Li Weibo Institute for Rare Disease Research

Li Weibo Institute for Rare Disease Research Demonstratrating a rare commitment to rare diseases research. Our goal is to accelerate the development of novel therapeutics for a host of rare diseases.
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It is the final week of Alpha-1 Antitrypsin Deficiency Awareness month, although the month is ending, we still need to b...
11/26/2019

It is the final week of Alpha-1 Antitrypsin Deficiency Awareness month, although the month is ending, we still need to be aware of Alpha Antitrypsin Deficiency. This disease affects hundreds of thousands of people, both directly and indirectly. Continue to spread the word in order to help find a cure for Alpha Antitrypsin Deficiency.

The Li Weibo Institute for Rare Diseases Research’s goal is to accelerate the development of novel therapeutics for a host of rare diseases/disorders through innovative research platforms (e.g. gene therapy, RNAi).

Alpha-1 Antitrypsin Deficiency creates difficulty in normal everyday activities. We take for granted being able to walk ...
11/20/2019

Alpha-1 Antitrypsin Deficiency creates difficulty in normal everyday activities. We take for granted being able to walk around or even go on a morning jog. Some people with severe Alpha Antitrypsin Deficiency put themselves at risk when doing these activities. Show your support by getting informed.

The Li Weibo Institute for Rare Diseases Research’s goal is to accelerate the development of novel therapeutics for a host of rare diseases/disorders through innovative research platforms (e.g. gene therapy, RNAi).

Alpha-1 Antitrypsin Deficiency Symptoms are similar to that of Asthma, difficulty breathing, wheezing, and constant coug...
11/13/2019

Alpha-1 Antitrypsin Deficiency Symptoms are similar to that of Asthma, difficulty breathing, wheezing, and constant coughing. If you have undiagnosed Asthma get tested today! And do your part by reading up on Alpha Antitrypsin Deficiency, and what we are doing to cure it.

Alpha-1 Antitrypsin Deficiency

Alpha-1 Antitrypsin Deficiency is when the ATT proteins in your body are not shaped correctly. This causes them to get s...
11/04/2019

Alpha-1 Antitrypsin Deficiency is when the ATT proteins in your body are not shaped correctly. This causes them to get stuck in the liver cells. This can lead to serious liver or lung damage. Help out by spreading the word.

Alpha-1 Antitrypsin Deficiency

Between age 1 and age 4, language skills in children who have Rett Syndrome start to rapidly decline. As it progresses, ...
10/30/2019

Between age 1 and age 4, language skills in children who have Rett Syndrome start to rapidly decline. As it progresses, they will also become socially anxious and will stay away from any kind of social situations. This is just one of the signs that your child might have Rett Syndrome. Do you know the signs?

Rett Syndrome

It is the final week of Down Syndrome Awareness month, although the month is ending, we still need to be aware of Down S...
10/27/2019

It is the final week of Down Syndrome Awareness month, although the month is ending, we still need to be aware of Down Syndrome. This disease affects millions, both directly and indirectly. Continue to spread the word in order to help find a cure for Down Syndrome.

Down Syndrome

Rett Syndrome impairs a child ability to speak, walk, eat, and even their ability to breathe.
10/23/2019

Rett Syndrome impairs a child ability to speak, walk, eat, and even their ability to breathe.

Rett Syndrome

Rett Syndrome stunts growth of children. The brain does not grow properly, which makes the head of the child smaller tha...
10/23/2019

Rett Syndrome stunts growth of children. The brain does not grow properly, which makes the head of the child smaller than normal. The clear stunted growth becomes more and more clear as the child becomes older. Do your part this month by reading about this disease and many other rare diseases.

The Li Weibo Institute for Rare Diseases Research’s goal is to accelerate the development of novel therapeutics for a host of rare diseases/disorders through innovative research platforms (e.g. gene therapy, RNAi).

In the United States, Down Syndrome gets the least funding from the National Institutes of Health out of all the major g...
10/23/2019

In the United States, Down Syndrome gets the least funding from the National Institutes of Health out of all the major genetic conditions, even though it is the most common chromosomal condition today. Does this make sense? Spread awareness about Down Syndrome this month.

The Li Weibo Institute for Rare Diseases Research’s goal is to accelerate the development of novel therapeutics for a host of rare diseases/disorders through innovative research platforms (e.g. gene therapy, RNAi).

Rett Syndrome is extremely serious. It can be fatal in as little as 2 years for infants. Even though the average life sp...
10/11/2019

Rett Syndrome is extremely serious. It can be fatal in as little as 2 years for infants. Even though the average life span of someone with Rett is their early 40s, many patients never live to see 30. Learn more about the battle with this disease on our rare disease section of our website.

Rett Syndrome

Rett Syndrome begins to show symptoms 6 months after a child is born.
10/10/2019

Rett Syndrome begins to show symptoms 6 months after a child is born.

Rett Syndrome

In 1983 the average life span of someone with Down Syndrome was 25. Today that number has more than doubled and the aver...
10/09/2019

In 1983 the average life span of someone with Down Syndrome was 25. Today that number has more than doubled and the average life expectancy of someone with Down Syndrome is 60. One day we hope Down Syndrome will have no affect on life span, and eventually a cure will be found. Spread the word this month for Down Syndrome awareness month.

The Li Weibo Institute for Rare Diseases Research’s goal is to accelerate the development of novel therapeutics for a host of rare diseases/disorders through innovative research platforms (e.g. gene therapy, RNAi).

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