Mind my Pain

04/11/2025

Here I am at Parliament House in Canberra today! Three years ago on Melbourne Cup Day, I had my first Zoom with PainAustralia and shared my MINDmyPAIN Health Management Journal - created to help patients, carers, and families keep track of illnesses, surgeries, medications, appointments, care teams, and sensitive medical info in one place.

Today I’ve been invited by Painaustralia, as a member of their Consumer Advisory Board, alongside Palliative Care Australia to the Parliamentary Friends event to discuss the role of pain management in palliative care. We’re calling for stronger policy and investment to better support people living with pain as part of life‑limiting illness.

Feeling grateful, focused, and hopeful for change.

01/09/2025

🌍💜 September is International Pain Awareness Month – a global campaign helping to spread awareness of issues related to pain.

Chronic pain affects 3.6 million Australians. It’s often invisible, hard to describe, and can leave people feeling unheard and misunderstood.

This month, Painaustralia is:
✨ Aiming to highlight the impacts of chronic pain
✨ Raise awareness around chronic pain
✨ Encourage people living with pain to speak up, seek support, and start conversations about their experiences.

👉 Learn more, explore resources, and get involved here: https://www.painaustralia.org.au/ipam-2025

21/07/2025

The Chronic Pain Journal Healthcare Professionals Recommend.

What if there was a better way to stay organised and in control?

Struggling to track your pain patterns, medications, and appointments? You're not alone.

Kim Sullivan created MINDmyPAIN Health Management Journal after 24 years of managing chronic pain. This comprehensive journal helps you to

✅ Organise medical appointments and telehealth appointments
✅ Have all 'your team' details listed in one place
✅ Monitor medication effectiveness, dosages and management
✅ Communicate clearly with healthcare providers
✅ Recognise patterns for better self-management

Now being used in hospitals and featured in pain management programs across Australia.

Read the Chronic Pain Australia article here https://mindmypain.com/news and discover how organising your health can give you back control.

This 6mth journal is designed to organise all your medical information in one place 80g white A5 Sectioned by TABS facilitates ease of search Medical Teams Appointments Immunisation History Current Medications and Medication History Illness, Surgical and Anaesthetic History Triggers Exercise Meditat...

26/05/2025

🗣️ Pain is silent, they need to hear our voices.

Take the survey now. Help drive change in chronic pain.

💪 Your voice matters. Your experience counts.
👉 Take the survey today and be part of the change.

It will only take 15 minutes to complete. This week is the last chance for your voice to be counted https://redcap.hmri.org.au/surveys/?s=AEM7AWMMN4KE7RTY

Please complete the 2025 National Pain Survey with Chronic Pain Australia to support advocacy for you.

We are asking politicians to make integrated pain management more accessible and affordable to the 3.6 million Australians living with chronic pain.

Chronic Pain Australia (CPA) is dedicated to supporting and advocating on behalf of people with chronic pain. Our 2025 National Pain Survey invites people living with chronic pain and their carers to share their experiences.

26/05/2025

Powerful insights from last week's Australian Ethical Health Alliance Symposium in Sydney!
Joined by Painaustralia CEO Monika Boogs and fellow Consumer Advisory Board Member Mary-Lynne Cochrane, we heard from exceptional speakers including Professor Michael Kidd, Dr Emily Kirkpatrick, Professor Stacy Carter, Professor Christopher Bain, Nina Roxburgh, moderated by Journalist Natasha Robinson Health Editor for the Australian, and Tracey Duffy Department of Health and Aged.

Key takeaways:
- Healthcare misinformation isn't just about wrong facts - it actively delays treatment, disrupts care continuity, and erodes the essential trust between patients and providers.
- Every speaker prioritised the impact of the consumer and patient above all else.

Natasha Robinson summed it up perfectly, noting how reassuring it was to witness our experts truly listening to and centring the patient experience in their work.

In an era where misinformation travels faster than truth, safeguarding integrity in healthcare has never been more urgent. When we prioritise evidence-based care and transparent communication, we protect both individual patients and public health.

14/05/2025

Anyone else not sleeping due to menopause? Your participation in this research will contribute to valuable advancements in women’s health 🙌
The study is open to women Australia-wide aged 45-65.

I’ve been taking a medicinal cannabis capsule at night for the last 2 months and I’m finally getting a full night’s sleep 😴 after years and years of living on very limited sleep - Life changing 🙌

Are you a woman going through peri-menopause or are you post-menopausal (12 months since last period) and suffering from symptoms such as hot flushes, night sweats, sleep problems, fatigue, muscle or joint pain, vaginal dryness and discomfort during s*x, urinary symptoms, mood changes including anxi...

20/02/2025

Thank you Chronic Pain Australia for sharing my story. What began as a way to make sense of my own health journey has evolved into something truly meaningful. When people tell me the MINDmyPAIN journal feels like I 'read their minds,' it validates exactly what I hoped to achieve - a communication tool that understands the complex needs of people living with chronic pain. 💙

With the arrival of the new year, it’s an opportunity for many of us to review and refine our chronic pain self-management strategies for the year ahead. The MINDmyPAIN Health Management Journal is a powerful resource that can support others in navigating their pain management more effectively, bringing order to things out of our control. 💙

'As people living with chronic pain, we need a resource that documents our own health records and information that is not reliant on doctors or medical teams. One that can be instantly accessed anytime, and can be seen by our family, carers, different medical teams, etc. so we are all working together to get the best possible outcome.' 💙

As I always say, 'Pain is silent, and we need a voice.' I'm grateful to Chronic Pain Australia for helping amplify this message and supporting a tool that empowers people to take control of their own health management. 💙

Please read the full article here https://chronicpainaustralia.org.au/blog/mindmypainwithkimsullivan/

Kim Sullivan, drawing from her own journey, has created a powerful resource to support others in navigating their pain management more effectively.

21/09/2024

📣 Wear it Red day! 💃 Media Launch 🎥
What an honour to be the voice of the consumer, representing the 3.6 million people living across Australia with chronic pain.
is an initiative by PainAustralia supported by and 's Panadol.

We raised awareness 🙌, we wore it red ❤️, and pharmacies across Australia dressed their stores up all in red 🪭 to support those living with chronic pain.

In the voice of Giulia Jones CEO of PainAustralia
Speak about your pain 🗣️
Get your pain treated!
You can live well ❤️

27/08/2024

Today, I had the privilege of speaking at the University of Sydney in my role as Chronic Pain Consumer Advocate for PainAustralia, sharing my experience of managing chronic pain with fourth-year Physiotherapy students. This presentation allowed students to gain a deeper understanding of patient experiences and develop essential skills for effective patient-practitioner relationships. Painaustralia

22/08/2024

Very excited about attending this Wellbeing Summit

Join us for the 2024 Women’s Health and Wellbeing Summit, an event dedicated to supporting the health and wellbeing of Australian women both at home and at work.

Click the link for more information and to buy tickets.

https://events.ringcentral.com/events/2024-women-s-health-summit/registration

22/07/2024

Be in control of who sees your sensitive health information and data.
Record and then present your own data in appointments.

💪 Be your own advocate.
💪 Be seen. Be heard.
💪 Be believed... and don’t have your pain dismissed.

MINDmyPAIN Health Management Journals are being used throughout Australia in NSW Health, QLD Health and SA Health.

Buy yours today, and take back control of your PAIN.

National Pain Week 2024

Chronic pain self-management journal helps monitor and record health and wellbeing, organise details of doctor's appointments, medical history and medication