SAPF - South African Porphyria Foundation NPO - 266465

SAPF - South African Porphyria Foundation NPO - 266465 At the SAPF, we believe that every person living with porphyria, whether patient, caregiver, or professional, deserves dignity, support, and understanding.

Together, we have shattered the silence surrounding porphyria and illuminated a path forward. A Legacy of Compassion. The South African Porphyria Foundation was started to fill an urgent void: to offer hope where there was despair, and connection where there was isolation. Its founding was an act of empathy and courage, rooted in the belief that knowledge and community can change lives. As we look to the future, our mission remains clear—empowering every South African affected by Porphyria, and working towards a world where rare diseases are met not with fear, but with understanding and hope. If you are newly diagnosed, a long-term sufferer, or a passionate ally, know that you are not alone. The Foundation is your home, your advocate, and your partner on this journey. Let us continue, together, to make a difference—one life, one story, and one act of kindness at a time

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South African Porphyria Foundation
Hout Bay
7806

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