Hereditary Neurological Disease Centre

21/08/2025

"𝗖𝗿𝗮𝗰𝗸𝗶𝗻𝗴 𝘁𝗵𝗲 𝗣𝗿𝗼𝘁𝗲𝗶𝗻 𝗣𝘂𝘇𝘇𝗹𝗲 𝗶𝗻 𝗛𝗗: 𝗡𝗲𝘄 𝗕𝗹𝘂𝗲𝗽𝗿𝗶𝗻𝘁𝘀 𝗢𝗳𝗳𝗲𝗿 𝗛𝗼𝗽𝗲 𝗳𝗼𝗿 𝗦𝘁𝗼𝗽𝗽𝗶𝗻𝗴 𝗗𝗮𝗺𝗮𝗴𝗲 𝗘𝗮𝗿𝗹𝘆

Scientists have imaged the toxic clumps and fibres made by expanded huntingtin with cutting-edge microscopes, helping us to understand the exact way they can be assembled and how their structure could be altered for potential therapeutic gain."
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𝗥𝗲𝗮𝗱 𝗺𝗼𝗿𝗲 𝗵𝗲𝗿𝗲:
https://en.hdbuzz.net/cracking-the-protein-puzzle-in-hd-new-blueprints-offer-hope-for-stopping-damage-early/?fbclid=IwY2xjawMUI1NleHRuA2FlbQIxMQBicmlkETBoYlpRWDN2NVhEV1daRW1HAR76UuHZ5ZfCzLB6odi3Ub9vWBfONCWS8ngdSs6O9I47r-i1I0cUWhYKxFfcUg_aem_qAIbRAecr1QtnU1YR_hh2Q

Scientists have imaged the toxic clumps and fibres made by expanded huntingtin with cutting-edge microscopes, helping us to understand the exact way they can be assembled and how their structure could be altered for potential therapeutic gain.

21/08/2025

𝗥𝗲𝗮𝗱 𝗺𝗼𝗿𝗲 𝗮𝗯𝗼𝘂𝘁 𝗴𝗲𝗻𝗲𝘁𝗶𝗰 𝘁𝗲𝘀𝘁𝗶𝗻𝗴 𝗳𝗼𝗿 𝗛𝘂𝗻𝘁𝗶𝗻𝗴𝘁𝗼𝗻’𝘀 𝗱𝗶𝘀𝗲𝗮𝘀𝗲 𝗵𝗲𝗿𝗲:
https://huntingtonsdiseasenews.com/genetic-testing-and-counseling/?utm_source=facebook&utm_medium=social&utm_campaign=cpuv&utm_content=202508151100&utm_term=austedohub

Learn more about the process and what to expect via https://f.mtr.cool/wtqyemtret Thinking about genetic testing for Huntington’s disease?

Genetic testing and counseling can help you understand your risk, make informed choices for your future, and find emotional support along the way.

11/08/2025

"𝗧𝗮𝗹𝗸𝗶𝗻𝗴 𝘁𝗼 𝗸𝗶𝗱𝘀 𝗮𝗯𝗼𝘂𝘁 𝗛𝘂𝗻𝘁𝗶𝗻𝗴𝘁𝗼𝗻’𝘀 𝗱𝗶𝘀𝗲𝗮𝘀𝗲 𝗶𝘀𝗻’𝘁 𝗲𝗮𝘀𝘆 — 𝗯𝘂𝘁 𝘆𝗼𝘂 𝗱𝗼𝗻’𝘁 𝗵𝗮𝘃𝗲 𝘁𝗼 𝗱𝗼 𝗶𝘁 𝗮𝗹𝗼𝗻𝗲. 🧠💬
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This guide offers support for starting the conversation in ways that are honest, age-appropriate, and compassionate. 💛
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Whether your child is 5 or 15, they deserve to feel safe, informed, and heard. That said — every family is different. You know your child best, and it’s always your choice if, when, and how you decide to share."
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Read more here:
https://f.mtr.cool/dnrphhueyo

11/08/2025

"𝗪𝗵𝗮𝘁 𝗦𝗰𝗵𝗿𝗼̈𝗱𝗶𝗻𝗴𝗲𝗿’𝘀 𝗰𝗮𝘁 𝘁𝗮𝘂𝗴𝗵𝘁 𝗺𝗲 𝗮𝗯𝗼𝘂𝘁 𝗹𝗶𝘃𝗶𝗻𝗴 𝘄𝗶𝘁𝗵 𝗛𝘂𝗻𝘁𝗶𝗻𝗴𝘁𝗼𝗻’𝘀
In our home, uncertainty shapes our concerns, hopes, and routines"
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Read more here:
https://huntingtonsdiseasenews.com/columns/what-schrodingers-cat-taught-living-huntingtons-disease/?utm_source=HUN&utm_campaign=8cb5a40c02-Email_ENL_US_HUN&utm_medium=email&utm_term=0_f42d6c3322-8cb5a40c02-74082141

Columnist Carlos Briceño turns to quantum mechanics to explain what living with Huntington's disease is like for him and his wife, Jill.

07/08/2025

30/07/2025

30/07/2025

See how healing environments can impact Huntington’s care:https://f.mtr.cool/mcrogefdbj

29/07/2025

Facing an uncertain HD future? You’re not alone:https://f.mtr.cool/zbcraalxwd

24/07/2025

💙𝗛𝗘𝗟𝗣 𝗨𝗦 𝗠𝗔𝗞𝗘 𝗧𝗛𝗘 𝗪𝗜𝗖𝗛𝗜𝗧𝗔 𝗪𝗔𝗟𝗞 𝗢𝗙 𝗛𝗢𝗣𝗘 𝟮𝟬𝟮𝟱 𝗔 𝗦𝗨𝗖𝗖𝗘𝗦𝗦!💙

Our biggest fundraiser of the year is coming up on Saturday, October 4th at the Wichita Marriott, and even if you can’t attend, there are so many meaningful ways to support the cause and get involved:

🧡 𝗦𝗽𝗼𝗻𝘀𝗼𝗿 𝘁𝗵𝗲 𝗪𝗮𝗹𝗸
Individuals and businesses can be recognized on the back of our Walk t-shirt:

$𝟭𝟬𝟬–$𝟮𝟰𝟵 – Name listed
$𝟮𝟱𝟬–$𝟰𝟵𝟵 – Small logo
$𝟱𝟬𝟬+ – Large logo

Sponsors are also highlighted on event materials and our page. Sponsoring is a great way to honor a loved one, show support, or raise awareness through your business or organization.

🎁 𝗗𝗼𝗻𝗮𝘁𝗲 𝘁𝗼 𝘁𝗵𝗲 𝗥𝗮𝗳𝗳𝗹𝗲 𝗼𝗿 𝗦𝗶𝗹𝗲𝗻𝘁 𝗔𝘂𝗰𝘁𝗶𝗼𝗻
We’re looking for quality donations such as:

--Handcrafted or artisan goods
--Gift certificates to local restaurants, services, or attractions
--Unique experiences or premium items from your workplace

These items help us create a vibrant and successful fundraising experience, and all donors are recognized at the event.

📣 𝗦𝗽𝗿𝗲𝗮𝗱 𝘁𝗵𝗲 𝗪𝗼𝗿𝗱 & 𝗜𝗻𝘃𝗶𝘁𝗲 𝗢𝘁𝗵𝗲𝗿𝘀
Even if you’re not in Wichita, you can still make a big impact by sharing our event with friends, coworkers, and family. Every share and conversation helps raise awareness and grow support for families facing Huntington’s Disease.

As always, 𝟭𝟬𝟬% 𝗼𝗳 𝗳𝘂𝗻𝗱𝘀 𝗿𝗮𝗶𝘀𝗲𝗱 𝘀𝘁𝗮𝘆 𝗹𝗼𝗰𝗮𝗹 and directly support the services, outreach, and care provided by the Hereditary Neurological Disease Centre.

If you'd like to sponsor, donate, or get involved, message us here or email macyn@hndcentre.com.

Thank you for helping turn 𝗥𝗮𝗿𝗲𝗻𝗲𝘀𝘀 𝗶𝗻𝘁𝗼 𝗔𝘄𝗮𝗿𝗲𝗻𝗲𝘀𝘀. 💙