Miriam Yaoska Reyes-Ayala

04/02/2025

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03/29/2025

Let's talk about the term: “Feel better” implies that my chronic illness will somehow go away, even when there’s no known cure. It makes me feel unseen.

I know you mean well when you tell me to feel better, and I understand that you intend to offer hope. But to me — and for many people living with a chronic illness — these words are defeating.
It took over 30 years of living with unexplained symptoms before I received a diagnosis. Until then, when I heard the words, “Feel better,” I hoped that whatever was wrong with my body could be treated and cured.

But once I received my diagnosis, the hope of returning to a normally functioning body was gone — and the possibility expressed in these words dissolved, too.
Feeling better is what I want most of all, but it’s something far beyond my reach. While I occasionally have days or weeks where I feel a little stronger and a little less fatigued, the break from overwhelming symptoms never lasts. I can’t fully feel better because, as of now, there is no cure for my illness.

These words offer false hope. "Feel better" hurts.
You may not realize it, but when I say I’m feeling “OK,” I mean I’m feeling my best — I can attend social events, take a little walk with my family, and complete household activities such as emptying the trash cans and cooking meals.

But every day, I experience symptoms to varying degrees. Some days are better than others, but no days are devoid of difficulties. When you say, “Feel better,” these words make me feel unseen as someone living with an incurable, mostly invisible, chronic disease.

Say this instead
Instead of “Feel better,” I’d love to hear, “I hope you’re back to your baseline soon,” or “I hope you’re feeling your best again quickly.” Even “Feel your best” simply acknowledges that I’m fighting a chronic battle with a spectrum of symptoms that never fully disappear. They give me hope that while tomorrow won’t be perfect, it might be a better day.“Feel your best” is an attainable wish, and it reminds me that I’m not alone.

02/28/2025

I haven't felt this good physical energy in a long time. Coming out of doctor appointments and treatments feeling heard. seeing, and understood is always a plus to boost the mind🙌

Today is Rare Disease day.
-carcinoid cancer
-reactive hypoglycemia
-dysautonomia
-MS

I am rare, I am unique and love it!

01/24/2025

According to the show 60 minutes, just in case you missed it: a lawyer advised us to post this. The violation of privacy can be punished by law.
Note: Facebook Meta is now a public entity. Every member must post a note like this. If you do not publish a statement at least once, it will be technically understood that you are allowing the use of your photos, as well as the information contained in your profile status updates.
I HEREBY DECLARE THAT I DO NOT GIVE MY PERMISSION TO USE ANY OF MY PERSONAL DATA OR PHOTOS.

Copy & paste, do not share!

12/31/2024

....no need to hurry. there's no need to sparkle. There is no need to be anybody but oneself. Do stuff. Be clenched, curious. Pay attention. It's all about paying attention. Attention is vitality. It connects you with others. It makes you eager. Stay eager...

12/19/2024

12/14/2024

Yesterday's appointment with the neurologist and oncologist was very promising. My blood has made progress, though it's still far from where it needs to be, but progress 🙌. I'll take it, along with a slight increase in energy, and I have another blood infusion in a few weeks.

12/10/2024

11/06/2024

🌱♥️🙌

11/05/2024

3/4 got to vote in our household.
Let your voice be heard- vote !

09/27/2024

I'm not looking forward to new treatment next week,(procedure results were not good.(I'm hopeful- another procedure in December) perhaps because I don't want to lose my burst of energy and routine to what's unknown side effects with higher dosage. Yet I know that I will push through even if I'm slowly getting things done.

It feels good to be able to move, lift, and get this body up every day 💪 🙌✨️