Syndrome Support Association's official Linkedin page.
04/01/2026

Please connect with the Sotos Syndrome Support Association's official Linkedin page.

SOTOS SYNDROME SUPPORT ASSOCIATION | 11 followers on LinkedIn. Our Mission is to provide a social support environment for professionals and families of individuals affected by Sotos. | Organized in 1988, the Sotos syndrome Support Association (SSSA) is made up of families, physicians, genetic counse...

📣 Attention Sotos Syndrome Community! 📣Time is running out to register for the Sotos Syndrome Conference this July in Or...
03/30/2026

📣 Attention Sotos Syndrome Community! 📣

Time is running out to register for the Sotos Syndrome Conference this July in Orlando, FL! ☀️🏝️

This is an incredible opportunity to connect with other families, learn from experts, and be part of a supportive, uplifting community.

⏰ Important Reminder: Registration rates increase on April 1, so don’t wait!

Secure your spot today and join us for a meaningful and memorable experience.

👉 Register now before prices go up!

Aiding in the journey of coping with Sotos Syndrome. Join our mission for support and knowledge sharing at the SSSA.

‼️ Attention ‼️Take advantage of the early bird registration rates. Get registered TODAY for the 2️⃣0️⃣2️⃣6️⃣ conference...
03/30/2026

‼️ Attention ‼️

Take advantage of the early bird registration rates. Get registered TODAY for the 2️⃣0️⃣2️⃣6️⃣ conference in Orlando, Florida!

Rates increase on April 1, 2026!

Aiding in the journey of coping with Sotos Syndrome. Join our mission for support and knowledge sharing at the SSSA.

03/20/2026
🍀💜💛🍀
03/17/2026

🍀💜💛🍀

📣 Important Links 📣Hotel information ➡ https://www.sotossyndrome.org/conference/hotel-travel/Conference Registration ➡ h...
03/05/2026

📣 Important Links 📣

Hotel information ➡ https://www.sotossyndrome.org/conference/hotel-travel/

Conference Registration ➡ https://www.sotossyndrome.org/conference/rates/

2026 Agenda ➡ https://www.sotossyndrome.org/conference/agenda/

Silent Auction Information ➡ https://www.sotossyndrome.org/conference/silent-auction/

Financial Assistance ➡ https://www.sotossyndrome.org/conference/financial-assistance/

You must be a member to register for the conference. Make sure to join before registering if you have not already done so.

Address

P. O. Box 4626
Wheaton, IL
60189

Website

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