CHRU/Community Advisory Board/Forum

CHRU/Community Advisory Board/Forum Our mission is to consult with the community and voice their concerns regarding clinical drug trials.

Community advisory Board was established in 2002 in conjunction with the Clinical HIV Research Unit .One of the goals of the research unit was to educate the community about HIV/AIDS. Establish relationships with community leaders and to recruit patients for HIV clinical trials. Prior to commencing trials within a community, it is essential that the community is educated, involved in all processes

and informed of all aspects of clinical trials. The Cab compromises of a varied group of volunteers; they provide input in study design and local procedures fulfilling the following roles.
• They serve as a voice for the community and study participants.
• Assist in the planning, developments and implementation of HIV and TB drugs trials.
• Strengthen community mobilization, awareness and involvement in clinical drug research.
• Educate communities about HIV/TB disease and treatment.
• Identify community concerns and perceptions about clinical trials and ensure that they are addressed in the study design. The Clinical HIV Research Unit has expanded its services to Witkoppen Health and Welfare Centre. On the 28 of July 2012, a Community Advisory forum was established at Witkoopen clinic, nine community members attended the meeting. Induction training was done for the members to get them to understand the novel ideas of a community scientific research. The community raised concerns about clinical studies on what happens to trial participants at the end of the studies, do they get treatment on compassionate use. How are we going to disseminate results at the end of the study? Will South Africans have access to the medication if they have been proven to be effective? How will CAF best convey scientific terms in the community?

14/08/2019

Once, a diagnosis of extensively drug-resistant TB meant quick death. A new drug regimen cures most patients in just months.

30/07/2019
# Louder than TB .When we raise our voices together change happens. must fall.
28/07/2019

# Louder than TB .When
we raise our voices together change happens. must fall.

Mandela Day at Sizwe celebrating with TB patients.
24/07/2019

Mandela Day at Sizwe celebrating with TB patients.

22/07/2019
18/06/2019

We are excited to announce that more than one million child-friendly treatments have now been ordered in 93 countries!

Before 2016, many children around the world did not have access to TB medicines in the proper doses or formulations. In 2016, we joined our partners in introducing new TB cures for children in the correct dose that are fruit-flavored and child-friendly. We will continue working to ensure they are widely available for children and families who need them. Find out more: http://bit.ly/One-Million-Child-TB

30/05/2019

"Today’s treatments are woefully inadequate: they take too long to cure, are too complicated to administer and can be toxic." Read more from our Director of External Affairs, Willo Brock's blog post for the Global Health Council https://bit.ly/2Wjj1CR

13/05/2019

TB is a global disease, found in every country in the world. It is an airborne disease that can be spread by coughing or sneezing and is the leading cause of infectious disease worldwide. It is responsible for economic devastation and a cycle of poverty and illness that entraps families, communities and even entire countries. Learn more: https://bit.ly/2mMTmwu

08/05/2019

The IAAF says athletes like Caster Semenya are welcome to enter men's events if they are not willing to take medicine to lower their testosterone levels.

World TB Day 2019 CHRU and Helen Joseph team.
25/03/2019

World TB Day 2019 CHRU and Helen Joseph team.

07/02/2019

PrEP is a new and safe HIV prevention method that when taken daily prevents HIV infection.
www.myprep.co.za

22/07/2018
Louder than TB Walk ." End TB.
22/07/2018

Louder than TB Walk ." End TB.

Makhosi.
16/06/2018

Makhosi.

Gladys is a traditional healer and community advisory board member in Alexandra Township, South Africa. She uses her position of influence to educate people about tuberculosis and encourage them to seek treatment. Gladys says she does this to help “heal people with my words.”

Address

Helen Joseph Hospital, Perth Road, Westdene
Johannesburg
2092

Telephone

+27112768963

Website

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