Live Well With Fibro

18/06/2023

Dr Liptan talks about a foam roller. A quick search shows they're rather expensive. I'm sure a pool noodle will work as well.

21/05/2023

Are you watching Dr Liptan's 30 days with fibromyalgia series on youtube?

23/11/2022

https://www.youtube.com/watch?v=TFQV6hoGS14

Dr. Liptan's talk from the Fibromyalgia Community Conference in November 2022. Topics covered include:- Fibromyalgia mouse study from 2021 in which researche...

21/09/2021

https://twitter.com/ShaneyWright/status/1432364244994076679?s=20

25/07/2021

09/07/2021

https://www.iflscience.com/health-and-medicine/fibromyalgia-is-an-autoimmune-condition-study-indicates/

A new study in The Journal of Clinical Investigation provides compelling evidence that fibromyalgia arises when the body’s own antibodies interact with pai

20/05/2021

I was pushing myself past limits that exist for a REASON, and paying dearly for it.
The moment I decided to live WITH my disabilities instead of trying to live AGAINST them, was the moment I actually started living again.
Maybe not living the way YOU would want me to.
Not even the way I had wanted me to in the past...
But living.
Photo ID: A screenshot of my tweet. Text reads, This is often hard for non-disabled people to understand, but... accepting my disabilities wasn’t “giving up.”
It allowed me to move on.
It allowed me to acknowledge reality, and ADAPT to it and COPE with it.
I was causing so much more damage to my body when I was in denial.
End photo ID.
Hashtags incoming

16/02/2021

CFS, also known as ME, may be caused by the body switching from fully breaking down carbohydrates to using other energy sources, bringing on pain and exhaustion

08/02/2021

https://www.healthrising.org/blog/2021/02/05/attention-deficit-fibromyalgia-rheumatoid-arthritis/?fbclid=IwAR2_f08gCiKvBkFYgc_HqK_mHOdGjFPhvwl-OQGOTPL9fVLw-vrwLCq22hc

How fibromyalgia, chronic fatigue syndrome and allied diseases are so different from diseases like rheumatoid arthritis Fibro-fog, brain-fog, chemo-fog… It can get pretty dim out there if you have fibromyalgia (FM), chronic fatigue syndrome (ME/CFS) and environmental illness (EI). If you have thes...

26/12/2020

I've been struggling with setting boundries recently. I've started a temp assignment that comes with a lot of overtime. Some of it because there's a deadline and I'm frantic to meet it.

The person its hardest to set boundries with is myself. Even after all this time, I have to remind myself that I can't do certain things anymore.

After having a stern talk with myself, I didn't push too hard and the world didn't end.

09/11/2020

I'm in the process of setting up an advance directive. It's a good idea to have one in case you can't make medical decisions. Everyone will know what you want done or not done

26/07/2020

Maybe now we'll get treatment and recognition that it's a disability.