HAE South Africa

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HAE South Africa

HAE S.A is a patient support group aiming to raise awareness of Hereditary Angioedema in South Africa

23/04/2026

Show us your purple, South Africa! 💜🇿🇦
Hae Day is coming up and we want YOU to be part of it.
Whether you’re walking, stretching, training or simply taking a moment for your wellbeing - do it in purple and tag using 💪💜

📸 Share your photos
💜 Wear your purple
🌍 Be part of the global movement

Let’s raise awareness together, one step at a time.

17/04/2026

💜 HAE Day is coming – 16 May 💜
We’re kicking off the one month countdown to a day dedicated to raising awareness, building community and supporting those living with Hereditary Angioedema.

We’re coming together through movement, connection and a shared purpose. 🌍

Join us by being in purple, so however you move, it counts 💜

Join the challenge 👉 https://haeday.org

Let’s raise awareness.
Let’s show support.
Let’s do it together. 💜

09/04/2026

DID YOU KNOW? 🗣🚨
Up to 25% of people with HAE did not inherit it from a parent, it can occur due to a spontaneous genetic mutation.
💡 This means even without a family history, HAE is still possible.

Learn more about HAE & genetics 👉
https://southafrica.haei.org/hae-for-me/

23/03/2026

HAE South Africa is made up of patients and carers who are in various stages of their HAE journeys. Our peer-to-peer programme allows patients and carers to make contact and support one another by sharing their stories.

💚💙 Want to chat to an HAE Buddy? Visit https://southafrica.haei.org/volunteers/ and fill in your details

05/03/2026

Children with HAE require careful management and the right treatment plan. 💜💙

Swipe to learn about treatment options available in South Africa and speak to your doctor about the best approach for your child.

💜💚💙 Read our patient booklet for more information:
https://southafrica.haei.org/3d-flip-book/patient-information-booklet/

28/02/2026

Happy Rare Disease Day 2026! 💜💙💚

As rare disease communities across the world join hands in solidarity, we recognise and thank every part of our HAE community; fundraisers, caregivers, advocates, donors, doctors and patients.

Each of you plays a vital role, and together, we create progress and hope for our community. 🫂

Rare diseases don’t exist in isolation, and neither do the people affected by it. Today, and every day, we stand together. Thank you for being part of our community!! 💜💙💚

27/02/2026

Appreciation Post #6 💚💙💜

Our Patients

Today, we honour our patients - the heart of our HAE community. Everything we do starts with your experiences.

Thank you for backing our patient organisation, from participating in surveys, sharing your stories, taking part in videos, supporting our webinars and meetings, and speaking up - even when it isn’t always easy.

These contributions shape the work we do and help others feel less alone.

26/02/2026

DID YOU KNOW? 🗣 🚨
Research shows that 25% of patients have a spontaneous genetic mutation and did NOT inherited their HAE from a parent.

For more information on HAE & Genetics: https://southafrica.haei.org/hae-for-me/

18/02/2026

Appreciation Post #5 💚💙💜

Our Donors

Thank you to the companies who choose to fund the work we do, making our projects, conferences, webinars and other activities come to life. Your generosity helps us to provide support and vital services to our patients and their families, develop resources and keep pushing for progress in our HAE community.

hereditaryangioedema

17/02/2026

The right diagnosis means the right treatment.
The right treatment means better control, fewer emergencies and improved quality of life.

If symptoms don’t make sense, ask questions.
Learn more about HAE 👉 https://southafrica.haei.org

11/02/2026

Appreciation Post #4 💚💙💜

Our Doctors

Our doctors and healthcare professionals bring expertise, guidance and compassion to our community; from the Sinovuyo Angioedema Centre to a 24-hour emergency hotline, our doctors go above and beyond to diagnose, treat, and provide care for our patients.
Their commitment and compassion makes a real difference in our lives and reminds us of the importance of working together to make living with HAE easier.

hereditaryangioedema

09/02/2026

HAE can be unpredictable. Attacks may happen without warning, which is why having your medication, emergency plan and support system in place is so important.

Preparation = peace of mind.

Learn more about managing HAE 👉 www.southafrica.haei.org

Address

Cape Town

Website

http://haei.org/southafrica/

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