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Learn to write a neuroaffirming IEP....https://www.teacherspayteachers.com/Product/Neurodiversity-Affirming-IEP-Accommod...
05/01/2024

Learn to write a neuroaffirming IEP....
https://www.teacherspayteachers.com/Product/Neurodiversity-Affirming-IEP-Accommodations-Autistic-and-ADHD-Students-FREE-9219767?fbclid=IwZXh0bgNhZW0CMTEAAR2N6SPvDsIE8lC1vi2RIl2ODbMeatAwBGJd0Cc95fvb5yrF6rz6Q5FS1O4_aem_AYKnp_XDAutLnYxdgL8FuFh1ZHdebjSX5JPybNYz6zMTGChFG-8_LxVvUum-hpil3hSvr7TIyu4p0JwvxwHX04pJ&mibextid=NOb6eG

This 13-page word document includes:A non-exhaustive list of neurodiversity affirming goals that may be relevant for many Autistic/ADHD students (including goals related to eye contact, moving while learning, sensory and emotional regulation, mental health and wellbeing, and social communication goa...

06/11/2023

“If you can’t find a seat at the table, build your ‘own table’, your own team!"

Jena Antonucci

05/03/2023

I want to talk about something that is pretty important to me. The outdated idea of “mental age”. Or rather I thought that it was outdated, but yet I was confronted by it today in a place I really didn’t expect - from a doctor at a rather “progressive” local paediatric rehab hospital.

Sophie is due for some dental work and for her that means going under general anaesthesia. We had the intake consult over the phone with the anaesthesiologist. It was going rather as can be expected until the above mentioned “so what age do you feel she functions at?”

I took a deep breath of honest surprise and being genuinely taken aback. I mean this is a paediatric rehab hospital, renowned and well respected. Is this what they really ask their patients’ caregivers?

When I replied that Sophie is an 11 year old girl with a developmental disability and that is the age she functions at, the lady got quite huffy and said “well most parents are able to give me a number” like I was the one being difficult! I again countered with “she had a limited vocabulary, is fully ambulatory, can follow simple directions (usually), is able to read and navigate her iPad, will likely not engage with you on your meeting as she will be escalated due to being anxious and in an unfamiliar environment” you know, the things I thought she needs to know for the purpose of the call she impatiently sighed and replied “so like a 6 year old?”

Sigh. No. Not a 6 year old. Not a 2 year old. Not in between 2 and 6 year old. She functions as an 11 year old with an intellectual disability- not more, not less.

I’m not sure if the lady was able to check off a magic number on her checklist, and frankly I don’t care. We are done with “mental age”. Sophie has been alive for almost 11 years and has the acquired knowledge and experience of being alive almost 11 years. Telling someone that her language is maybe like that of 2 year old is not an accurate picture as her language IS NOT as that of a 2 year old- rather it is the language of an autistic 11 YEAR OLD who has a developmental disability and is still learning to use language in the same way we do.

Ask about how she behaves in unfamiliar environments. Ask about what can make the experience less stressful. Ask about her language and how best to communicate with her. Ask about her medical history. Ask about her favorite things to make the process more comfortable. I will give you all that and more. But never ask me what age she functions at because the answer will always be the same - she functions at her age because that’s the only age she’s ever been. And she’s freaking awesome at being almost 11.

Picture is of Sophie just now on the balcony smiling at what she’s looking at (probably cars).

04/09/2023

My child is autistic.

I have the child that doesn’t enjoy surprises.

Each time we go somewhere out to eat, I provide him with a list of where we are going, when we are going and some things he should expect. I even go over the menu to get an idea of what he can order and eat.

I have the child that can’t wait.

I usually go in first or call ahead, and we don’t bring him in until there’s a table ready. I have even asked to use the party room when it’s available for our family to be seated away from people if I think it might be too difficult for him. I also always order his food and drinks the moment I get there and ask for them to put a rush on it if they can.

I have the child who needs constant engagement with the things he enjoys.. in between, before and after dinner and dessert.

I always come prepared. Charged tablets, portable game systems, books, playdoh, a pen and a notebook. And even his favorite snacks. Whatever it takes to keep him happy and busy during our time there.

I have the child who struggles with sensory overload and differences.

Loud sounds and music, bright lights or the crowd, strange people and smells can all be too much. And sitting for long periods of time can be really hard for a child who is a sensory seeker and needs proprioceptive input. This means we always have his headphones and sunglasses just in case. We give him movement breaks (5 minute timed intervals) where he can stand up safely and even get the wiggles out. Sometimes it’s even a walk outside for a much needed break or hiding under the table for a bit so he can decompress.

I have the child who is a really picky eater and has food aversions.

He may not eat one bite of the food we ordered. He may pull it apart to inspect it. He may eat with his hands instead of utensils. He may not want to touch it at all because he doesn’t like the way it feels or looks. It’s ok. We don’t force him to eat. We let him decide. We are just happy he is there trying with us. It’s a big deal he’s there in the first place.

When you see a family like ours, there is no need to stare, point, give us dirty looks or say unkind things underneath your breath.

I understand that perhaps you don’t know that what you are looking at, is a special needs family out there just trying to be in the world, together like you.

So the next time you see a child standing on the seat of a booth, or hiding under one, know that it’s probably because they need to. And as long as they are safely doing it, it’s ok with us.

The next time you see a child with an iPad or a device, just know that it may literally be the only way a family can be there. It also may be used to communicate because not all children speak.

And the next time you see a child dancing in the aisle way, jumping or spinning in place next to their table, know it’s probably because they needed that movement. They really aren’t trying to disturb you I promise. They may even want to show you, give you a high five or a hug like my kiddo. Just know they may not know personal boundaries, they only see the good in everyone and want to be your friend.

And all of these things above…believe me when I say, our families our working on it, hard, everyday.

The best thing you can do is be kind, smile and wave. Ask questions. Most families like ours love them.

And how you respond to our children, is how yours will when we are out and when they experience differences at their school and on the playground.

Remember, we teach by the example we set for them.

See families like ours…we can’t mind spreading a little autism awareness everywhere we go.

Or we would go nowhere.

And our kids deserve to be in the world, just like yours.

🐦🐦🐦

05/20/2022

Both graduates hope to inspire others with nonspeaking autism and say those with disabilities can achieve a lot if they are able to participate.

05/15/2022

In the U.S., people of color have been more likely to die at younger ages, especially among lower-income communities. That's had a ripple effect on finances, education and physical and mental health.

05/15/2022

This is "0608_FINAL_1080p.mov" by NE Productions on Vimeo, the home for high quality videos and the people who love them.

05/14/2022

A computer keyboard "unlocked my mind from its silent cage," Elizabeth Bonker told her fellow graduates. She urged them to serve others, citing Rollins College's most famous alum: Fred Rogers.

😳😳😳
11/27/2021

😳😳😳

10/05/2021

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