09/05/2025
Oh hey I just realized I never updated you on my dr appt last week with my primary. Hold on cause there were a few curveballs It will be a bit long. I will break it down
1) The best news first: I believe I told you about taking the DNA test Genesite. I have been struggling with antidepressants doing much for me and side effects have not been fun. So she suggested this test. As soon as we got the results, we found that every antidepressant I had been on thus far was one that was in the "not so much going to help you" column. We changed to Cymbalta which was in the good list and in the past week or so I have felt a shift and Clayton and the kids say they have noticed it too. I feel so much mentally healthier, happier, calmer, more rational. I wake up at 8ish in the morning and try as I might I cannot get back to sleep and sleep the day away and I even have less pain! It's true, Depression can manifest in physical pain. Now, don't get me wrong. I'm still at a daily base level of around 5, but lately it has been 6 minimum. So I'm pretty excited about that and pretty sure in retrospect I probably should have been in a hospital a couple of times.
2) My Ears: Still plugged to bulging in both ears and she can't believe I'm not in pain. Although let's be honest. I probably AM in pain, I just see it as normal at this point. She is doing one last Hail Mary and trying a steroid nasal spray. If I were a normal person she would have me on prednisone but I can't be on that ever again so she asked if I wanted to try this and I said "sure". If this doesn't work it is quite possible that I, as an adult, will be getting tubes put in my ears. Can I stop acquiring child like illnesses.
3) We talked about getting in home IV therapy. It seems most of the hospital admissions are for vitamin deficiencies and dehydration. Every time I am in the hospital, my chance of illness is huge so it is a balancing act of risk vs reward. I am sure I can get IV therapy approved like I did in CO where I went in every 2 weeks to the infusion center, but I'm afraid that, being about 7 years down the road of progressive diseases and PTSD accumulation, that I would me much more likely to cancel/no show those appts whereas if they come to my home I wouldn't. plus if I am too sick to drive or in too much pain which is often a symptom of dehydration, I just may not be able to drive myself there and in CO my parents were staying with us for a bit and Clayton worked 5 min away and his boss would let him drive me and pick me up quick. so we will see
4) My fingers. She still doesn't know. She gave me a few more tips to try and I believe a referral to dermatology but I will have to recheck that.
5)Weird pain in my right thigh. I pointed out where the pain was exactly. Outlined it with my fingers. She said that I, almost, perfectly outlined what the vertebre L5 is in control of. I said "you are joking" she said no, buy why... L5 is where ALL my back issues started. Degenerative disk when I was diagnosed in my 20s, osteoarthritis, rehmetoid arthritis etc. soooo... yeah not much I can do there at this point. I'm still waiting on a different doctor (specialist) to do what he needs to do.
6) I possibly have another new diagnosis coming. After years of thinking my couple of party tricks were nothing more than party tricks, turns out it is actually very likely Ehlers-Danlos Syndrome. Yay for yet another diagnosis! So I believe that will be talked about next month when I go in for my Lupus diagnosis work up. Oh and she randomly said I seem to be exhibiting some signs of ADD but I told her I wouldn't get tested until... some things are different.
I THINK that's all. Is that enough? lol
Enjoy this pic of me having the energy, low (enough) pain and the mental... capacity(?) to start volunteering at Jman's school again! Band Camp baby!
