Rare-X 2024 - Rare Disease Conference in Africa

Rare-X 2024 - Rare Disease Conference in Africa Conference facilitating engagement to improve policy and access for rare disease patients in Africa.

RareX is a Rare Disease related Conference & Exhibition, hosted in Johannesburg, South Africa from 13-16 September 2018.

THANK YOU FOR ATTENDING RARE X Rare Diseases South Africa NPC would like to say a huge 'Thank You' to everyone who atten...
20/02/2024

THANK YOU FOR ATTENDING RARE X

Rare Diseases South Africa NPC would like to say a huge 'Thank You' to everyone who attended the Rare X Conference 2024. Your participation is invaluable in our journey to patient advocacy, treatment and policy changes. Here is to many more thought-provoking conversations and seeing a change in the rare disease sphere.

See you at the 2026 Rare X conference!

DAY 3 IN PICTURES Today we bring on the final day and boy are we grateful and excited!
17/02/2024

DAY 3 IN PICTURES

Today we bring on the final day and boy are we grateful and excited!

THANK YOU TO SEPARATIONS FOR THEIR BRONZE SPONSORSHIP AT RARE-X 2024Promolab (Pty) Ltd was founded by Paul Queisser and ...
16/02/2024

THANK YOU TO SEPARATIONS FOR THEIR BRONZE SPONSORSHIP AT RARE-X 2024

Promolab (Pty) Ltd was founded by Paul Queisser and started trading as SEPARATIONS on 1 September 1989 to serve South African scientists with a highly focused, innovative and synergistic line of chromatography supplies.

The need for this service had been clearly identified by him during his previous involvement as founder and director of Saarchem (Pty) Ltd, South Africa’s first comprehensive laboratory chemicals manufacturer since 1977.

So, with chromatography in his head and passion for his customers in his heart, Paul set out to bring the most complete and high- quality combination of chromatography consumables to South African scientist possible.

Since then, this concept of customer- centric products and exceptional support has continued until today and has been the driving force behind the development of the Sales Division that outline the specific workflows we focus on.

Separations continues to drive innovation and value by always attracting the most cutting-edge and innovation supplies into its portfolio, to deliver spectacular and complete workflow solutions to our discerning customers.

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THANK YOU TO PFIZER FOR BEING A BRONZE SPONSOR AT RARE X 2024Pfizer work with Healthcare Practitioners, Policy Makers,...
15/02/2024

THANK YOU TO PFIZER FOR BEING A BRONZE SPONSOR AT RARE X 2024

Pfizer work with Healthcare Practitioners, Policy Makers, Patient Groups, and other members of civil society to serve the communities, broadening access to medicines and strengthening healthcare delivery for the people who need it most.

Consistent with their responsibility as one of the world's premier innovative biopharmaceutical companies, Pfizer collaborate with health care providers, governments and local communities to support and expand access to reliable, affordable healthcare around the world. For 175 years, we have worked to make a difference for all who rely on them.

THANK YOU TO NNGWE FOR BEING A PLATINUM SPONSOR FOR RARE-X 2024The Nngwe Project, also known as the ONE Project, is a gr...
15/02/2024

THANK YOU TO NNGWE FOR BEING A PLATINUM SPONSOR FOR RARE-X 2024

The Nngwe Project, also known as the ONE Project, is a ground-breaking initiative by DIPLOMICS (DIstributed PLatform in OMICS), that will address the plight of rare disease, and in particular undiagnosed rare disease patients in South Africa. This initiative is funded by the Department of Science and Innovation and will support health goals as outlined in the National Development Plan 2030. It is also aligned with the United Nations 2030 agenda for sustainable development, specifically focusing on Principle Two – ensuring that no ONE is left behind.

Day 1 RECAP! What a fantastic start to Rare-X 2024. Thank you to everyone who joined the conversation! We cannot wait to...
15/02/2024

Day 1 RECAP!

What a fantastic start to Rare-X 2024. Thank you to everyone who joined the conversation! We cannot wait to see what the next few days bring.

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SUPPORT GROUP ATTENDING RARE X - Nova 💫Nova was started in 2021 when three moms identified the need for a school to acco...
14/02/2024

SUPPORT GROUP ATTENDING RARE X - Nova 💫

Nova was started in 2021 when three moms identified the need for a school to accommodate their non-verbal children. At Nova, every child has something to say; communication is more than the spoken word, and everyone has the potential to learn. They offer campus-based learning in Pretoria East and Midstream as well as home-based learning.

If your child could benefit from learning via alternative communication visit https://www.nova-school.co.za/

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SUPPORT GROUP ATTENDING RARE X - Camber CoachingCamber Coaching's focus is to inspire and assist individuals and teams t...
14/02/2024

SUPPORT GROUP ATTENDING RARE X - Camber Coaching

Camber Coaching's focus is to inspire and assist individuals and teams to align and develop their potential in their professional and personal lives. One of their key focus areas is helping frontline workers deal with compassion fatigue and burnout.

Kim Ballantine is a motivational speaker, business and life coach and author of Hot Tea and Apricots: A Memoir of Loss and Hope.

To find out more about Camber Coaching visit their website today https://www.cambercoaching.com/

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SUPPORT GROUP ATTENDING RARE-X - Prader-Willi Syndrome Support SA Prader-Willi Syndrome Support SA is an organisation of...
14/02/2024

SUPPORT GROUP ATTENDING RARE-X - Prader-Willi Syndrome Support SA

Prader-Willi Syndrome Support SA is an organisation of families and professionals working together to offer support, raise awareness, and provide education and advocacy for people living with Prader-Willi Syndrome in South Africa.

Reach out to Prader-Willi Syndrome Support SA by visiting https://www.praderwilli.org.za/

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Rare-X 2024 IS UNDERWAY!We are so excited to announce Rare-X 2024 is underway! Thank you to every single person and orga...
14/02/2024

Rare-X 2024 IS UNDERWAY!

We are so excited to announce Rare-X 2024 is underway! Thank you to every single person and organisation who has made this event possible.

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SUPPORT GROUP ATTENDING RARE -X - Transplant Education for Living Legacies TELL was established in September 2018 as an ...
14/02/2024

SUPPORT GROUP ATTENDING RARE -X - Transplant Education for Living Legacies

TELL was established in September 2018 as an NGO and PBO focusing on educating healthcare professionals and the public on the importance of organ and tissue donation. By shedding light on this critical issue, TELL strives to create a society where every person understands the significance of becoming a living legacy through the Gift of donation. They work tirelessly to break down barriers, dispel myths, and support those affected by organ and tissue transplantation.

To learn more head over to https://tell.org.za/

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About RareX 2018

The second biennial Rare Diseases Conference (RareX 2018) will take place from 13 to 16 September 2018 at The Canvas Riversands in Fourways, Gauteng. The theme of the conference is “Advocating for Patient-Centred Healthcare”. The purpose of the conference is to provide a forum for rare disease patients, doctors, and stakeholders to connect and collaborate, and to facilitate an ongoing dialogue on rare diseases and their treatment.

RareX 2018 brings together South African, African, and international rare diseases communities, as well as policymakers and government agencies responsible for matters related to healthcare and health insurance. Stakeholders delivering essential services to the rare diseases community such as disease-specific drug manufacturers and makers of health-related consumables also attend.

An important part of the conference community are the patient support groups that attend. While disease- or condition-specific, support groups share missions and objectives and can learn from each other’s outreach techniques and fundraising methods and see how other groups serve their communities’ needs.

Via panel discussions, presentations, and networking, the conference presents a comprehensive dialogue which provides insightful guidance to the rare diseases community. In addition to the technical programme of presentations and panels, the conference offers a social programme of a Welcome Networking Function and Conference Dinner.