Pray for Gage

02/14/2024

With tears of joy and a humble heart, I thank each one of you for your incredible contribution to Gage's medical fund. You have not only provided financial assistance but also brought comfort and solace to our family during this difficult journey.❤️🫶🏼

02/12/2024

I have updated Gage’s GoFundMe please share, thank you to all who have continued to pray and support our son and us through this challenging process.

On February 13th 2023 our lives changed forever when our beautiful 5 month old boy Gage was sent to … Nakita Christensen needs your support for Pray for Gage

02/12/2024

We recently consulted a sleep specialist, and the experience was quite comprehensive. Gage and I are scheduled to stay overnight at their facility in May for his inaugural sleep study. Gage has been facing challenges with daytime naps and nighttime sleep. He has received a preliminary diagnosis of obstructive sleep apnea, and there has been significant consideration given to integrating an oxygen machine and CPAP machine into his sleep regimen. Additionally, we plan to consult with an ENT specialist to explore the potential for adenoid removal.

I've been tirelessly working to update Gage’s GoFundMe page, and we're preparing to reshare it in the next couple of days. Unfortunately, we've encountered a significant challenge as some of the essential equipment and supplies he requires isn't covered by our insurance. This has placed a considerable financial strain on us, especially since we narrowly exceed the threshold for Medicare and disability assistance, leaving us without the support we desperately need. As a result, we're reaching out for help as we navigate this challenging situation.

12/21/2023

12/21/2023

Gage is working hard today before his holiday break!

12/04/2023

Hey everyone,

I wanted to give you all an update after Gage's ophthalmology appointment today. The doctor has decided that he needs to have eye muscle surgery for both eyes. However, before we can move forward with the surgery, he needs to see a cardiologist to determine if he requires a special cardiology anesthetist for the procedure. Luckily we see his new cardiologist in 2 weeks, which has me both super nervous due to the unknown of possible complications and relieved that we are making progress on helping him have a better opportunity to thrive.

As a result, the surgery will be scheduled to take place after April. We appreciate all of your support and well wishes during this time. We'll be sure to keep you updated on any further developments.

Thank you for love and prayers!

11/21/2023

Needing extra prayers this morning🙏🏼 Beebee is taking Gage to the hospital for an emergency X-ray due to his belly being super distended, weird bulging, and the discomfort he was in last night.

11/18/2023

Dear friends and family, it’s with heavy hearts that we share the news that our sweet Gage has been diagnosed with a very rare genetic neurodevelopmental disorder called KAT6A. We are navigating uncharted territory, and your love and support mean the world to us. Please keep our family in your thoughts as we embark on this journey. 💙

07/18/2023

That’s the first time I have ever seen him reach for something, and I caught it on camera🥹
Thank you god, for giving my baby boy strength and for continuing to give him strength throughout his journey.

07/09/2023

Little update
So at his pediatrician appointment last Monday Gage weighed 16lb 10oz. Dr Kotas showed how Gage was now in the 3% for his weight. He said he was going to message Gage’s GI with the update and express concern for his weight so they will be proactive in seeing Gage quicker.
Today we weighed Gage and he’s 16lb 4oz, I becoming more and more concerned for his weight because he hasn’t gained anything since June 1st which was his last GI appointment.
I then noticed in todays photo how tiny his arms were getting and his little rolls were starting to disappear. Maybe I have a little PTSD from the first hospital visit but a little part of me wants to take him to the children’s ER just to force them to see Gage and actually do something about it. We see Dr. Goyal on Thursday🤦🏽‍♀️ which I’m not happy about, only because he didn’t listen to me June 1st when I first voiced my concerns when this all started. I put the paperwork in to change but he has to approve it and well he hasn’t yet apparently.

So along with seeing Dr. Not So Nice we are also getting a second opinion from a GI at Cooks, which I am very much looking forward too. It will also be interesting to hear what he would like to do, and what he has to say.