HAE South Africa

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HAE South Africa

HAE S.A is a patient support group aiming to raise awareness of Hereditary Angioedema in South Africa

05/03/2026

Children with HAE require careful management and the right treatment plan. 💜💙

Swipe to learn about treatment options available in South Africa and speak to your doctor about the best approach for your child.

💜💚💙 Read our patient booklet for more information:
https://southafrica.haei.org/3d-flip-book/patient-information-booklet/

28/02/2026

Happy Rare Disease Day 2026! 💜💙💚

As rare disease communities across the world join hands in solidarity, we recognise and thank every part of our HAE community; fundraisers, caregivers, advocates, donors, doctors and patients.

Each of you plays a vital role, and together, we create progress and hope for our community. 🫂

Rare diseases don’t exist in isolation, and neither do the people affected by it. Today, and every day, we stand together. Thank you for being part of our community!! 💜💙💚

27/02/2026

Appreciation Post #6 💚💙💜

Our Patients

Today, we honour our patients - the heart of our HAE community. Everything we do starts with your experiences.

Thank you for backing our patient organisation, from participating in surveys, sharing your stories, taking part in videos, supporting our webinars and meetings, and speaking up - even when it isn’t always easy.

These contributions shape the work we do and help others feel less alone.

26/02/2026

DID YOU KNOW? 🗣 🚨
Research shows that 25% of patients have a spontaneous genetic mutation and did NOT inherited their HAE from a parent.

For more information on HAE & Genetics: https://southafrica.haei.org/hae-for-me/

18/02/2026

Appreciation Post #5 💚💙💜

Our Donors

Thank you to the companies who choose to fund the work we do, making our projects, conferences, webinars and other activities come to life. Your generosity helps us to provide support and vital services to our patients and their families, develop resources and keep pushing for progress in our HAE community.

hereditaryangioedema

17/02/2026

The right diagnosis means the right treatment.
The right treatment means better control, fewer emergencies and improved quality of life.

If symptoms don’t make sense, ask questions.
Learn more about HAE 👉 https://southafrica.haei.org

11/02/2026

Appreciation Post #4 💚💙💜

Our Doctors

Our doctors and healthcare professionals bring expertise, guidance and compassion to our community; from the Sinovuyo Angioedema Centre to a 24-hour emergency hotline, our doctors go above and beyond to diagnose, treat, and provide care for our patients.
Their commitment and compassion makes a real difference in our lives and reminds us of the importance of working together to make living with HAE easier.

hereditaryangioedema

09/02/2026

HAE can be unpredictable. Attacks may happen without warning, which is why having your medication, emergency plan and support system in place is so important.

Preparation = peace of mind.

Learn more about managing HAE 👉 www.southafrica.haei.org

03/02/2026

Appreciation Post #3 💚💙💜

Patient Advocates

Patient advocates help make sure voices in the rare disease community are heard. They speak up, raise awareness, push for better policies and help people find the support they need. Their passion and persistence create real change and make life better for everyone in our community.

hereditaryangioedema

02/02/2026

HAE can be overwhelming at times - the uncertainty, the planning, the “what ifs.” But there’s a whole community standing with you. 💜

Whether you’re newly diagnosed or have lived with HAE for years, HAE South Africa is here to support you every step of the way.

Learn more, connect and find helpful resources 👉 https://southafrica.haei.org

HAECommunity

30/01/2026

Appreciation Post #2 💚💙💜

Caregivers

Your strength, patience and constant support are the backbone of our community.

Thank you for showing up, standing strong and reminding your loved ones they’re never alone.

29/01/2026

Think you know HAE? 💭
Swipe through to separate myths from facts, and learn more about living with HAE on our website 👉 https://southafrica.haei.org

TogetherWeCan

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Cape Town

Website

http://haei.org/southafrica/

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