Association for Multiple Endocrine Neoplasia Disorders - AMEND

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Association for Multiple Endocrine Neoplasia Disorders - AMEND

Providing information resources and support services to anyone affected by the rare endocrine conditions; MEN, PPGL, ACC and MTC.

Please visit our website for information and to join (free membership). AMEND works hard to provide free information and support services to anyone affected by multiple endocrine neoplasia (MEN), their families and friends. Free welcome packs including MEN Passport and invitation to our Private Facebook Groups are sent to those joining AMEND for free via our website at: www.amend.org.uk. We also provide information and support for people affected by Inherited Phaeochromocytoma and Paraganglioma (PPGL) syndromes and for adrenocortical cancer (ACC) through Phaeo Para Support UK and ACC Support UK, respectively. For Phaeo Para Syndromes visit www.phaeoparasupport.org.uk and for Adrenocortical Cancer visit www.accsupport.org.uk.

28/11/2025

‘Barry’ and ‘Barrioke’ lovers get your raffle tickets now! Our Celebrity Patron, Shaun Williamson, has agreed to record a festive, personalised, Christmas shout-out for the winner of our Christmas raffle - now nicknamed our Barri-affle! Enter now to be in with a chance to win a message for you, your loved one, or even your whole family!

You have until midday on Wednesday 17th December to buy your tickets, and the draw will take place later on the same day with the winner notified immediately. Tickets are £5 each. AMEND will coordinate your request with Shaun.

Buy tickets here https://www.amend.org.uk/news/

🎅🌲🎁

27/11/2025

PLEASE READ!
With Black Friday and Christmas rapidly approaching many of you will be making a lot of online purchases over the coming weeks.

You can do something extraordinary, by doing the ordinary - shopping online. No extra time, no extra effort, no extra cost.

When you shop online with participating retailers, they'll donate part of what you spend to your chosen cause. Whether you shop on your phone, laptop or tablet, you can earn free cashback donations for your cause.

The retailer just needs to know you are an easyfundraiser to give a donation, and they know this if you visit them from the easy fundraising website, app or Donation Reminder.

The Donation Reminder is for mobiles, tablets and PC’s. It will pop up when a donation is available as you shop. You need to keep the easy fundraising app installed on your phone to power the donation reminders.

Helen in the office says she cannot stress how easy it is to use and raise funds for AMEND at no cost. Helen raised over £4 last week on 2 purchases alone! Imagine if all our members did this?! Edited to add that Helen has since raised another £2 for free!

Sign up here.
https://www.easyfundraising.org.uk/panel/
🎅🌲🎁

15/11/2025

‼ Live Webinar on Medullary Thyroid Cancer!

Time is running out to register for our webinar on sporadic MTC which will be held via Zoom on Wednesday 19th November from 19:00-20:30. This event is FREE so register now so you don't miss out on quizzing our expert medical speakers.

📲https://us02web.zoom.us/webinar/register/WN_pocKAaNEQXK7qGd94GLpuw #/registration

10/11/2025

📣 Today is NET Cancer Day

Share this video, share your story, get involved, help raise awareness!

📲 https://incalliance.org/ncd-2025/

09/11/2025

‼️Tomorrow is NET Cancer Day!

By working with INCA, AMEND is not only helping to raise awareness of neuroendocrine tumours and their symptoms, but also striving to improve the time to diagnosis for these tumours and their care around the world. You can help too by completing the INCA SCAN survey this NET Cancer Day (available in 11 languages).

📲 https://incalliance.org/scan2025/

08/11/2025

With Christmas slowly approaching, AMEND is here for all your Christmas jumper/hoodie/t shirt needs!

Why not take a look and support AMEND during the holiday season. All profits from sales go to support the work of AMEND. Visit our sustainable store for your Christmas shopping! 🎁🎁

https://amend.teemill.com/collection/christmas-2020/

07/11/2025

Its nearly time for our last peer support meeting of the year. This virtual meeting is being held on Zoom on Thursday 20th November 7-9pm.

Join our volunteer Sophie for 2 hours of informal chat and meet others in similar circumstances.

Don't forget to book your place!

https://www.amend.org.uk/patients/support/events/regional-events/

It's good to talk!

06/11/2025

🤩 3-7 November marks Trustee Week!

The Trustee Board of AMEND are the critical friends of AMEND, helping to steer the charity in the right direction, ensuring its legal and financial compliance. Here we share the final 5 members of our current Board and you can find out more about them and why they wanted to get involved on our website. We thank them for all their support 🙏

If you're interested in a Trustee Board role, you'll find information about this there too!

📲 https://www.amend.org.uk/how-we-are-governed/

05/11/2025

❓Why mark NET Cancer Day this November 10th?

Neuroendocrine tumours arise from neuroendocrine cells, which are specialised cells that receive signals from the nervous system and respond by releasing hormones. In our AMEND patient communities, these tumours include, phaeochromocytomas, paragangliomas, medullary thyroid cancer, and duodenopancreatic tumours.

Find out how to get involved on November 10th, by visiting the NET Cancer Day website (courtesy of INCA).

📲 https://incalliance.org/ncd-2025/

03/11/2025

🤩 3-7 November marks Trustee Week!

The Trustee Board of AMEND are the critical friends of AMEND, helping to steer the charity in the right direction, ensuring its legal and financial compliance. Here we share 5 members of our current Board and you can find out more about them and why they wanted to get involved on our website. We thank them for all their support 🙏

If you're interested in a Trustee Board role, you'll find information about this there too!

📲 https://www.amend.org.uk/how-we-are-governed/

29/10/2025

🚴👏🫶 During September, Alex Shanks cycled (uphill!) the 1000 miles from Land’s End in Cornwall to John O’Groats in Scotland in aid of AMEND and in honour of his work colleague Jane who has MEN1. It was a huge effort that I just had to chat to both Alex about the ride, and Jane about being his inspiration for the ride! I found out answers to important questions like 'why ride this uphill?!'

You can watch the whole video via our website as well as sponsor Alex to help him reach his fundraising goal! Thanks

📲 https://www.amend.org.uk/1000-miles-for-amend/

cottages.com

27/10/2025

Race to the AMEND shop for all your Christmas card needs! 🏃‍➡️🏃‍♀️‍➡️

All our cards are now £4 for a pack of 10 cards in 2 different designs. All prices shown include postage.

To order cards or any of our other fabulous merchandise please use the following link:
https://www.amend.org.uk/product-category/merchandise/
🎄🎅❄️

Address

Tyler House, 58-66 Morley Road
Tonbridge
TN9 1RA

Opening Hours

Monday	09:00 - 17:00
Tuesday	09:00 - 17:00
Wednesday	09:00 - 17:00
Thursday	09:00 - 17:00
Friday	09:00 - 17:00

Website

https://www.amend.org.uk/

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Our Story

AMEND works hard to provide free information and support services to anyone affected by rare diseases of the endocrine system, including multiple endocrine neoplasia (MEN), succinate dehydrogenase (SDH) syndromes and adrenocortical cancer (ACC). Free welcome packs including MEN Passport and invitation to our Private Facebook Groups are sent to those joining AMEND for free via our HONCode certified website at: www.amend.org.uk.