
21/08/2025
Balancing Rare Disease Costs with Equity
On Moneyweb, Jeremy Maggs spoke BHF’s Head of Research Charlton Murove about the rising costs of ultra-rare disease treatments. BHF’s new proposal offers a sustainable way to manage these treatments while protecting access, equity, and healthcare cover.
Read full conversation here 👇🏽
‘For smaller schemes, you find that some of them rarely collect contributions in excess of R50 million per year. If they were to fund treatment for one of these diseases, it then becomes a very big portion of what is actually collected,’ says Charlton Murove, head of research at the Board of Hea...