Lamar's TSC Story

04/03/2024

VOTE FOR LAMAR!!!



Lamar has been entered into a competition with KidPic.

With your vote he stands a chance of winning some cash that will directly be paid into his backabuddy fund to cater for his upcoming surgery.

Please VOTE for Lamar as it will increase his chances of wining.

Lamar is the sweetest boy ever. He loves playing outside with his toys, especially with his dinosaurs. What makes him so special is his underlying condition that is invisible to the eye and what keeps us as a family going even when he confronts a seizure or two a day. His our superhero.

26/02/2024

24/02/2024

To support in our fight against TSC "please visit our fundraising page" and help in any way you can. Thank you

Here is the link to our campaign: https://www.backabuddy.co.za/lamar-solomons-5594360084383864398

My son Lamar is just five years old and has been diagnosed with Tuberous Sclerosis Complex with Epilepsy. A genetic disorder causing tumors to grow in his brain

24/02/2024

Thank you so much family and friends for the unconditional support, love and prayers during Lamar's fight against Tuberous Sclerosis with epilepsy. It was not easy but with God by our side we pulled through.
Even with brain surgery where 4 tumors was removed the disease still progressed and his seizures was not effectively managed due to a remaining tumor.

We remain hopeful and forever on bended knees... GOD HAS BEEN MERCIFUL😭🙏🏼.

With another brain surgery coming up in March 2024, we know God has prepared the path and outcome to his Will.

Being a mother of a child who is just six years old with Epilepsy is not easy. *NEVER HAVE I PROPERLY GRIEVED ANY OF THIS* always being strong for my lil one so that he feels secured when confronting a seizure with mixed emotions but let me tell you - it absolutely terrifying😭😭❤‍🩹.

This journey has been exhausting but I am proud of it all.
PROUD OF YOU MY SONSHINE ❤️.

Four years of endless high fevers, rushing to this and that hospital. Multiple admissions lasting up to two weeks.
CT and MRI Scans, EEG after EEG, heart, kidney, spine and eye scans yearly to check for tumors.
Seizures day and night. Keeping time and noting how long they last (2 min, 5 min, 2 hours)

Medication after medication - Urbanol, Epilim, Lamictin (skin reaction), Sabril (lost of corner eye vision), Keppra, Trileptal.

Increase of appetite, increase and decrease of weight, change of doses with medication, hyperactiveness on a high.

Even with a successful brain surgery done on the 29 May 2023.

We have another coming up in March 2024.
Where the last tumor will be removed.

GOD HAS PLANS FOR YOU MY SONSHINE - YOU ARE A TRUE INSPIRATION - YOU ARE OUR SUPERHERO CHILD - SEIZURE CHILD - WARRIOR - YSTERKIND - HEALING PRAYER - GOD THE FATHER - GOD THE SON - GOD THE HOLY SPIRIT - LOVE - 🙏🏼❤‍🩹

18/02/2024

2nd surgery we are ready for you.

With God by our side🙏💙

23/01/2024

21/01/2024

❤️‍🩹

While most five-year-olds play with dinosaurs and ride tricycles, Lamar Solomons battles a rare genetic condition that causes severe...

01/12/2023

With more and more tests my baby had to go for it was determined that another surgery to remove the remaining tumor will be best.

His seizure are terrible to control that i can admit - meds are not doing their part.

Final MRI Scan confirmed for 18 Dec 2023. And then surgery...

My baby's Dec and Jan holiday not going to be any fun.
My biggest blessing calls me mom ❤

03/11/2023

EEG monitoring loading...



💙

29/10/2023

https://www.backabuddy.co.za/lamar-solomons-5594360084383864398

Lamars Brain Surgery Fund :: Champion Page | BackaBuddy

My son Lamar is just five years old and has been diagnosed with Tuberous Sclerosis Complex with Epilepsy. A genetic disorder causing tumors to grow in his brain - even after he underwent a brain surgery 29th May to remove 4 tumors his still confronting seizures and will have to undergo another surgery for there is still one remaining tumor.

My son Lamar is just five years old and has been diagnosed with Tuberous Sclerosis Complex with Epilepsy. A genetic disorder causing tumors to grow in his brain

25/10/2023

Current situation - Fever keep on spiking.

24/10/2023

Complaining about a headache that allows fever to spike yet again. Epilepsy plus fever causing him not to respond for whole hour.
God you're in control.
Another EEG monitoring due 3 Nov - one brain tumor remaining.