NEURO HUB - South African Parents of Children With Speech & Language Delay

NEURO HUB - South African Parents of Children With Speech & Language Delay Hi! I'm a mom, wife, an entrepreneur and a crazy dog lover. My first son was born in April 2020, right at the start of the Covid-19 pandemic. You are not alone.

I didn’t know how this new way of living would impact my sons development. Just before he turned two, I realised that something was terribly wrong. Everybody thought that I was crazy. I struggled to find the support and resources that needed to navigate what I knew would be a new chapter in our lives. I’m no expert and this page does not offer medical advice. I created this page to share my experi

ences and tips on how I helped my son progress from no words at 2.5 years old to 4-5 word sentences at 3. He knows all his colours, ABC’s, shapes, animals and their sounds, counts up to 20 and so much more. Through this support page, I hope to create a community of parents who can come together to share their experiences, offer advice and support, and build a network of resources and connections. Together, we can create a brighter future for our children and our families. DISCLAIMER
All content and information on this page is for informational and
educational purposes only, does not constitute medical advice, and does not establish any kind of patient-client relationship by your
use of this page. Always consult a professional in the area for your particular needs and circumstances prior
to making any professional, legal, medical and financial or tax-related decisions.

Many parents in this page can attest to the changes they see in their children once their diets are changed.We’ve been o...
17/07/2024

Many parents in this page can attest to the changes they see in their children once their diets are changed.

We’ve been on a long journey with my boy and after many tests we have discovered that dairy and gluten shouldn’t be part of his diet.

We also discovered that his aluminum levels were really high.

His vitamin D was also extremely low.

All these things do play a part in your child’s well-being and overall behavior or concentration.

It’s important to dig deeper and find the WHY.

Join our support group where you will meet parents who share their experiences with their babies 🥰

WhatsApp Group Invite

Our woodpecker feeding game toy set lets your children have a chance to be a bird mom or dad🤗 Cute insects are hidden in...
17/07/2024

Our woodpecker feeding game toy set lets your children have a chance to be a bird mom or dad🤗 Cute insects are hidden in the wooden stump, which would be attracted by a bird head in the toddler’s hands. This game will satisfy kids’ curiosity about nature.
This play-set helps children to learn colours and counting. Toddlers need to draw the cute worm hidden with bird head and then get it into the fledging’s smallmouth.

https://www.neurohub.co.za/products/topbright-woodpecker-feeding-games

13/12/2023

This is the best Christmas present ever. My boy got onto his sisters bicycle and started riding 🫶🏻🥹

This is such a big deal. After almost 2 years of hard work and therapy. Keep going, the progress is sometimes slow but with the right support and lots of love, we will get there ❤️🙏🏻

28/11/2023

I will give you a glimpse into our early days, before we knew something was wrong.

My husband and I are entrepreneurs. We run large companies and our first son was born in April 2020.

As you know, this was a difficult time for us all. With not having my son around other kids - I really had nothing to compare to.

I am so embarrassed to say, he started watching tv around 8 months or so. As we got busier, he'd watch tv for most of the day. Some days, I still cry about how I let this happen.

Many ask what I noticed aside from the speech delay. Here are some of the things that were happening:

-Zero words, he just had one sound that he would constantly say and that was "Abu"
-Not responding to his name
-He had an attachment to me only. He never went to my husband
-Hyper focus, he would notice everything
-Spitting when angry
-Head banging when excited or angry
-Excessive spinning
-Felt no pain, he would get hurt, and carry on as if nothing has happened
-He couldn't jump
-Had no coordination, he would run into things
-He had zero fear
-He could not cover a blanket
-He could not wear socks
-He could not wear shoes
-He could not wear a hat
-He only ate one thing, chicken nuggets. He refused to eat anything else. He had a major issue with textures
-Couldn't clap
-Would spin every wheel he could find
-Poor eye contact
-No interest in other children
-Rapid finger movements, sometimes he would cross his fingers on both hands
-Would run off in public
-Would want to run into any body of water he saw
-Would play with sand and continuously drop it right infront of his eyes
-Shaking his head violently
-Biting
-Playing with my knees and elbows
-Pushing his head onto me
-Grinding his teeth
AND so much more

These take me way back and I still get some anxiety mentioning them.

We went to several drs and neurologists. I researched like crazy.

They told us to stop tv. We did. He cried like he was in physical pain for 3 weeks, non-stop. When I say we stopped tv, it wasn’t just his shows. The tv was completely off. We didn’t watch tv.

We had to go through extensive therapy, OT and Speech, chiropractor. Everything. You name it. I did it.

He started talking after a few months. He now knows abc’s, counting, shapes, colors, animals and sounds, days of the week, and SO MUCH more.

All of the behaviors listed above have stopped.

He now plays with toys appropriately. So much has changed.

Whenever I tell parents to switch off their tv, some get very upset. Not all children are the same. The tv gives them a dopamine fix. This made it so hard for my son to focus and learn. We are still in therapy now. He is on 10+ word sentences.

His vocabulary is very large but the only thing we are struggling with now is the back and forth conversation.

It was hard not switching on the tv. I got a full time au pair who was outside playing with him when I was busy with work and doing lots of activities to stimulate his brain.

I’ve done so much research over the past two years and I’ve tried so many different things.

I’m no expert and I do not offer medical advice. I share my experiences and tips on how I helped my son progress🫶🏻

We have just started seeing a wonderful Dr and his treatment approach is much like what I researched that was only available overseas. The help in South Africa is very conventional and I feel like our children are labeled too quickly.

We have just done several tests and will plan a more targeted approach once they are back.

Super excited and will share updates with everyone soon 🫶🏻

Don’t give up hope❤️

Here’s a cute video, this was also a way for me to get him to learn body parts 🥰

27/11/2023

I started lilo.shop to help me cope with my son’s speech delay and all the hardships that followed. I love sharing things that I like and things that have helped us along this dark, narrow road.

Im so excited to share our journey and help parents get their babies communicating to the best of their ability❤️

A few posts back, I spoke about ensuring that you do research so that you are able to ask the right questions to Drs, Th...
23/11/2023

A few posts back, I spoke about ensuring that you do research so that you are able to ask the right questions to Drs, Therapists, Teachers.
It is really empowering to have the knowledge so that you don't sit in consultations where your child is placed in a box because they don't match mainstream criteria in development.
I have been researching a lot of alternative therapy methods over the last two years that are mainly offered overseas. Last week, I found a wonderful Dr who we consulted with today for almost 3 hours. He is based in Johannesburg and offers some of the therapy methods I've researched. I was super excited to meet with him and talk about the things I'd learnt.
it was so refreshing to have someone who is a medical professional with a different approach.
I will be doing a detailed blog on the topics discussed as well as the treatment journey we are now.
I have created a WhatsApp group so that I can answer your questions a little faster. Please join and let's chat about how we can help each other and our little ones.

WhatsApp Group Invite

Unveiling the Impact: How Heavy Metals Influence Speech Delay
13/11/2023

Unveiling the Impact: How Heavy Metals Influence Speech Delay

Introduction to Heavy Metals and Their Dangers Around us, even in the most unexpected places, heavy metals lurk. But what exactly are these so-called heavy metals? These are a group of elements that have high atomic weights and density, many of which are toxic even at low concentrations. The group i...

It’s been a little over a month since my son arrived. We’ve always wanted 3 babies💙🩷🩵We are so incredibly excited.I look...
26/10/2023

It’s been a little over a month since my son arrived. We’ve always wanted 3 babies💙🩷🩵

We are so incredibly excited.

I look forward to sharing more of our journey with you all.

How have your babies been doing?

18/10/2023

Fine motor and math activity to practice pincer grip to support the development of hand-writing.

Colour sorting - mix sticks in a bowl. Model picking up stick (pincer grip) and pushing into foam. When all the sticks are in, ask the student to pull them out (pincer grip) and count while they pull out. (Adjust amount of sticks to ability).

Data handling - It can be used as a data handling activity for older children. Mix all the sticks together, ask them to sort it and make notes of the amount of sticks and colour. Ask them to take that information and create a bar graph. Extra: Ask them to create questions about the bar graph and then answering it. This helps them to take in the information, use it and be understand how data handling questions are formed.

05/10/2023

This is a great little resource book. Language can be very complex and confusing for little ones even ones that are typically developing. I hope this helps everyone to understand where their kiddo is within development🫶🏻

https://www.carolinatherapeutics.com/wp-content/uploads/milestones-guide.pdf

A video that explains virtual autisim perfectly.
12/09/2023

A video that explains virtual autisim perfectly.

70 likes, 12 comments. “Have you heard of Virtual Autism?! A study done on children who had similar behaviors as autism due to excessive screen time when they were very young, showed that when screen time was reduced and proper training was provided, it took 2 years for the children to go back to ...

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