HAE South Africa

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HAE South Africa

HAE S.A is a patient support group aiming to raise awareness of Hereditary Angioedema in South Africa

10/09/2025

Your Choice Matters - HAE Clinical Trials Explained

HAE can be unpredictable - but decisions about your care shouldn’t be.
Clinical trials are a big commitment, but for some, they could offer access to new treatments, expert monitoring, and a chance to help shape the future of HAE care.

🎥Watch our short explainer video and learn what it really means to take part in a clinical trial.

Full Youtube Video: https://youtu.be/hkQTiVeKFgc

28/08/2025

‘Understanding HAE’ is now available in Afrikaans 🩵💙

The guide is filled with practical information on HAE and its impact on patients, including:

‼️ HAE types, symptoms, and attack triggers
👨‍⚕️ How to diagnose and treat HAE
🤰 HAE and children, women, and pregnancy
✈️ Tips for traveling with HAE
📖 A guide to the many resources offered by HAEi.

You can download and read the guide here https://haei.org/understanding-hae/

25/08/2025

Our WhatsApp groups are used for broadcasting information and updates, and we have a smaller group where patients and caregivers can share experiences and provide support for one another. 💚

We are open to all S.A patients with a confirmed diagnosis of HAE.

📱 Contact us to Join - haeadvocacysa@gmail.com 💚

19/08/2025

'Women with HAE' is now available in Afrikaans 🩷🌸🤰

This guide focuses on the unique challenges faced by women with HAE and covers three life stages: childhood 👧 family planning and pregnancy 🤰 and menopause and aging 👩

Download and read the guide here https://haei.org/women-with-hae/

29/07/2025

Growing up with HAE comes with many challenges, some of which are not easy to talk about. 🗣️ 💜💚💙💛

The youngsters toolkit will serve as a model for managing and advising young HAE patients through issues which usually are left unspoken.
We acknowledge the need for increased support and resources for youngsters as they experience extreme physical and emotional changes.

Additionally, we have realised the lack
of knowledge and advice available to HAE youngsters regarding many of the challenges we hope to address in this toolkit.

📥View and download our HAE Toolkits here: https://southafrica.haei.org/for-youngsters/

12/07/2025

HAE can have a significant impact at school and in the workplace. 📚📋

💡Lack of understanding among teachers and friends can lead to embarrassment and anxiety, and frequently missing classes may cause patients to fall behind in their studies. It may determine career choices and affect productivity if patients are frequently absent from work.

💡Absenteeism can lead to setbacks in careers and patients often fear losing their jobs. The more attacks experienced, the higher the impact becomes.

03/07/2025

WELCOME TO THE WORLD OF HAE💚
“Types & Genetics” (Part 2)💜

Part 2 of a three-part video series explaining symptoms, triggers, types, genetics, diagnosis and treatments. Please share to help us raise awareness!!

Watch full video here: https://youtu.be/VfR7tfwHGZo

19/06/2025

Winter Wellness Reminder ❄️🤧

Cold and flu season is here, and for people living with HAE, infections like these can trigger attacks.

While many HAE episodes occur without a clear cause, some common winter-related triggers include:

🤒 Colds, flu, and other infections
🤕 Minor injuries or physical pressure
🦷 Dental work or surgeries (like tonsil removal)
😵‍💫 Emotional stress
🧬 Hormonal changes

Take extra care this winter! Prioritise your health, follow your HAE management plan, and seek support when needed.

For more information visit: https://southafrica.haei.org

16/06/2025

The world is yours to explore, to challenge, and to change. Happy Youth Day South Africa! 🇿🇦🇿🇦 💜💚💙

15/06/2025

Happy Father’s Day to all you amazing dads out there! 💙💜💚 Have a great one!!

11/06/2025

WELCOME TO THE WORLD OF HAE 💚 Part 1 💜
An easy-to-understand, 3 part educational video series explaining symptoms, triggers, types, genetics, diagnosis and treatments.

🎥View Video here: https://youtu.be/OONuNmN5JsY 💚💙💜

02/06/2025

HAE S.A. works in partnership with , a non-profit organisation advocating to ensure that people living with rare diseases and congenital disorders experience greater recognition, support, improved health service and better overall quality of life.

They offer a host of psychosocial support benefits to members, including:

💙Work related challenges
💚Child counselling
💜Abuse and trauma
💛Crisis management
🧡Coping skills and stress management
💙Depression and anxiety

We encourage our members to join RDSA and
take advantage of the many benefits offered.

For more information visit https://southafrica.haei.org/resources/mental-health/ 🤍

Address

Cape Town

Website

http://haei.org/southafrica/

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