Muscular Dystrophy Australia

10/12/2025

Last week we had the pleasure of welcoming members of our community into our new office space for the launch of our Client Care Packs. Designed thoughtfully by our team, these packs include a printed copy of our FREE 'Guide to Navigating Life with a Neuromuscular Condition' along with a selection of curated gifts.

A heartfelt thank you to our wonderful volunteer knitters, the MDA Divas, as well as and for their generous contributions to these care packs.

Thank you to our community for joining us on this special day 🧡

To enquire about our support services and download your free resource, click on the link: https://www.mda.org.au/navigating-life-with-a-neuromuscular-condition

05/12/2025

Happy International Volunteer Day! 💙

Our work wouldn't be possible without the heart and dedication of our amazing volunteers. Shout out to Ben (featured above) ⭐ and all our Client Services, administration, program, and activity volunteers who give their time, skills, and passion to support our community with such care.

Special recognition to the MDA Divas, our talented volunteer knitters who lovingly create comforting shawls for people living with neuromuscular conditions. Every stitch is made with warmth and care. 🤍

Every contribution they make creates meaningful ripple effects throughout our community. We thank them for being part of what makes MDA special.

Want to help our volunteer knitters? We'd love donations wool to support them in creating more beautiful shawls for our community. Reach out to find out more.

02/12/2025

Happy International Day of People with Disability! 💜

This year's theme — Fostering disability inclusive societies for advancing social progress — reflects what our community knows to be true: when we create genuinely inclusive societies, everyone benefits.

Today we celebrate the thousands of Australians living with neuromuscular conditions who prove every day what's possible. Like Fid, pictured on the right who hosts our Wheels & Reels fishing events —one of which is happening right now at Mordialloc Pier!

From powerchair athletes and disability advocates to business owners, artists, and community leaders, our community is advancing social progress by living life fully and authentically.

True inclusion means removing barriers, amplifying voices, and creating opportunities for everyone to participate. Whether it's accessible fishing events, powerchair sports, or community programs, let's build a future where disability representation is the norm.

28/11/2025

Registrations for Camp MDA 2026 are NOW OPEN! 🎉

Ready to experience Camp MDA for yourself?

Join us April 10-12 2026 for three transformative days where young people aged 10-17 with neuromuscular conditions connect with peers who understand, build real confidence, and have an amazing time.

From fun and adaptive activities to inspiring speakers and lifelong friendships: Camp MDA is where magic happens.

👉 Register now: https://www.mda.org.au/camp-mda -form

26/11/2025

We're inviting all members of the NMD community including clients, families, carers to take part in our annual stakeholder survey.

👉 Take the survey: https://www.surveymonkey.com/r/TRW3DQT

Your insights are essential in helping us understand community needs, evaluate our services, and guide strategic priorities for the year ahead.

✔ 10–15 minutes to complete
✔ Anonymous participation
✔ Optional entry into a $500 Prezzee eGift card draw

We appreciate your time, your honesty, and your ongoing partnership. Please feel free to share the survey within your networks—every voice strengthens our collective impact.

25/11/2025

🏃🏽 It’s official! You can join us as a Superstar and run for MDA at the HOKA Half Marathon! By running, you’re helping make a real difference for individuals living with neuromuscular conditions.

Every kilometre you run supports vital services, programs, and research.

Don’t miss out. Spots are limited. Sign up now, and let’s make every step count together! 🧡

https://runawaysydneyhalf2026.grassrootz.com/muscular-dystrophy-australia/vip/new

22/11/2025

Fancy a day by the water, catching dinner (or simply enjoying the experience)? Join MDA’s resident fisherman, Fid, for a free session where you can try fishing in an inclusive and accessible environment, perfect for all ages and abilities.

The session takes place on Wednesday 3 December, which is International Day of People with Disability (IDPwD). It’s a wonderful chance to try something new, connect with the community and celebrate together. Carers and family members are warmly invited to join in the fun.

Event Details:

📅 Wednesday 3rd of December
🕙 10am-12pm
📍 Mordialloc Pier, Mordialloc

Register via the link here: Register for Wheels & Reels - Fishing with Fid

21/11/2025

It is not every day that you get to chat with the author of the book you are reading.

For our very first MDA Book Club, internationally bestselling and critically acclaimed writer Dervla McTiernan will be joining us to talk about her gripping thriller and MDA’s December read, 'What Happened to Nina?'

Join us on the evening of Thursday 11th December for lively conversation and thoughtful discussion about this page-turner. Sign up to the MDA book club here: https://www.mda.org.au/mda-book-club -form

11/11/2025

What happens when a child who feels isolated finds a community where they belong? Watch Emma's story 💙💛

Your donation funds programs that change lives. Help more children feel less alone this holiday season.

Emma, 12, was diagnosed with Charcot-Marie-Tooth disease. After years of hospital visits and feeling isolated, she found something life-changing at Camp MDA: community,…

06/11/2025

Hey MDA community 💙

We’ve got some exciting news to share! After many years of connecting with you through our current Instagram page, it’s time for a fresh start. Our old account is no longer giving us the features we need to properly share stories, updates, and connect with our amazing community — so we’re moving!

You can now find us at
We’d love for you to follow us there and continue being part of the MDA journey.

See you on our new page!

https://www.instagram.com/musculardystrophyaus