North Carolina Innovations Waiver Action Team

North Carolina Innovations Waiver Action Team 15,000 on the Registry of Unmet Needs
Please register on our webpage to keep informed about the acti

02/28/2026

A new KFF report lays out how much states rely on Medicaid HCBS to pay and assist caregivers, and how vulnerable those services may be.

02/27/2026
02/25/2026

A yearlong review by Disability Rights NC found stark differences among facilities, with some teens locked in their cells more than 22 hours a day.

02/25/2026

What happens when someone believes the Americans with Disabilities Act (ADA) was violated? Several federal agencies enforce the ADA. The agency responsible for responding to a complaint depends on which title of the ADA applies. Read this factsheet that outlines which federal agencies enforce different parts of the ADA here: https://adata.org/enforcing-the-ADA

02/25/2026

Nine state attorneys general are once again trying to weaken disability rights with a lawsuit targeting Section 504.

In Texas v. Kennedy (2026), Alaska, Florida, Indiana, Kansas, Louisiana, Missouri, Montana, South Dakota, and Texas are asking the Supreme Court to say that recently updated Section 504 rules are unlawful.

If these states get their way, their lawsuit could get rid of an integration mandate that ensures disabled people can live in their communities instead of institutions. The lawsuit would also end protections against disability discrimination in healthcare settings.

Our partners at Disability Rights Education Defense Fund (DREDF) are hosting a webinar tomorrow, February 25th, at 1:30 PM ET, featuring AAPD President and CEO Maria Town! They will discuss the court case and its potential implications for disabled Americans.

Register at: https://dredf-org.zoom.us/webinar/register/WN_Q1oN3icfRrCY36saLlwgJA #/registration

Image description: Graphic containing the same information as the post shows a calendar with "Texas v. Kennedy webinar" marked on a calendar with the date of February 25th

Exceptional Families is a virtual informational meeting for parents of children with disabilities.Topic: Discussion abou...
02/25/2026

Exceptional Families is a virtual informational meeting for parents of children with disabilities.

Topic: Discussion about NC Medicaid Waiver options, eligibility criteria and application processes:
Innovations Waiver, CAP-C, and Medicaid 1915(i) Services

Date: Thursday, February 26th
Time: 7:00 PM on ZOOM

Questions? Email Chris Gentry at ChrisFSN@thecfec.org or call
336-703-4289

Discussion about NC waiver options

02/21/2026

Olmstead’s Effects on Housing Affordability, Supportive Housing, and Home and Community-Based Services
The Community Living Policy Center, an initiative of Lurie Institute for Disability Policy at Brandeis University, recently published a case study highlighting the effort of the Olmstead decision on housing affordability.

The case study explores the use of the U.S. Supreme Court’s decision in Olmstead v. L.C. (1999) as a tool for housing creation at the state and local level. The authors focus on the three states of Virginia, North Carolina, and Georgia, where implementation of the “integration mandate” of the Olmstead decision has led to a significant reduction in the number of disabled people who are institutionalized or at risk of institutionalization.

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Winston-Salem, NC
27106

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NC Waiver Action

Step 1 - contact Deborah, Bill, or Sarah who are collecting data those who want to help us address the Registry of Unmet Needs. We would like a contact person from each MCO.

Step 2 - we will start a publicity campaign across the state with articles and letters to the editor.

Step 3 - a letter writing campaign.

Step 4 - meet with legislators to address the problems with the registry - especially the lack of waivers and the never ending wait for many families.