01/01/2023
Poignant
I sat awake in my bed all night last night. His less than small hand placed gently on my arm to keep me close for his comfort.
Midnight I heard his footsteps. “Hi” he said as he gestured me to scoot over and make room in my bed.
He snuggled in, covered himself up, and placed his hand on my arm. I’m his comfort item, safety blanket, he needs me.
Here I sat, watching him sleep. Two, three, four am slowly ticked by.
I didn’t dare move, for fear of waking him. Although I needed to.
I needed to move to get cold medicine, hot tea, a cool mist humidifier, but no…… here I sat.
Terrified of waking him, which wakes up the rest of the house, which meant I was no longer sitting, I was chasing him for the rest of the night.
This is motherhood with autism. I thought. The perfect example, right here.
Sacrifices because you don’t dare wake them.
He knocked my tissues off the nightstand around three while he was tossing and turning to get comfortable again. Immediately, his sweet hand found my arm for comfort.
This is life with autism. Taking care of him first because you know if you wake him you can’t take care of both of you right now.
So you wait.
Wait for help to come. Or for him to finally stir awake in the next hour or so.
As I sat here watching the hours very slowly pass by I realized this is how much of our life will look.
As we get older, his care will still be my responsibility. I’m ok with that, but something about the long quiet hours of the middle of the night reminds you of the reality.
When I’m sick, I’ll care for him. When he’s sick, I’ll care for him. He doesn’t understand “days off” or “resting to get better”.
Taking care of him first, even if I needed something myself. Waiting. Making peace with what I have in the moment.
We do it because we must, because what other choice do we have? They need us, all of our children do. But our children with additional needs, like autism? They need us forever, every single day and night for the rest of their lives.
So right now over my own needs, he needs me, I know that, and just in case I forgot his perfectly placed hand is a gentle reminder that I am his.