Abigail, a caregiver

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Abigail, a caregiver

Hence this "Abigail, a caregiver" Page.

As a caregiver of someone with Alzheimer's disease I decided to open my heart, find more focus ~ and surround myself with Facebook friends and family in a more private way.

02/05/2022

My husband enjoys my company, our activities- and the care I give him- at the nursing home. Then, I notice he has forgotten who I am. So I hold him and say, "darling love, it's Abby, your wife". He smiles in recognition and says, "For how long?" I laugh.

It's not hard to keep loving him. It's just more creative. And it's become a little easier to redirect him when I leave. The nurses and aides help me with that.

14/12/2021

As one boisterous evening nurse reassured me: "Don't you worry, sweetheart; I've got him covered. Ever since he played "happy birthday" for me he's my best friend. 💕 (at Crown Heights Rehab and Nursing Center)

18/11/2021

I'm breathing in the beauty of the reservoir, my healthy body and soul floating around it in the warm sun, opening my pores ...
Just now I had an intense wave of grieving, not for myself, but for the traumatic and accelerating deterioration of my sweetheart's brain.

14/11/2021

We're navigating unpredictable waters now. Especially at night, when he feels more lost. I treasure my caregiving family more than ever as we weather the storms of a backfiring brain -with love.

05/11/2021

Every morning, noon ~ and night ~ I discover more beauty and possibility in my life experiences.
My husband continues to soldier on.
Our help community takes such wonderful care of him. He is kept safe as he struggles to stay afloat.
I allow myself to go through the devastating feeling of losing him. Only to then come out the other side with some kind of lightness. The activity of loving is not as complicated as it once was. The tides of our relationship is ebb (keep distant) and flow (hug) now.

15/09/2021

Ongoing dementia of a loved one, experienced by me and my caregiving team:
He talks, we look at him, hoping to understand, to connect. But we don't.
His fear causes him to unleash and lash out. We scramble to calm him down.
He plays piano constantly, we join, we listen and show love.
He hugs me and asks "are we home now... ?"
I hug him back because physical closeness is the ultimate connection I have with him.

13/08/2021

Fevers, shivers, sudden confusion, hospital, no diagnosis, fever, cool shower together, forgets what to do next, home aides who are there and caring...
he finally finds peace
- and rests with our playlist of YouTube videos.
I find ways to express myself.

21/07/2021

And now the seemingly endless, ever anxious, misunderstood, lonely, sudden downward spiral of my husband dementia is underway. And I can only care for him - and even more for myself.

16/06/2021

Respite, however short, starts with "how do I deal?", then, "breathe, move, stretch girl!" then, "how beautiful the summer looks on the Hudson!", then "hello, beautiful people, smells, sounds, surprises!" And finally, "Oops, time to head back before our home aide leaves!"
🎶💕🌷

07/06/2021

Sometimes the only safe and loving way to navigate caregiving for my sweetheart is to regularly clear out the cobwebs of worry that form in my mind.

31/03/2021

New experience today
living with a human being suffering from old habits mixed with Alzheimer's ~~~~~~
Received: verbal abuse from fear;
Given back: totally calm "non-reaction paired with creative action.
Feels new and bigger
than me ... somehow ...

07/03/2021

Half of me stays put... the other half wants to fly somewhere else.
This too shall pass.

Address

Telephone

+19179032146

Website

http://abigaillumsden.bandcamp.com/

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