10/03/2024
Ed's Newsletter - SEVERELY ILL KILEY RESIDENT GETTING THE RUN-AROUND...
McMANUS CONSULTING
DISABILITY SERVICES
An affiliate of The Arc of Illinois
847.410.7145, mcmanus006@gmail.com, Facebook, LinkedIn
Ed’s Newsletter
No. 369 – Oct. 3, 2024
DOCTOR SAYS HE NEEDS BEHAVIOR THERAPY, CENTER’S OFFICIALS REFUSE . . .
We last reported in mid-June on the plight of a young man with autism named Joe.
Joe is a 31-year-old man from the northern suburbs who suffered from repeated staff violence for more than 2 years as a resident of Shapiro Developmental Center in Kankakee.
His family pleaded for him to be moved elsewhere, and he was finally moved May 18 to Kiley Center in Waukegan. Apparently on the next day, May 19, he was brutalized by staff once again.
Joe has extreme trauma, severe PTSD (post-traumatic stress disorder) and an extreme startle reflex. He is in emergency need of the assistance of a BCBA (board-certified behavior analyst). His doctor has prescribed 20-25 hours per week of applied behavior analysis (ABA) therapy on site for him. (Please excuse all the acronyms.}
The family had already contacted Visions Inc., which provides BCBA services, and they were scheduled to start working with him at Shapiro. But it turns out Kiley doesn’t offer that. In fact, they are the only one of the 7 state institutions that doesn’t.
This prompted Joe’s mother, Maureen, to send this message to the administration: “Psychologically, emotionally, Joseph is in emergency need of trauma based services to heal from all the abuse and neglect. He has zero trust in Kiley staff after multiple incidents during his first weeks there. This demonstrates a severe need of bringing in outside trained expert help to assist with healing from trauma, to rebuild trust and regain cooperation. This email is a direct request for Joseph to be granted enough hours to meet his severe needs and that this be provided on an emergency basis for him. We are concerned if the state does not fund enough hours, he will continue to decline.”
And Maureen had this to say about the abuse at Kiley: “There were two people in the video of abuse of Joseph at Kiley on May 18. When we returned Joseph to Kiley on June 16, we discovered that one of the two men involved in the abuse on May 18 was BACK AT HOME 24 caring for Joseph. We were totally shocked to see someone who aided the abuser back caring for Joseph in light on an ongoing OIG investigation.”
In 2018, Joe’s life changed dramatically. He was given a vaccine without the family’s knowledge, permission or consent. “Within a week he became catatonic, was later treated for seronegative autoimmune encephalitis and developed refractory seizures,” his mother said. “ He spent many hundreds of days in hospitals for many treatments.”
In 2022, her attorney said she just needed to “place” Joe. “The only place that would take him was Shapiro, and that started his life in hell.”
Fast forward to this past summer. Joe became very ill, was hospitalized, and then was sent to hospice. But he didn’t die. He recovered. He is currently at Northwestern Hospital. Northwestern is ready to send him back to Kiley. But Kiley is adamant that he won’t get the prescribed ABA therapy that he desperately needs.
Why? They won’t say.
McMANUS CONSULTING
DISABILITY SERVICES
An affiliate of The Arc of Illinois
847.410.7145, mcmanus006@gmail.com, Facebook, LinkedIn
Ed’s Newsletter
No. 369 – Oct. 3, 2024
DOCTOR SAYS HE NEEDS BEHAVIOR THERAPY, CENTER’S OFFICIALS REFUSE . . .
We last reported in mid-June on the plight of a young man with autism named Joe.
Joe is a 31-year-old man from the northern suburbs who suffered from repeated staff violence for more than 2 years as a resident of Shapiro Developmental Center in Kankakee.
His family pleaded for him to be moved elsewhere, and he was finally moved May 18 to Kiley Center in Waukegan. Apparently on the next day, May 19, he was brutalized by staff once again.
Joe has extreme trauma, severe PTSD (post-traumatic stress disorder) and an extreme startle reflex. He is in emergency need of the assistance of a BCBA (board-certified behavior analyst). His doctor has prescribed 20-25 hours per week of applied behavior analysis (ABA) therapy on site for him. (Please excuse all the acronyms.}
The family had already contacted Visions Inc., which provides BCBA services, and they were scheduled to start working with him at Shapiro. But it turns out Kiley doesn’t offer that. In fact, they are the only one of the 7 state institutions that doesn’t.
This prompted Joe’s mother, Maureen, to send this message to the administration: “Psychologically, emotionally, Joseph is in emergency need of trauma based services to heal from all the abuse and neglect. He has zero trust in Kiley staff after multiple incidents during his first weeks there. This demonstrates a severe need of bringing in outside trained expert help to assist with healing from trauma, to rebuild trust and regain cooperation. This email is a direct request for Joseph to be granted enough hours to meet his severe needs and that this be provided on an emergency basis for him. We are concerned if the state does not fund enough hours, he will continue to decline.”
And Maureen had this to say about the abuse at Kiley: “There were two people in the video of abuse of Joseph at Kiley on May 18. When we returned Joseph to Kiley on June 16, we discovered that one of the two men involved in the abuse on May 18 was BACK AT HOME 24 caring for Joseph. We were totally shocked to see someone who aided the abuser back caring for Joseph in light on an ongoing OIG investigation.”
In 2018, Joe’s life changed dramatically. He was given a vaccine without the family’s knowledge, permission or consent. “Within a week he became catatonic, was later treated for seronegative autoimmune encephalitis and developed refractory seizures,” his mother said. “ He spent many hundreds of days in hospitals for many treatments.”
In 2022, her attorney said she just needed to “place” Joe. “The only place that would take him was Shapiro, and that started his life in hell.”
Fast forward to this past summer. Joe became very ill, was hospitalized, and then was sent to hospice. But he didn’t die. He recovered. He is currently at Northwestern Hospital. Northwestern is ready to send him back to Kiley. But Kiley is adamant that he won’t get the prescribed ABA therapy that he desperately needs.
Why? They won’t say.
McMANUS CONSULTING
DISABILITY SERVICES
An affiliate of The Arc of Illinois
847.410.7145, mcmanus006@gmail.com, Facebook, LinkedIn
Ed’s Newsletter
No. 369 – Oct. 3, 2024
DOCTOR SAYS HE NEEDS BEHAVIOR THERAPY, CENTER’S OFFICIALS REFUSE . . .
We last reported in mid-June on the plight of a young man with autism named Joe.
Joe is a 31-year-old man from the northern suburbs who suffered from repeated staff violence for more than 2 years as a resident of Shapiro Developmental Center in Kankakee.
His family pleaded for him to be moved elsewhere, and he was finally moved May 18 to Kiley Center in Waukegan. Apparently on the next day, May 19, he was brutalized by staff once again.
Joe has extreme trauma, severe PTSD (post-traumatic stress disorder) and an extreme startle reflex. He is in emergency need of the assistance of a BCBA (board-certified behavior analyst). His doctor has prescribed 20-25 hours per week of applied behavior analysis (ABA) therapy on site for him. (Please excuse all the acronyms.}
The family had already contacted Visions Inc., which provides BCBA services, and they were scheduled to start working with him at Shapiro. But it turns out Kiley doesn’t offer that. In fact, they are the only one of the 7 state institutions that doesn’t.
This prompted Joe’s mother, Maureen, to send this message to the administration: “Psychologically, emotionally, Joseph is in emergency need of trauma based services to heal from all the abuse and neglect. He has zero trust in Kiley staff after multiple incidents during his first weeks there. This demonstrates a severe need of bringing in outside trained expert help to assist with healing from trauma, to rebuild trust and regain cooperation. This email is a direct request for Joseph to be granted enough hours to meet his severe needs and that this be provided on an emergency basis for him. We are concerned if the state does not fund enough hours, he will continue to decline.”
And Maureen had this to say about the abuse at Kiley: “There were two people in the video of abuse of Joseph at Kiley on May 18. When we returned Joseph to Kiley on June 16, we discovered that one of the two men involved in the abuse on May 18 was BACK AT HOME 24 caring for Joseph. We were totally shocked to see someone who aided the abuser back caring for Joseph in light on an ongoing OIG investigation.”
In 2018, Joe’s life changed dramatically. He was given a vaccine without the family’s knowledge, permission or consent. “Within a week he became catatonic, was later treated for seronegative autoimmune encephalitis and developed refractory seizures,” his mother said. “ He spent many hundreds of days in hospitals for many treatments.”
In 2022, her attorney said she just needed to “place” Joe. “The only place that would take him was Shapiro, and that started his life in hell.”
Fast forward to this past summer. Joe became very ill, was hospitalized, and then was sent to hospice. But he didn’t die. He recovered. He is currently at Northwestern Hospital. Northwestern is ready to send him back to Kiley. But Kiley is adamant that he won’t get the prescribed ABA therapy that he desperately needs.
Why? They won’t say.
