PBC Foundation

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PBC Foundation

The PBC Foundation is the only UK organisation dedicated to providing support and information to those affected by Primary Biliary Cholangitis (PBC).

The PBC Foundation is a UK-based organisation dedicated to providing support and information to those around the world affected by Primary Biliary Cholangitis (PBC).

24/01/2026

There is a Community Café meeting coming up tomorrow:

☕ Sunday 25 January: Nottinghamshire Community Café (in person) | 11am - 1pm UK time

Log-in is required to ensure the meetings are kept as safe spaces. If you are already registered with the Foundation, click on the event entry on our Events webpage for more information about the meetings and for links to the online meetings. If you are new to the Foundation, you can also use the links to register with us for free. You will also need to complete a short Community Café Registration Form.

Visit our Events webpage for more information: https://www.pbcfoundation.org.uk/events/

23/01/2026

This week's Q&A with Prof David Jones and Mo Christie (Head of Patient Services) is now available on our YouTube channel and can be viewed here: https://youtu.be/ODdcl7HYgQQ

Previous Q&As and other videos are also available on our YouTube channel: https://www.youtube.com/pbcfoundation

Please remember that these Q&As do not take the place of a consultation with your own clinician – we aim to provide general medical information and not medical advice in these sessions. We will generalise your questions to support that, if you need help with a more detailed issue, please contact us on the helpline +44 (0)131 556 6811.

This Q&A was sponsored by Mirum Pharmaceuticals, who did not participate in the session or have input into its content.

22/01/2026

The PBC Foundation is attending a British Association for the Study of the Liver (BASL) meeting in Birmingham today, where PBC features on the agenda.

22/01/2026

Our next Transplant Journey online meeting takes place at 6pm UK time next Thursday, 29th January.

Research and experience show that when patients - and their loved ones - meet someone who has successfully gone through a liver transplant, see how well they're doing years later, and have the opportunity to ask questions about the process, it can be both informative and deeply reassuring.

Login is required to keep this a safe space. If you are already registered with the Foundation, click the link below for information about how to join. If you are new to the Foundation, you can also use this link to register with us for free: https://www.pbcfoundation.international/members/login-register/?redirect=16071

Please email Mo mo@pbcfoundation.international if you would like more information or have any questions about these sessions.

22/01/2026

Our next Men with PBC session is next week on Wednesday 28 January at 7pm UK time.

These meetings are an opportunity to meet and chat with other men affected by PBC.

Although men are welcome at any of our meetings, we’ve responded to the need from the community to have a space just for men.

Here's what one of the attendees has said about these meetings: "By attending the monthly session with other men I don't feel alone. I look forward to chatting with others who understand."

Login is required to keep this a safe space. If you are already registered with the Foundation, click the link below for information about how to join the session. If you are new to the Foundation, you can also use this link to register with us for free: https://www.pbcfoundation.international/members/login-register/?redirect=16069

21/01/2026

Our CEO vlogs have returned!

CEO vlogs will be shared monthly, and the latest vlog can be viewed here: https://youtube.com/shorts/dD8lt9bp3bM?feature=share

Links are provided below if there is anything mentioned in the video that you would like to get involved in, or if you would like more information about any of the topics:

🟣 For more information/general enquiries: info@pbcfoundation.international

🟣 Fundraising: https://www.pbcfoundation.international/get-involved/fundraising/

🟣 Donate: https://www.pbcfoundation.international/get-involved/donate/

🟣 Surveys:
For general information about surveys: https://www.pbcfoundation.international/research-hub/surveys/.
To access current surveys via our website, log into your account, visit your account page, and click on Available Surveys https://www.pbcfoundation.international/members/login-register/?redirect=143
Surveys can also be accessed using the PBC Foundation app and the app can be downloaded using the following links:
Apple device: https://apps.apple.com/gb/app/pbc-foundation-self-management/id1225705494
Android device: https://play.google.com/store/apps/details?id=uk.org.pbcfoundation.pbcapp1

21/01/2026

Our first Q&A of 2026 is tomorrow, Thursday 22 January, at 2pm UK time when Prof David Jones will be answering your questions about PBC.

If you have any questions, please submit them by using the contact form on our website: https://www.pbcfoundation.org.uk/contact-us/.

Watch the Q&A live in the private room using this link: https://pbcfoundation.clickmeeting.com/pbc-q-a. A recording of the full Q&A will also be shared to YouTube after the live Q&A and we will share the link to access the recording in one click.

Previous Q&As and other videos are also available on our YouTube channel: https://www.youtube.com/pbcfoundation

Please remember that these Q&As do not take the place of a consultation with your own clinician – we aim to provide general medical information and not medical advice in these sessions. We will generalise your questions to support that, if you need help with a more detailed issue, please contact us on the helpline +44 (0)131 556 6811.

19/01/2026

Our first Q&A of 2026 is on Thursday at 2pm UK time when Prof David Jones will be answering your questions about PBC.

If you have any questions, please submit them by using the contact form on our website: https://www.pbcfoundation.org.uk/contact-us/.

Watch the Q&A live in the private room using this link: https://pbcfoundation.clickmeeting.com/pbc-q-a. A recording of the full Q&A will also be shared to YouTube after the live Q&A and we will share the link to access the recording in one click.

Previous Q&As and other videos are also available on our YouTube channel: https://www.youtube.com/pbcfoundation

Please remember that these Q&As do not take the place of a consultation with your own clinician – we aim to provide general medical information and not medical advice in these sessions. We will generalise your questions to support that, if you need help with a more detailed issue, please contact us on the helpline +44 (0)131 556 6811.

19/01/2026

Our next Choose Me Tuesday self-care session is tomorrow at 6pm (UK time).

The theme this week is: Winter Wellbeing.

Here's what one of the regular Choose Me Tuesday attendees has said about the sessions:
"Since joining the sessions last October I feel that this was one of the best. I particularly liked the way the session was structured with a real focus on mindfulness and guided breathing.

It is also helpful that you have a recap at the beginning of the session and summary at the end in terms of learning/key take away points and going forward.

Since joining these sessions I feel I have really benefited in terms of developing a tool kit, hints and tips from others and forming connections.

Thank you so much, your knowledge and skills are much appreciated."

This is a safe space and login is required. If you are already registered with the Foundation, click the link below to join as usual. If you are new to the Foundation, you can also use this link to register with us for free: https://www.pbcfoundation.international/members/login-register/?redirect=13031

17/01/2026

Join us for a chat at a Community Café meeting.

There are a few opportunities to join a Community Café meeting this week:

☕ Monday 19 January: South Hampshire Community Café (in person) | 10:30am - 12:30pm UK time

☕ Saturday 24 January: Essex Community Café (in person) | 10:00am - 12:00pm UK time

☕ Sunday 25 January: Nottinghamshire Community Café (in person) | 11:00am - 1:00pm UK time

Log-in is required to ensure the meetings are kept as safe spaces. If you are already registered with the Foundation, click on the event entry on our Events webpage for more information about the meetings and for links to the online meetings. If you are new to the Foundation, you can also use the links to register with us for free. You will also need to complete a short Community Café Registration Form.

Visit our Events webpage for more information: https://www.pbcfoundation.org.uk/events/

16/01/2026

**New campaign: This is My PBC **

This is My PBC is a disease awareness initiative developed and funded by Ipsen, that seeks to raise awareness of the need for people living with PBC to know more about their disease and understand that everyone’s experience is different – and valid.

Getting to know your PBC can help you to take charge of your PBC journey. By understanding your own condition, your own biochemistry, your symptoms and how PBC affects you, you will have more influence on your daily quality of life.

Discover resources to help you get the most out of your appointments and real experiences from people living with PBC.

Visit our 'This is My PBC' webpage here: https://www.pbcfoundation.international/living-with-pbc/this-is-my-pbc/

15/01/2026

** No Q&A this week **

Please be aware that there will be no Q&A this week, Thursday 15 January.

The Q&A will return next week when Prof David Jones will be answering your PBC questions. If you would like to submit a question for the next Q&A, please use the contact form on our website: https://www.pbcfoundation.org.uk/contact-us/

In the meantime, our YouTube channel is available where we have an extensive collection of videos, including previous Q&As, patients' stories, and other videos: https://www.youtube.com/pbcfoundation

Please remember that these Q&As do not take the place of a consultation with your own clinician – we aim to provide general medical information and not medical advice in these sessions . We will generalise your questions to support that, if you need help with a more detailed issue, please contact us on the helpline +44 (0)131 556 6811.

Address

Unit 1, Dunfermline Business Centre, Izatt Avenue

KY113BZ

Opening Hours

Monday	09:00 - 17:00
Tuesday	09:00 - 17:00
Wednesday	09:00 - 17:00
Thursday	09:00 - 17:00
Friday	09:00 - 16:30

Telephone

+441315566811

Website

http://www.pbcfoundation.org.uk/

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